Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,948 posts

All posts for June 2022

CLL heomoglobin

Hi All Hope your doing ok . I had my CLL video call 3 wks ago , my Heomoglobin has dropped to 8 from 10 and white blood cells now 79 , also said probably...

Hi All Hope your doing ok . I had my CLL video call 3 wks ago , my Heomoglobin...

•2 years ago

Optimizing Treatment of Patients With Relapsed or Refractory Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma

This is a short paper setting out the non trial option for patients needing treatment after a targeted therapy...

This is a short paper setting out the non trial option for patients needing trea...

Administrator•2 years ago

Lateral flow tests

I received a box of lateral flow tests yesterday in the post, anyone else had them. We do test regularly and submit results. This box has a reference number...

I received a box of lateral flow tests yesterday in the post, anyone else had th...

kitchengardener2

•2 years ago

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Specialist

Can someone direct me to a Specialist for CLL in the Nashville? Tired of going to the VA.

Can someone direct me to a Specialist for CLL in the Nashville? Tired of going t...

•2 years ago

IgG testing

Wondering if anyone knows how long it takes to receive results from an IgG blood test? Is it something they have to grow in a culture? I got back the other...

Wondering if anyone knows how long it takes to receive results from an IgG blood...

•2 years ago

High Eosinophil count in recent blood tests in CLL Patient

Have been on watch and wait for almost 2 years, lymphocytes have crept up over time to 65, but in my last 2 blood tests my Eosinophils were above the upper...

Have been on watch and wait for almost 2 years, lymphocytes have crept up over t...

•2 years ago

Toward a better assessment of immune function

(photo: Original 1828 National Capitol Columns at the National Arboretum in Washington, D.C., from my trip to NIH for the History of CLL Study last summer)...

(photo: Original 1828 National Capitol Columns at the National Arboretum in Was...

•2 years ago

Advice on moving area to Nottingham

It seems that we maybe moving in the near future and I will require to change my consultant/hospital. Is there anyone who has been looked after by the...

It seems that we maybe moving in the near future and I will require to change my...

•2 years ago

Patient Transport

My husband is due to have treatment at UCLH. I called to book patient transport and have been told he doesn’t qualify. There is no drop off point , no parking...

My husband is due to have treatment at UCLH. I called to book patient transport ...

Flickchickknits

•2 years ago

Evusheld

Please consider joining ‘Evusheld for the UK’ on Facebook. We are trying to join together to support each other and also have a joined up targeted...

Please consider joining ‘Evusheld for the UK’ on Facebook. We are trying to join...

•2 years ago

Ayurvedic medicine for CLL/SLL

Hi, Anyone tried ayurvedic medicines for CLL/SLL? Any inputs on this. Regards, pbaddi

Hi, Anyone tried ayurvedic medicines for CLL/SLL? Any inputs on this. Regards, p...

•2 years ago

CLL SPECIALIST IN DELHI

Hi All Anyone knows about CLL specialist, based in New Delhi? Even better if some one has first hand experience with the doctor? Best wishes to all .. Vineet

Hi All Anyone knows about CLL specialist, based in New Delhi? Even better if so...

•2 years ago

ATF4 and SIRT3 inhibitors

Read a study and was wondering if anyone knew of open trials or general information about this new treatment method targeting ATF4 & SIRT3 proteins . Sounds...

Read a study and was wondering if anyone knew of open trials or general informat...

•2 years ago

what do you think

Hello everyone I am writing our story to you in this forum in order to tell you everything. I thank all the people who shouted this space and all the members....

Hello everyone I am writing our story to you in this forum in order to tell you ...

•2 years ago

Anyone gone off Acalabrutinib and experienced lasting remission?

My husband has been taking A-brutinib since April 2021 (over a year now). His last blood showed blood levels at “normal” (non-CLL) numbers, and his onc was...

My husband has been taking A-brutinib since April 2021 (over a year now). His la...

•2 years ago

acalibruinub and cll

I have been on acalibruinub for 18 months and ibruinub 24 months. my question is acute fatigue. It has gotten so bad I can hardly stand up. Is there anything...

I have been on acalibruinub for 18 months and ibruinub 24 months. my question is...

•2 years ago

Evusheld results

I thought it might be helpful to share the antibody results of my Evusheld injections. I was first diagnosed with CLL in 2013 and started Ibrutinib in...

I thought it might be helpful to share the antibody results of my Evusheld injec...

•2 years ago

Paxlovid and rebound

I was just wondering how many of you have "rebounded" after using paxlovid. My daughter tested postive May 31. She is 40 and because of a few health issues,...

I was just wondering how many of you have "rebounded" after using paxlovid. My ...

•2 years ago

Tyred and Fatigued

Hello!! If my test is fine, absolutely no disease, perfect markers! Why I feel so tired, dizzy and with a bad body? Diagnosed in August 2016. In treatment with...

Hello!! If my test is fine, absolutely no disease, perfect markers! Why I feel s...

•2 years ago

Evusheld in France - Could a UK national obtain it?

Well I think the title says it all really; as many CLL sufferers are, my wife has zero antibodies, and yet we have to get on with life, the children have to...

Well I think the title says it all really; as many CLL sufferers are, my wife ha...

•2 years ago

71 Yr old male w/w 4 years. Now lesions found on spine and possible Multiple Myeloma.

Hello all you CLLers! I have been w/w 4 years. 2021 was bad because all 3 shots increased lymph nodes. I have been having leg pain, and went to a Spinal...

Hello all you CLLers! I have been w/w 4 years. 2021 was bad because all 3 shots ...

•2 years ago

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