New guidance issued Christmas eve:: gov.uk... - CLL Support

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New guidance issued Christmas eve:

AutumnJ profile image
27 Replies

gov.uk/government/publicati...

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AutumnJ profile image
AutumnJ
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27 Replies
mrsjsmith profile image
mrsjsmith

Thank you,

Just when I think I can’t get anymore depressed. Just seen online the area of London I live in has the 5th highest rates in the country.

And to anyone who does online shopping check delivery dates. Even though I am on their priority list next Sunday was the first delivery I could get with Waitrose, obviously New Year won’t help.

Colette ☹️

Shooey profile image
Shooey in reply tomrsjsmith

Doesn’t surprise me Colette, apparently, according to my Waitrose delivery guy last week they’re dropping like flies so I guess we have to expect some disruption. Must admit I am getting a bit bored of turkey now!Take care

Shooey

mrsjsmith profile image
mrsjsmith in reply toShooey

Yes I did wonder if they were allowing for less drivers.It’s only once a year so today is the last cold Turkey 🦃

Colette

Shooey profile image
Shooey in reply tomrsjsmith

Haha, risotto tonight to use the last of the gammon then all I have to do is wade through two Christmas cakes, difficult job but someone has to do it!

mrsjsmith profile image
mrsjsmith in reply toShooey

I am very jealous I didn’t have any Christmas cake this year, but I do love risotto.

Colette

cllady01 profile image
cllady01Former Volunteer

While I am not in UK, the statement regarding not being in close contact for 14 days with another who has just received a COVID vaccination is something I have not seen before.

mrsjsmith profile image
mrsjsmith in reply tocllady01

Nor me. I always thought it was live vaccines that could shed

Colette

MickUK profile image
MickUK in reply tomrsjsmith

I suspect that advice is because the vaccine does not become effective until 10-14 days after vaccination.

cllady01 profile image
cllady01Former Volunteer in reply toMickUK

That is most likely the reason, and that explanation stated would be most helpful.

Annie1920 profile image
Annie1920 in reply tocllady01

I didn't know that either.. Maybe it's new advice??

MickUK profile image
MickUK

Thank you for posting that - I have just printed it for future reference.

It is good to have all the rules and advice in one official document.

Annie1920 profile image
Annie1920 in reply toMickUK

I have done that too. The Bristol commissioning group pathway doc is excellent plus this one plus the government advice sheet to GPs which mine hasn't seemed to have read yet!

bennevisplace profile image
bennevisplace

Thanks for posting.

The main problem with this guidance is that it leaves room for doubt as to whom it applies. The eligibility categories are vague e.g. "certain types of cancer" and reference to the more specific government and JCVI guidance is missing.

The statement that individuals to whom this guidance relates have been identified by their eligibility for either the third primary vaccination or the new treatments is hilarious, in a deadly serious way.

How many of us have been individually informed of our eligibility for new treatments? I certainly have not.

How many of us had to fight to establish our right to a third primary vaccination? I certainly did.

mrsjsmith profile image
mrsjsmith in reply tobennevisplace

Sorry so far I have had no problems 🤞

MickUK profile image
MickUK in reply tomrsjsmith

That's brilliant, I'm really pleased for you.

It just goes to show that if the correct message is sent, received, read and understood things can actually happen as they are supposed to happen.

Left and right hand coordination please NHS.......

mrsjsmith profile image
mrsjsmith in reply toMickUK

Agreed I was lucky with my local health authority ( now called a federation ) so vaccines no problem. But we always need to be aware sadly of what is expected.

Colette

Annie1920 profile image
Annie1920 in reply tobennevisplace

Me too.. Gp was not v pleased to be asked for a letter to take for 4th jab and the unit on 119 for wrongly labeled vaccine 3 will take til end of Jan to actually do it!

Mtk1 profile image
Mtk1 in reply tobennevisplace

Spot on, and if you read Newdawn’s latest post you see that not everywhere is up to speed sadly. Ps I too have not received any communication.

Indoorbowlers profile image
Indoorbowlers in reply toMtk1

My husband is still waiting for his letter too. I’ll be in that phone on 10th Jan if nothing received!

stevebran profile image
stevebran in reply tobennevisplace

My experience also but I make allowances for the NHS as I’m sure that they do not get the go ahead from the government until the last minute so they are already on the back foot. I am just so glad that we have our NHS. A completely different story with other health systems where only the relatively wealthy can afford the costs or insurance. We must all defend our “free at the point of delivery” NHS and guard against creeping privatisation. Be vocal, write to your MP (especially if you are represented by Conservative) and leave them in no doubt how important it is to us as individuals and as a community.

bennevisplace profile image
bennevisplace in reply tostevebran

I agree with the sentiment. By most international comparisons our healthcare system is egalitarian and good value. But how can you defend "free at the point of non-delivery"?

newyork8 profile image
newyork8 in reply tostevebran

Free Regeneron (ronapreve), Evusheld, vaccines, tests, etc in the US. Drive through free testing. Free insurance for low income. Most insurance you can change doctors at will with little wait time. Do I want government bureaucrats deciding my health care? Appointments within days for many doctors. I'm not sure which system is better. Is NHS free or your higher tax rates pay for it? Our average blended overall tax rate in 20 to 25%. So the money we save can be used to pay for insurance. I think the different systems have pros and cons. Shingrix and Ibrutinib was approved years before the UK did. They really need to analyze which system is better.

Psmithuk profile image
Psmithuk

Thanks for posting this. I thought it was very helpful until I got to the last sentence. I pressed Wales, and found nothing at all about the new treatment arrangements, only outdated information about 'how to shield'. Cx

Provence profile image
Provence

Thank you for posting this AutumnJ. What to me is not clear in this guidance is their advice to members of the same household. I live with my husband who is hesitant about putting too many vaccines in his body and has therefore been waiting until it is 6 months after his second vaccine before he gets his booster. That will be in January, which to me feels quite unsafe in the present surge of Omicron. I would have liked clearer statements in this guidance about what partners to immunosuppressed people should be doing.

ViPOR profile image
ViPOR

Thanks for this site!

janvog profile image
janvog

Interesting that a 4th vaccination three month' after the 3rd is now authorized for those with listed conditions. Some day.... this will also be authorized in the USA.....

newyork8 profile image
newyork8 in reply tojanvog

Anyone in US can go get vaccines when they want. Just go and ask for it. I had 4 with no problems...except they did not work!

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