3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it and hopefully get a good 5 years before I need treatment again.
Recently I’ve been feeling the effects of CLL it’s been tough. The night sweats and cold saws have been the worst. Currently I’m working full time tho not in this week as I have a virus the first one in ages.
I’m hoping these sweats will go once I have had my treatment.
My best to you all
Lou
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Roseneath69
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I had really extreme night sweats for about 3-4months solid - then they went. Two months later much much milder sweats started happening - within a month I started treatment
Hi thanks for the reply not too sure which one I’m have but I know it’s the one where I go in and have it administered in the hospital for a day or two. Once every four weeks. Currently my consultant is planning my treatment plan in conjunction with Christie’s at Manchester.
When you have IV chemo or Rituxin, it's administered thru your vein in the arm. Due to repetitive treatments, like every 4 weeks, it is a good idea to get a port inserted into your chest to use instead of your arms. Keeps your hands free and veins healthy. Takes few minutes with slight sedation to insert. Usually 2 weeks before you start treatment.
Google port for IV. Check if ur insurance covers it. Discuss with your doctor. I bruise easily and wanted my hands free during the long hours of chemo. 💕
I do have night sweats from time to time. Normally they will last for a period of 3 or 4 days. Them it’s « bed at the beach » because I have to put a beach towel in the bed if I want to be able to sleep. I know I have CLL, I know it causes night sweats. But one tought your thread ha bringée forward was: « what is the mechanism behind that ? ». Why is CLL causing that symptom ?
Hi Loubs69, I've fond that explanation. Makes sense to me now!
"There are a few different ways that leukaemia can lead to night sweats:
1-Leukaemia puts you at a greater risk of developing infections because your body isn’t producing enough immune cells. During an infection, the body will automatically increase its temperature to help fight against infections, causing both fever and night sweats.
2-In the same way that your body naturally rises in temperature when fighting an infection, your body will rise in temperature in an attempt to kill the leukaemia cells. This is part of the “inflammatory response”.
3-After diagnosis, many treatments including chemotherapy can produce toxic by-products that can also lead to a raise in core body temperature."
I had severe night sweats prior to treatment in 2018. However, I find I now get them if I pick any infections, as in a recent flu like infection, which seems to have lasted a month so far. They are usually short lived and I can live with that, but it is a nuisance. I do wonder why though.
Hi, night sweats affect some and not others.two or three years before I was diagnosed, about 2003, I was due to go on holiday and went to the doctor with a pain in the head like a vice, he found no reason so I went. While away, every night, I had extreme night sweats, waking every night shivering in a pool of water but the day time I was fine, no symptoms ,this lasted for a week, I took paracetamol and antibiotics when I returned.
These symptoms were never identified or connected to CLL diagnosed in 2006 with a white count of 18 but my doctor did say that his records showed that my level had been highish for two years but they thought it was due to pneumonia or some other condition of the lungs.
I have not had night sweats since and I started treatment in 2010 after watch and wait with a white level approaching three hundred triggered by AIHA when I was put on Ibrutinib.
I was have night sweats which pushed me to doctor for diagnoses of CLL. After about 4-5 months night sweats stopped then started back again 3-4 months before treatment. No night sweats after first month of treatment. Blessings.
When my severe night sweats started, I did not realize how much additional liquid was being lost and ended up with bad dehydration. Be aware of this and increase your water intake.
Hi Lou. I don’t know if you are Lucille or if you are Louis. But I am a woman and my primary care prescribed Prozac because it is being used to control hot flashes in menopausal women so it has helped night and day for me with regard to sweats I just do not get them at all anymore
I am just getting over the shingles after a month of dealing with it. The night sweats were part of the problem for about a week or 10 days. I ended up getting a cooling mattress cover and use only a thin cotton quilt to cover with, or some nights only a sheet. All my sheets are cotton. In my case it has really helped a lot. I also covered my heat register with a towel and kept my room really cool. I am in Michigan...Pretty cold hers. .I was diagnosed 5 years ago and would get them occasionally but not this bad. I don't know if this will help ,but you never know.
Six months of being drenched prior to treatment. I slept with fresh bath towels near by and changed sheets almost daily. The sweats left within a week after Obinutuzumab. During Venetoclax I few very mild intermittent night sweats.
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CLL and Night Sweats
Night sweats
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Any one else have issues with night sweats? 
