Hi everyone,
I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay!
Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these monoclonal B-cells is consistent [with?] minimal involvement by the patient's previously established ICD10 code/diagnosis of B-CLL/SLL."
The specifics are 3% involvement, consisting of "CD5, CD19, CD20 (dim), CD45, HLA-DR, Kappa (dim); negative for CD10."
Don't know what any of that means, really, but I know it isn't good. Help!
My regular labs are all in good shape, albeit WBC is a bit low at 4.2, and ALC is a bit low at .9. The rest are normal.
My doctor is going to order another flow test in 3 months to look for changes, but otherwise he isn't too worried (or so he said.
My question to you is, what might be next for me? Though I try to be positive, it's a challenge, as I have a tendency to obsessively worry.
So, if you reply, please keep that in mind: try your best not to tip me into full freak-out mode; I need to be pulled back, not pushed over.
Thanks so much for whatever wisdom you might offer, kind CLL geeks!
--Dave!