Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,948 posts

All posts for April 2021

Vaccine after recent covid infection

I got infected with Covid two weeks back and now negative. Can I straight away go for a vaccine or it won’t make sense since I already have the antibodies?

I got infected with Covid two weeks back and now negative. Can I straight away g...

Soultouch

•4 years ago

3 Replies

Covid and kiddos-what's your strategy?

All through quarantine we have been telling our 12 year old that she will be able to visit and sleepover at friends once my husband and I ( me with CLL and he...

All through quarantine we have been telling our 12 year old that she will be abl...

CoCoLuna11

•4 years ago

13 Replies

Your first bone marrow biopsy?

I had mine last month and am just now getting around to sharing my experience. As they prepare you for the procedure, I highly recommend looking at the...

I had mine last month and am just now getting around to sharing my experience. A...

Luap001

•4 years ago

33 Replies

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Tracking labres

https://cllsociety.org/toolbox/keeping-track-of-lab-results/

May1270

•4 years ago

2 Replies

CT scan of abdomen pelvis and chest is that a basis for starting treatment?

CT scan of abdomen pelvis and chest is that a basis for starting treatment? Husband’s Bloodwork all still very stable no anemia absolute neutrophil count and...

CT scan of abdomen pelvis and chest is that a basis for starting treatment? Husb...

Palmetto

•4 years ago

12 Replies

It has been 5 years since my CLL diagnosis, and 4 years of Ibrutinib treatment

I was diagnosed with a regular blood test at age 67 by my internist (the physician I've been seeing for 25 years on a yearly basis). After a year of watch...

I was diagnosed with a regular blood test at age 67 by my internist (the physic...

jimvan

•4 years ago

1 Reply

Two Months on Acalabrutinib - Still Underwhelming

Just finishing my second month on Acalabrutinib. I’m not complaining and I’m not upset. Just wanted to let people on w&w (I was on w&w for almost 7 years) know...

Just finishing my second month on Acalabrutinib. I’m not complaining and I’m not...

Vizilo

•4 years ago

5 Replies

St George's Day.

Happy St George's Day🌹🌹🌹🌹🌹🌹🌹

MistyMountainHop

•4 years ago

4 Replies

Acalabrutinib failure CAR-T

Is anybody was treated with CAR-T after failure of BTK blockers? I wonder if there any test to predict CAR-T efficacy and if you continue was taken BTK blocker...

Is anybody was treated with CAR-T after failure of BTK blockers? I wonder if the...

Mik_

•4 years ago

2 Replies

Covid 19 Experts’ questions

Found this article to be of interest. It’s long but goes into the questions the experts studying Covid have... Several brought up better ways to gauge...

Found this article to be of interest. It’s long but goes into the questions the ...

KatieBlue

•4 years ago

1 Reply

Blood results (last 2 years)

Last week I requested with the secretary of my haematologist my blood results in print and she just told me that she has posted them out to me so should be...

Last week I requested with the secretary of my haematologist my blood results in...

Hidden

•4 years ago

84 Replies

Importing Ibrucent (Generic Ibrutinib) from India

I live in New Zealand where Ibrutinib is not funded. We understand a generic version Ibrucent (by Incepta) can be imported from India. Can anyone suggest a...

I live in New Zealand where Ibrutinib is not funded. We understand a generic ve...

LBfan

•4 years ago

24 Replies

Sore joints and CLL

Curious to know if anyone has experienced sore hands / wrists or knee joints especially early morning whilst on ibrutinib. Been taking it daily for about 6...

Curious to know if anyone has experienced sore hands / wrists or knee joints esp...

katyadam

•4 years ago

6 Replies

Does the side effect of muscle and joint pain with Acalabrutnib subside? I have been on Acalanrutnib for 3+months and now pain.

Muscle and Joint Pain

Mackiec1108

•4 years ago

4 Replies

New guy here, just want to share my story.

I have been watching and reading posts in this group for a little while but now I figure it's time I introduce myself and tell my story. I am a 52yr old male...

I have been watching and reading posts in this group for a little while but now ...

CallmeT

•4 years ago

38 Replies

Which way to go when its difficult to get someone to discuss anxieties about proposed treatment?

Has anyone some ideas about what I am letting myself in for, as they have found very few antibodies or immunity following Covid vaccinations. It has been...

Has anyone some ideas about what I am letting myself in for, as they have found ...

sandyandtweed

•4 years ago

4 Replies

NICE Recommends Acalabrutinib for treating CLL for certain groups

NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, BUT ONLY......

NICE has approved Acalabrutinib as monotherapy and is recommended as an option f...

Jm954

Administrator•4 years ago

28 Replies

Eosinophils abnormal results

Can anyone out there explain about Eosinophils please? My last blood test shows an abnormal result and I haven’t come across this before. My GP hasn’t...

Can anyone out there explain about Eosinophils please? My last blood test show...

keeptalking

•4 years ago

9 Replies

Post cataract surgery update etc etc

Hi all, I hope you’re doing well. Just before my eye surgery my doctors clinic called to say that my Astra Zeneca vaccination was ready for me. I had it on the...

Hi all, I hope you’re doing well. Just before my eye surgery my doctors clinic c...

josephinef

•4 years ago

11 Replies

bmb showing partial remission after 6mnths fcr treatment

hi all ive had my bone marrow results which shows. pr. partial remission after 6 cycles of fcr finished in Jan 2021...unmutated,,,bloods show...

hi all ive had my bone marrow results which shows. pr. partial remission after 6...

kel555

•4 years ago

11 Replies

CAR-T Comic Book: Sometimes you need to have a simple overview, and a little lighthearted story to share with family and friends.

CLL Society CAR-T Ed Forum April 21st The Basic Science and Latest Data! Midway through this high caliber presentation by Drs. John Pagel and Tanya Siddiqi,...

CLL Society CAR-T Ed Forum April 21st The Basic Science and Latest Data! Midway ...

bkoffman

CLL CURE Hero•4 years ago

1 Reply

“400 Bad Request” - Cured it

This “400 Bad Request” error message, n blank page, when clicking on weblinks within HU posts, has nagged me (and a few others) for awhile. Tried many “fixes”...

This “400 Bad Request” error message, n blank page, when clicking on weblinks wi...

Pin57

•4 years ago

1 Reply

CLL Society/ CAR-T! Read the story of Dr. Brian Koffman's 3 years of durable remission post-CAR-T!

CAR-T! March 21st marked three years since Dr. Brian Koffman received his genetically modified CAR-T cells. Read about his three years of durable remission...

CAR-T! March 21st marked three years since Dr. Brian Koffman received his geneti...

bkoffman

CLL CURE Hero•4 years ago

17 Replies

Immune response

Normally I am in Lurk and Learn mode, but I thought this was important enough to share. Studies Suggest People with Blood Cancers May Not Be Optimally...

Normally I am in Lurk and Learn mode, but I thought this was important enough to...

RSilver

•4 years ago

7 Replies

Good reading here

Enjoyed this post.

lsutigers2018

•4 years ago

9 Replies

Another Cancer

I had a CT scan due to my CLL. The doctor wanted to see whether my internals were impacted by my high WBC (123.5K). It showed I had a nodule on my bladder....

I had a CT scan due to my CLL. The doctor wanted to see whether my internals w...

MyCLLJourney

•4 years ago

83 Replies

Day 4: post AZ 2nd Jab, mostly over the reaction v

and back at work. Still working from home, and glad of it as it a nice day and I had a chance to cut the grass at lunch time

and back at work. Still working from home, and glad of it as it a nice day and I...

zaax

•4 years ago

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husband starting treatment

we have been on 3 1/2 years of WW and doctor finally says it’s time for treatment. He gets his medicine in the mail today. He will be starting IBRUTINIB....

we have been on 3 1/2 years of WW and doctor finally says it’s time for treatmen...

Nanatoo4

•4 years ago

15 Replies

Chris Whitty lecture on blood cancers 19th April

This is on tonight 6pm and is free - what more can I say! Www.Gresham.ac.uk

Ptcad

•4 years ago

2 Replies

UK Biobank Coronavirus self test antibody study

For those who participate in the UK Biobank scheme ( about 500,000 of us ), you will be receiving an invitation to participate in a finger prick test to...

For those who participate in the UK Biobank scheme ( about 500,000 of us ), you ...

richardp

•4 years ago

19 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2021

Vaccine after recent covid infection

Covid and kiddos-what's your strategy?

Your first bone marrow biopsy?

Tracking labres

CT scan of abdomen pelvis and chest is that a basis for starting treatment?

It has been 5 years since my CLL diagnosis, and 4 years of Ibrutinib treatment

Two Months on Acalabrutinib - Still Underwhelming

St George's Day.

Acalabrutinib failure CAR-T

Covid 19 Experts’ questions

Blood results (last 2 years)

Importing Ibrucent (Generic Ibrutinib) from India

Sore joints and CLL

Does the side effect of muscle and joint pain with Acalabrutnib subside? I have been on Acalanrutnib for 3+months and now pain.

New guy here, just want to share my story.

Which way to go when its difficult to get someone to discuss anxieties about proposed treatment?

NICE Recommends Acalabrutinib for treating CLL for certain groups

Eosinophils abnormal results

Post cataract surgery update etc etc

bmb showing partial remission after 6mnths fcr treatment

CAR-T Comic Book: Sometimes you need to have a simple overview, and a little lighthearted story to share with family and friends.

“400 Bad Request” - Cured it

CLL Society/ CAR-T! Read the story of Dr. Brian Koffman's 3 years of durable remission post-CAR-T!

Immune response

Good reading here

Another Cancer

Day 4: post AZ 2nd Jab, mostly over the reaction v

husband starting treatment

Chris Whitty lecture on blood cancers 19th April

UK Biobank Coronavirus self test antibody study

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