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CLL Support

22,753 members • 39,033 posts

All posts for February 2020

Wondering if anyone has experience with shifting from Imbruvica to Calquence. I have been on Imbruvica for 5 months with bad side effects.

Imbruvica switch to Calquence

Mansil

•4 years ago

15 Replies

Please share experience of venetoclax plus obinutuzimab or acalabrutinib mono treatment in an important survey

Reminder - please complete the survey if you are any of the above treatments. At the moment we have only had a few responses. By completing this...

Reminder - please complete the survey if you are any of the above treatments. A...

Jm954

Administrator•4 years ago

14 Replies

March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan

To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND...

To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1...

lankisterguy

Volunteer•4 years ago

3 Replies

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Concerns with CLL

Hi...my dad has been diagnosed with CLL .had 2 chemos of rituximab and endoxon combi.His wbc was 7 lacs plus..now it varies between 3 to 3.5 lacs after last...

Hi...my dad has been diagnosed with CLL .had 2 chemos of rituximab and endoxon c...

sweetromeet

•4 years ago

4 Replies

CLL with Acute Interstitial Pneumonitis

My mother was diagnosed with CLL and with auto immune hemolytic anemia 2 months ago. She did not undergo any chemo during hospitalization. Continued with...

My mother was diagnosed with CLL and with auto immune hemolytic anemia 2 months ...

Almanac

•4 years ago

4 Replies

Itchy skin rashes

I’ve been having a horrible time with extreme itchy skin rash on my both ankles areas. I’ve been trying using anti itchy creams / lotions etc.. but none of...

I’ve been having a horrible time with extreme itchy skin rash on my both ankles ...

Ronnn7

•4 years ago

14 Replies

Ibrutinib

I have been on Ibrutinib for 1 month. Already have improved well being, blood tests are good. No fibrillation. Hurray!

I have been on Ibrutinib for 1 month. Already have improved well being, blood te...

Bigarch

•4 years ago

6 Replies

Deep sleep problems with Ibrutinib?

Has anyone with Oura ring, Apple Watch or FitBit noticed that they have no deep sleep and lots of restlessness according to the sleep info on the apps for...

Has anyone with Oura ring, Apple Watch or FitBit noticed that they have no deep ...

alexismitchell51

•4 years ago

19 Replies

O + V & Antibiotics?

Does anyone here know which—if any—antibiotics someone being treated with Obinutuzumab & Venetoclax should avoid? Just curious. Read something about that...

Does anyone here know which—if any—antibiotics someone being treated with Obinut...

DRM18

•4 years ago

7 Replies

Worried about my daughter

My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago had some bloods and they came back very low infact at one point they were going...

My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago ha...

cartwheels

•4 years ago

3 Replies

Ibrutinib and Orange Juice

Please if I could ask for assistance again: I am seeing different opinion in consuming Orange Juice. I'm taking 420 IB in the AM with 1 glass freely squeezed...

Please if I could ask for assistance again: I am seeing different opinion in con...

Traudel

•4 years ago

13 Replies

O + V: Update Two!

Kind of a non-event here, but what the heck: just trying to be consistent with these updates. Took my 1st-ever dose of Venetoclax this morning. 5:30am, to be...

Kind of a non-event here, but what the heck: just trying to be consistent with t...

DRM18

•4 years ago

12 Replies

My two year on ibrutinib check up

I find reading about the experience of others on the forum about their treatment experiences has been enormously helpful to me. Treatment is the big boogeyman...

I find reading about the experience of others on the forum about their treatment...

cajunjeff

•4 years ago

33 Replies

Red Blotches

I've been on Imbruvica now for a few months and am showing more signs of Small to Medium size blotches around my neck, arms and back. Any recommendations to...

I've been on Imbruvica now for a few months and am showing more signs of Small t...

brooklyn7672

•4 years ago

6 Replies

Homeopathy cure the CLL by decreasing WBC count? Anybody have the experience in homeopathy treatment?. Now my mothe treatedby one homoeopath

Homeopathy Treatment cure the CLL?

Surya1979

•4 years ago

24 Replies

Change in blood results

HELLO MEMBERS OF CLL FORUM, I'm on IB now for a little over 2 month, and seeing my numbers are getting slightly better ......... except Platelet count still L...

HELLO MEMBERS OF CLL FORUM, I'm on IB now for a little over 2 month, and seeing ...

Traudel

•4 years ago

2 Replies

Just ending C-Diff infection... do I take probiotics?Vancomycine, probiotics?

I just left hospital after 7 days... C-Diff... on Vancomycin for 5 more days... Should I take probiotics to rebuild the good bacteria in bowel? Anyone...

I just left hospital after 7 days... C-Diff... on Vancomycin for 5 more days... ...

Butitisme

•4 years ago

12 Replies

Injections

Can you get Juvederm with CLL?

oliviapaige4

•4 years ago

16 Replies

Minor Sniffles

Please excuse me if this is a very minor question, but I'd really like some input if you can give it. I seem to have gone through alot of months now, where I...

Please excuse me if this is a very minor question, but I'd really like some inpu...

wizzard166

•4 years ago

9 Replies

What causes these horrific night sweats and does everyone get them ?

Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just...

Hi All, 3 years on W&W and finally my time has arrived for treatment within the...

Roseneath69

•4 years ago

33 Replies

CT vs Breast cancer risk

I need to have another CT and am worried about radiation exposure to my breasts. My mom had breast cancer at 85 and lived cancer-free to the ripe age of 96...

I need to have another CT and am worried about radiation exposure to my breasts....

country76

•4 years ago

2 Replies

Confused on what this means

What does Unmuted with no tp53 abnormalities mean?

Carl123

•4 years ago

6 Replies

Support Group

Where can I find a support group that we can attend for my wife who is taking Imbruvica? We live in Bellflower CA. Thanks

Where can I find a support group that we can attend for my wife who is taking Im...

brooklyn7672

•4 years ago

1 Reply

ChrisBeatCancer

Please watch a free screening tonight!!! https://sq1.chrisbeatcancer.com/gos

debdetermine58

•4 years ago

39 Replies

Knee pain and swelling. Uric acid?

Cll victim on Ibrutinib with obnoxious pain in knee would like to know if any of my friends here had heard of connexion between swellling of the knee and uric...

Cll victim on Ibrutinib with obnoxious pain in knee would like to know if any of...

agatha123

•4 years ago

13 Replies

IVIG infusion in Mexico

Trying to find out if you can get IVIG infusion therapy done in Mexico and the cost?

Trying to find out if you can get IVIG infusion therapy done in Mexico and the c...

pragnar

•4 years ago

2 Replies

Ibrutinib and citrus

I’m in Ibrutinib since 7 months ago, after 23 years in watch and wait. I know that can’t eat Sevilla oranges and grapefruit. Please can you tell me if I can...

I’m in Ibrutinib since 7 months ago, after 23 years in watch and wait. I know th...

ENAMP

•4 years ago

9 Replies

CLL and US VA

81 yrs old, Agent Orange Vet, diagnosed with CLL June 2019, just finished the 6 infusion of Gazyva. In June 2019 my WBC was in outer space, PLT were in the...

81 yrs old, Agent Orange Vet, diagnosed with CLL June 2019, just finished the 6 ...

JimboW

•4 years ago

11 Replies

Suitable mask for pollutants & pathogens

Having met a few people at The Christie wearing very smart ‘fashionable masks’ - I asked each the veracity of protection with these masks over the simple ones...

Having met a few people at The Christie wearing very smart ‘fashionable masks’ -...

Sepsur

•4 years ago

9 Replies

Back pain on Ibrutinib

Have been on Ibrutinib for 2 months. My numbers have been slowing improving Today I started having some dull pain in my left upper back. Anyone experiencing...

Have been on Ibrutinib for 2 months. My numbers have been slowing improving Toda...

Hidden

•4 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2020

Wondering if anyone has experience with shifting from Imbruvica to Calquence. I have been on Imbruvica for 5 months with bad side effects.

Please share experience of venetoclax plus obinutuzimab or acalabrutinib mono treatment in an important survey

March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan

Concerns with CLL

CLL with Acute Interstitial Pneumonitis

Itchy skin rashes

Ibrutinib

Deep sleep problems with Ibrutinib?

O + V & Antibiotics?

Worried about my daughter

Ibrutinib and Orange Juice

O + V: Update Two!

My two year on ibrutinib check up

Red Blotches

Homeopathy cure the CLL by decreasing WBC count? Anybody have the experience in homeopathy treatment?. Now my mothe treatedby one homoeopath

Change in blood results

Just ending C-Diff infection... do I take probiotics?Vancomycine, probiotics?

Injections

Minor Sniffles

What causes these horrific night sweats and does everyone get them ?

CT vs Breast cancer risk

Confused on what this means

Support Group

ChrisBeatCancer

Knee pain and swelling. Uric acid?

IVIG infusion in Mexico

Ibrutinib and citrus

CLL and US VA

Suitable mask for pollutants & pathogens

Back pain on Ibrutinib

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