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CLL Support

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All posts for February 2020

Wondering if anyone has experience with shifting from Imbruvica to Calquence. I have been on Imbruvica for 5 months with bad side effects.

Imbruvica switch to Calquence
Mansil profile image

Please share experience of venetoclax plus obinutuzimab or acalabrutinib mono treatment in an important survey

Reminder - please complete the survey if you are any of the above treatments. A...
Jm954 profile image
Administrator

March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan

To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1...
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Concerns with CLL

Hi...my dad has been diagnosed with CLL .had 2 chemos of rituximab and endoxon c...
sweetromeet profile image

CLL with Acute Interstitial Pneumonitis

My mother was diagnosed with CLL and with auto immune hemolytic anemia 2 months ...
Almanac profile image

Itchy skin rashes

I’ve been having a horrible time with extreme itchy skin rash on my both ankles ...
Ronnn7 profile image

Ibrutinib

I have been on Ibrutinib for 1 month. Already have improved well being, blood te...
Bigarch profile image

Deep sleep problems with Ibrutinib?

Has anyone with Oura ring, Apple Watch or FitBit noticed that they have no deep ...

O + V & Antibiotics?

Does anyone here know which—if any—antibiotics someone being treated with Obinut...
DRM18 profile image

Worried about my daughter

My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago ha...
cartwheels profile image

Ibrutinib and Orange Juice

Please if I could ask for assistance again: I am seeing different opinion in con...
Traudel profile image

O + V: Update Two!

Kind of a non-event here, but what the heck: just trying to be consistent with t...
DRM18 profile image

My two year on ibrutinib check up

I find reading about the experience of others on the forum about their treatment...
cajunjeff profile image

Red Blotches

I've been on Imbruvica now for a few months and am showing more signs of Small t...
brooklyn7672 profile image

Homeopathy cure the CLL by decreasing WBC count? Anybody have the experience in homeopathy treatment?. Now my mothe treatedby one homoeopath

Homeopathy Treatment cure the CLL?
Surya1979 profile image

Change in blood results

HELLO MEMBERS OF CLL FORUM, I'm on IB now for a little over 2 month, and seeing ...
Traudel profile image

Just ending C-Diff infection... do I take probiotics?Vancomycine, probiotics?

I just left hospital after 7 days... C-Diff... on Vancomycin for 5 more days... ...
Butitisme profile image

Injections

Can you get Juvederm with CLL?

Minor Sniffles

Please excuse me if this is a very minor question, but I'd really like some inpu...
wizzard166 profile image

What causes these horrific night sweats and does everyone get them ?

Hi All, 3 years on W&W and finally my time has arrived for treatment within the...
Roseneath69 profile image

CT vs Breast cancer risk

I need to have another CT and am worried about radiation exposure to my breasts....
country76 profile image

Confused on what this means

What does Unmuted with no tp53 abnormalities mean?
Carl123 profile image

Support Group

Where can I find a support group that we can attend for my wife who is taking Im...
brooklyn7672 profile image

ChrisBeatCancer

Please watch a free screening tonight!!! https://sq1.chrisbeatcancer.com/gos

Knee pain and swelling. Uric acid?

Cll victim on Ibrutinib with obnoxious pain in knee would like to know if any of...
agatha123 profile image

IVIG infusion in Mexico

Trying to find out if you can get IVIG infusion therapy done in Mexico and the c...
pragnar profile image

Ibrutinib and citrus

I’m in Ibrutinib since 7 months ago, after 23 years in watch and wait. I know th...
ENAMP profile image

CLL and US VA

81 yrs old, Agent Orange Vet, diagnosed with CLL June 2019, just finished the 6 ...
JimboW profile image

Suitable mask for pollutants & pathogens

Having met a few people at The Christie wearing very smart ‘fashionable masks’ -...
Sepsur profile image

Back pain on Ibrutinib

Have been on Ibrutinib for 2 months. My numbers have been slowing improving Toda...
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