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CLL Support

22,532 members • 38,709 posts

All posts for September 2019

Test result meaning

Just a question on of my results. The last two land shows a lot of things out of whack. But one is anion gap with a reading of 2 and LL which is critical...

Just a question on of my results. The last two land shows a lot of things out of...

Mamawof25

•5 years ago

6 Replies

Make Blood Cancer Visible in September

CLLSA is one the Patient Groups supporting the Make Blood Cancer Visible campaign again this year and one of our Trustees did a radio interview. This is not...

CLLSA is one the Patient Groups supporting the Make Blood Cancer Visible campaig...

Jm954

Administrator•5 years ago

1 Reply

MRD assessment in CLL

Nice explanation of MRD testing and it's use for guiding treatment. ASCO 2019 | MRD assessment in CLL - Dr Danielle Brander Measurable residual disease is...

Nice explanation of MRD testing and it's use for guiding treatment. ASCO 2019 | ...

Jm954

Administrator•5 years ago

16 Replies

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iwCLL 2019 | Five-year follow up of the UK CLL Forum ibrutinib data

Dr Toby Eyre, MD, Oxford University Hospitals NHS Foundation Trust, Oxford, UK, discusses the UK chronic lymphocytic leukemia (CLL) forum study led by George...

Dr Toby Eyre, MD, Oxford University Hospitals NHS Foundation Trust, Oxford, UK, ...

Jm954

Administrator•5 years ago

6 Replies

Ibrutinib‐associated Pneumocystis jirovecii pneumonia - do we need prophylaxis?

Dr Guilherme Perini's study of PJP and fungal prophylaxis deduced that it is probably not needed in ibrutinib treated patients. Prevalence was 3.4% in...

Dr Guilherme Perini's study of PJP and fungal prophylaxis deduced that it is pr...

Jm954

Administrator•5 years ago

21 Replies

iwCLL Vision and Mission Statement

This would be wonderful and the good news is that we are inching closer and closer with the help of scientists and brilliant doctors, many of whom were at...

This would be wonderful and the good news is that we are inching closer and clos...

Jm954

Administrator•5 years ago

8 Replies

Progression Free Survival (PFS) post Discontinuation of Ibrutinib in E1912 Trial

An update re the E1912 trial reported at iwCLL this year - "patients who stopped ibrutinib for toxicity had a median PFS from the time of stopping ibrutinib...

An update re the E1912 trial reported at iwCLL this year - "patients who stopped...

Jm954

Administrator•5 years ago

26 Replies

CLL Trials Updates from European Haematology Association Meeting 2019

Patrick Thornton, MD, Beaumont Hospital, Dublin, Ireland, tells us about some of the excellent CLL updates presented at the 24th Congress of the European...

Patrick Thornton, MD, Beaumont Hospital, Dublin, Ireland, tells us about some of...

Jm954

Administrator•5 years ago

4 Replies

European Clinical Trial CLL17 update and an interview with Dr Othman Al Sawaf from Cologne, the study lead.

Dr Othman Al Sawaf discussing the challenges for deciding treatment efficacy. This trial is designed to answer those questions....

Dr Othman Al Sawaf discussing the challenges for deciding treatment efficacy. Th...

Jm954

Administrator•5 years ago

2 Replies

CLL FCR update - 3 years on.

Hello all CLL curios. I have just had my latest 6 monthly ‘Watch and Wait’ blood tests and Flair trial assessment 3 years on from commencement of FCR...

Hello all CLL curios. I have just had my latest 6 monthly ‘Watch and Wait’ blood...

Rich316

•5 years ago

18 Replies

iwCLL 2019 updates (via twitter)

It's hard to beat twitter as a news source if you want up-to-date CLL news. Top tweeters at this year's conference: Dr. Toby Eyre:...

It's hard to beat twitter as a news source if you want up-to-date CLL news. Top...

avzuclav

•5 years ago

3 Replies

When the C.L.L. treatment finishes. (4) - Thanks.

Friends, Following my recent September post - I would like to thank all the friends that have taken the time to read my post [14th Sept] and either replied or...

Friends, Following my recent September post - I would like to thank all the fri...

MartyR

•5 years ago

1 Reply

A Conversation with Dr Tam about Zanubrutinib: A Novel BTK Inhibitor

How does zanubrutinib differ from ibrutinib in pharmacokinetics and target occupancy? Zanubrutinib has a more-specific target binding profile than ibrutinib....

How does zanubrutinib differ from ibrutinib in pharmacokinetics and target occup...

Jm954

Administrator•5 years ago

13 Replies

Adding Venetoclax to Obinutuzumab Prolongs Progression-Free Survival in Previously Untreated CLL

Dated 1st September 2019 In a phase III trial of patients with previously untreated CLL and co-existing comorbidities, a fixed-duration regimen...

Dated 1st September 2019 In a phase III trial of patients with previously untrea...

Jm954

Administrator•5 years ago

14 Replies

Using nanopore sequencing to look at the diagnostic CLL genome.

This is a bit sciencie but might be of interest to some and looks promising technology, allowing several things to be tested for at the same time. Nanopore...

This is a bit sciencie but might be of interest to some and looks promising tech...

Jm954

Administrator•5 years ago

3 Replies

Im new here so I have tons of questions

Oncologist or Specialist? WHATS THE DIFFERENCE? Cause im working and my fatigue is getting more and more harder to deal with. I don't want to go into the ER I...

Oncologist or Specialist? WHATS THE DIFFERENCE? Cause im working and my fatigue ...

kollock93

•5 years ago

13 Replies

CLL Advocates Meeting in Edinburgh - Tribute to CLL Canada, Chris Dwyer

Chris was not forgotten by the delegates at the CLL Horizons Meeting in Edinburgh. The last agenda item was a moving tribute to Chris delivered with passion,...

Chris was not forgotten by the delegates at the CLL Horizons Meeting in Edinburg...

Jm954

Administrator•5 years ago

17 Replies

Trying to explain to co workers and friends what im going through but it is failing it seems at times.

How to make friends and co workers understand what you are going through? This has been a journey for me as well.

How to make friends and co workers understand what you are going through? This h...

kollock93

•5 years ago

36 Replies

Extreme Rash With Ibrutinib

I started taking 420 mg of ibrutinib fourteen days ago. The first ten days were a walk in the park. No side effects. But my day twelve I’d started breaking out...

I started taking 420 mg of ibrutinib fourteen days ago. The first ten days were ...

Hidden

•5 years ago

25 Replies

low platelets and venetoclax

I have been on venetoclax for 3 months and only my platelet count is dropping. Has anyone had the same phenomenon? Also my protein(low), albumin (low)and...

I have been on venetoclax for 3 months and only my platelet count is dropping. H...

greygirl

•5 years ago

15 Replies

CLL-.hair dye with FCR

hi...when did any members dye their hair before/ during /after treatment for CLL..I havent and darent as everything more sensitive now for at least 6 months...

hi...when did any members dye their hair before/ during /after treatment for CLL...

Fayeryan1

•5 years ago

21 Replies

14 months on and it’s going great

As part of a Spot Leukaemia month, Leukaemia Care are running some patient stories. I’m pleased to say that mine was published and has also been used on...

As part of a Spot Leukaemia month, Leukaemia Care are running some patient stori...

KAS8

•5 years ago

2 Replies

BBC article

Hi Not come across this before but an interesting article I thought was worth sharing. Cancer treatment broke my heart, but I've survived'...

Hi Not come across this before but an interesting article I thought was worth ...

calvinbebb

•5 years ago

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CLL and Mayo Clinic EGCG Phase I and 2 trials (Pharmaceutical grade Polyphenon-E derived from Green Tea)

I believe some research is in progress at the Mayo Clinic evaluating the effect of EGCG from green tea on CLL progression as it appears to slow down the...

I believe some research is in progress at the Mayo Clinic evaluating the effect ...

Alpha66

•5 years ago

2 Replies

Fasting or intermittent fasting

Does anyone have an opinion on this and early stage cll? I've seen the health benefits in a relative but I read that fasting initially decreases white and then...

Does anyone have an opinion on this and early stage cll? I've seen the health be...

Research123

•5 years ago

17 Replies

Oncoplex Cancer Gene Panel test

I just got the results of 2 new tests back. One is called an Oncoplex Cancer Gene Panel and the results said : “The sample tested is positive for copy loss of...

I just got the results of 2 new tests back. One is called an Oncoplex Cancer Gen...

t2aa

•5 years ago

3 Replies

Indigestion//gerd

Increased even with rx....anyone else??

Stelladoro

•5 years ago

12 Replies

Some answers back from doctor.

Flow cytometry did confirm CLL type cells in blood, FISH studies showed 13q deletion, IGHV status unmutated, and NGS panel didn't show any genetic features...

Flow cytometry did confirm CLL type cells in blood, FISH studies showed 13q dele...

JerrysGirl3

•5 years ago

13 Replies

Understanding Bloodwork Levels

Hello sisters and brothers! I have noticed some bloodwork component posts that show for example, lymphocytes at 16000. We are in Canada and our tests show...

Hello sisters and brothers! I have noticed some bloodwork component posts that...

Shalom33

•5 years ago

2 Replies

Update on CLL vaccine research

Just a quick update. The research is ongoing but still a long way off to having an effective vaccine. Hopefully someday for future and younger victims of CLL....

Just a quick update. The research is ongoing but still a long way off to having ...

jdolinger

•5 years ago

Be the first to reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2019

Test result meaning

Make Blood Cancer Visible in September

MRD assessment in CLL

iwCLL 2019 | Five-year follow up of the UK CLL Forum ibrutinib data

Ibrutinib‐associated Pneumocystis jirovecii pneumonia - do we need prophylaxis?

iwCLL Vision and Mission Statement

Progression Free Survival (PFS) post Discontinuation of Ibrutinib in E1912 Trial

CLL Trials Updates from European Haematology Association Meeting 2019

European Clinical Trial CLL17 update and an interview with Dr Othman Al Sawaf from Cologne, the study lead.

CLL FCR update - 3 years on.

iwCLL 2019 updates (via twitter)

When the C.L.L. treatment finishes. (4) - Thanks.

A Conversation with Dr Tam about Zanubrutinib: A Novel BTK Inhibitor

Adding Venetoclax to Obinutuzumab Prolongs Progression-Free Survival in Previously Untreated CLL

Using nanopore sequencing to look at the diagnostic CLL genome.

Im new here so I have tons of questions

CLL Advocates Meeting in Edinburgh - Tribute to CLL Canada, Chris Dwyer

Trying to explain to co workers and friends what im going through but it is failing it seems at times.

Extreme Rash With Ibrutinib

low platelets and venetoclax

CLL-.hair dye with FCR

14 months on and it’s going great

BBC article

CLL and Mayo Clinic EGCG Phase I and 2 trials (Pharmaceutical grade Polyphenon-E derived from Green Tea)

Fasting or intermittent fasting

Oncoplex Cancer Gene Panel test

Indigestion//gerd

Some answers back from doctor.

Understanding Bloodwork Levels

Update on CLL vaccine research

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