Ayurvedic medicine for CLL/SLL

[pbaddi]

Hi,

Anyone tried ayurvedic medicines for CLL/SLL? Any inputs on this.

Regards,

pbaddi

[LuzyCLL]

Yes, I saw an ayurvedic practitiner who is also an oncologist/hematolgist. She suggested some dietary changes, supplements of liposomal Vitamin C and Green Tea extract and turmeric in large quantities, I followed it for over six months and only got worse... I do still take the Vitamin C, 1000 mgs 3x/day. I did go on an ayurvedic diet for two weeks to help me with IBS, and to stop taking Xanax, it helped a lot with my IBS, but I was only able to stop Xanax with a Dr's help, a diazepam taper worked.

[pbaddi in reply to LuzyCLL]

Thx for your reply. All the best

[AussieNeil Administrator]

Given the lack of related posts on this subject, the fact that CLL is considerably more rare in Asia than other regions and that Ayurvedic medicine doesn't differentiate between different leukaemias, I'd suggest that Ayurvedic medicine is a poor place to look for CLL/SLL specific treatments. Our Indian members struggle to find access to CLL expertise and I couldn't find any CLL specific Ayurvedic medicine research in two different search engine searches.

Neil

[pbaddi in reply to AussieNeil]

Thx for the inputs. All the best

[Soultouch in reply to AussieNeil]

That’s true as after trying a few Ayurvedic treatments which were quite harsh and aggressive, side effects got much worse. What helps me is little bit of naturopathy and regular yoga/meditations/exercise.

[pbaddi in reply to Soultouch]

Thx

[GargR]

Hi, am from India, and taking acakabrutinib for 8 months. Did not find any Ayurvedic substitute. Feeling much better.

[pbaddi in reply to GargR]

Thx

[Khemkaran]

We have a CLL patient in our family on Ayurvedic treatment for last 12 years. With this treatment patient's TLC/ALC have been under control at 0-1 levels. You may like to Google search 'PADAAV' clinic in India. It's run by a famous Vaidya BALENDU Prakash. You may consider sending them your case history and reports thru' E mail given on their website. Do let me know if any more info required. Wish you a total speedy recovery

[AussieNeil Administrator in reply to Khemkaran]

The first search return I found isn't very promising

quora.com/Has-anyone-taken-...

The challenge with CLL is that with a third of us not needing treatment, it's not possible without a randomly assigned clinical trial to know whether a given treatment makes any difference. Two previous repliers here mentioned getting worse with their Ayurvedic treatment.

[pbaddi in reply to AussieNeil]

Looks scary

[pbaddi in reply to Khemkaran]

thx

[Cgobies]

Hi, I can tell you that I tried the ayurvedic lymphatic detox and it was not for cell treatment replacement but for wellness.I think if we take care of our immune system and our lymphatic system we can prolong the wait and see period no matter which forms of leukemia we have. I have been on w&w for the last 9 years. Have a look at this reading material (link removed) Be healthy...

Admin addendum. Dr Jockers is the recipient of a letter from the FDA for fraudulent activities:

fda.gov/media/137707/download

[pbaddi in reply to Cgobies]

Thx

[Rivergoddess]

I have just started using a pinch of Guduchi satwa daily. I don’t know results yet.

[pbaddi in reply to Rivergoddess]

Thx I can understand

[craterlake]

the only one i have found that actually claims to show some results is NEEM herb .... it is widely used for various products ... it is supposed to help with the apoptosis of the leukemia cells . i ordered the powder and the fluid extract ... before i started on the calquence but now that i am taking it i am reluctant to experiment with the neem .

[Newdawn Administrator in reply to craterlake]

I think that’s a wise decision craterlake.

Newdawn

[craterlake in reply to Newdawn]

👍👍

[pbaddi in reply to craterlake]

Thx

[Lasweetpea]

I have been consulting with an Ayurvedic practitioner for several years for my overall health. Dietary and herbal considerations for my constitution along with dedicated time for meditation, exercise and stress reduction have been most helpful. I am 4 years on W&W stage 1 and grateful for everyday. My intention is to support my body mind spirit as much as possible and I believe it is beneficial but of course not a magic cure. Ayurvedic practices often focus on the health of the gut microbiome which then can have a positive effect on the overall health of the individual, supporting elimination, detoxification and rejuvenation of the blood, lymph and tissues. I wish you the best on your healing journey.

[pbaddi in reply to Lasweetpea]

Thx