Re government letter: Has any one in scotland... - CLL Support

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Re government letter

thistlefan profile image
6 Replies

Has any one in scotland recieved a letter about shielding.i am currently w and w and have not recieved ine

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thistlefan profile image
thistlefan
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6 Replies
Frodo21 profile image
Frodo21

I live in Scotland and as yet have not received letter. I have immunoglobulin intravenous treatment 6mths of every year. Have had CLL for nearly 15yrs. Am self isolating for 12 weeks as advice by consultant. But without letter finding it hard to get shopping. Stay safe all x

Quarry profile image
Quarry

I live in England and have no letter! I am not sure how high risk I am, as am on W&W and no treatment in sight (so maybe I should not be high risk), but I have no spleen (so maybe I should be).

Given the speed letters were meant to be coming out and how stretched NHS resources are anyway, I can't see they are going to select people on a case by case basis, but just generic categories. So perhaps CLL is not a generic category?

Has anyone got a letter?

olyocl profile image
olyocl

I live in Scotland and I haven’t received one. It is your GP that decides. I had treatment 2016/2017, then 2017/18 I was on RChop as I had Richters Transformation. My consultant says that I will be starting Ibrutinib in the next few months. My GP phoned me on Friday about another matter and I took the opportunity to ask him what risk assessment I was and he said medium. Stay safe everyone.

thistlefan profile image
thistlefan in reply toolyocl

Thanks all for replying. Stay safe .

Elizabetha profile image
Elizabetha

I live in Glasgow and still no letter. I contacted my GP last week but was told that NHS will be sending shielding letters out but no date given.

thistlefan profile image
thistlefan

Thankyou i will wait sit tight take care and stay safe

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