Please share experience of venetoclax plus obinutuzimab or acalabrutinib mono treatment in an important survey

[Jm954]

Reminder - please complete the survey if you are any of the above treatments. At the moment we have only had a few responses.

By completing this survey you are part of the process that may help patients gain access to these treatments in lots of countries. Your experience as a patient is a vitally important part of this process.

The survey will be open until midnight Pacific Time on Friday, February 28th, 2020 and should only take 10 minutes of your time.

Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL

Acalabrutinib (Calquence) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL

Acalabrutinib (Calquence) monotherapy for first-line treatment of CLL/SLL

Acalabrutinib (Calquence) monotherapy for treatment of relapsed or refractory CLL/SLL

Here is the link, it should take about 10 minutes.

On behalf of all patients, thank you!

surveymonkey.com/r/CLLCAN2020

Jackie

[UK-Sparky]

Have done, eazy todoand results are shared

[Jm954 Administrator in reply to UK-Sparky]

Thank you!

[LovecuresCLL]

I completed survey. Thanks I hope folks get the help they need

[AdrianUK]

I’m just wondering why there’s no comparator group for those of us who had FCR. Would it not be helpful to be able to contrast experiences?

[Jm954 Administrator in reply to AdrianUK]

Because this is a subjective survey of people's experiences with these treatments, not a trial of any sort.

The answers are helpful when completing Health Technology Appraisals and we can say things along the lines of "x% had no side effects at all from xxx". We can also say what were the challenges for patients, so complying with the guidelines for the V ramp up might put some people off and we like to know those things.

Jackie

[Smakwater]

In the mix Jackie,

JM

[budman549-USA]

I completed the survey but frequently added comments that I am still receiving treatment as part of the AbbVie M16-788 study

[Jm954 Administrator in reply to budman549-USA]

Thank you, very grateful 😊

[Jm954 Administrator]

Still time to reply to the survey if you can. It would be appreciated.

Jackie

[Etoile7]

Hi Jackie, this sounds very interesting. when do you think results will be available and how can we access those, even if we have not been able to answer the survey (as not treated yet, for example)?

[Jm954 Administrator in reply to Etoile7]

This is being organised by CLL patient advocates in Canada so we are in their hands but yes, when we get the results, I’m sure we can share them.

Jackie

[SethB34]

Were the results of this survey ever released?

[Jm954 Administrator in reply to SethB34]

It's still ongoing

[SethB34]

Ok thanks.