Cold Sores: I was diagnosed in 2010 with CLL and... - CLL Support

CLL Support

22,500 members38,644 posts

Cold Sores

AdaYoung profile image
10 Replies

I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?

Written by
AdaYoung profile image
AdaYoung
To view profiles and participate in discussions please or .
Read more about...
10 Replies
june65 profile image
june65

Hi. I wouldn’t say I have persistent cold sores but most definitely more than I used to. I had just had a couple in quick succession when I went to see my haematologist last week and she prescribed Aciclovir anti-viral tablets.

AdaYoung profile image
AdaYoung in reply to june65

Thank you June , I will do that.

ABP45UK profile image
ABP45UK

I too was plagued by frequent outbreaks of cold sores but a prophylactic dose of antiviral drug Aciclovir 200mg 2 or 3 times a day has kept me totally free of them for almost two years now.

Raglan profile image
Raglan

Hi. I had cold sores along with burning lips and tongue. I found out that I was very low in lysine (an amino acid) along with other amino acids. I now take a protein supplement that’s custom built for me based on my blood profile that I have checked every three months. Taking this has made the difference.

FarmerGirl00 profile image
FarmerGirl00

You should probably be on acyclovir as a precaution for herpes. I also had mouth and nasal sores; B12 shots & IVG helped so now have very little symptoms

AdaYoung profile image
AdaYoung

thank you.

Michael199 profile image
Michael199

I've been plagued with canker sores since college. I was diagnosed with CLL 8 months ago. I have this one mouth ulcer right now that hasn't gone away in over 2 months. I am freaking out over it fearing that with my luck it's cancer. Just came back from an ENT, tomorrow they're gonna be removing it. He can't say if it's cancerous or not but he did bring up that people with CLL tend to get more ulcers and those ulcers tend to stay longer. I've also tried virtually everything to eliminate the mouth ulcer to no avail.

Soukibobo profile image
Soukibobo in reply to Michael199

Have you tried putting salt on it ? Hurts like he'll but over in a couple of seconds and it kills the ulcer. Better than putting up with the pain for weeks/months !

Hectanooga profile image
Hectanooga

I developed canker sores as well as all of the skin on the inside of my mouth peeling off. It was recommended from someone on this site to try oil of oragano so I do and it totally works for me. It’s very potent so you only need a drop on your toothbrush with your paste or you can take it orally in water. It inexpensive and has many natural healing properties. Worth a try!

Soukibobo profile image
Soukibobo

I use Nelson's Nat Mur (Natrum Moriaticum) a Homeopathic remedy available from many pharmacies. As soon as I feel the tingle, take a couple of these tiny pills, dissolve on tongue, then again at intervals and the cold sore doesn't't develop. Much better than any creams !

You may also like...

COLD SORES.

I am having a real run of cold sores. Is there anyone else out there having the same problem? How

CLL and cold sores

year I have experienced repeated bouts of cold sores. Usually every three weeks or so a new one...

Bad head cold, sore throat - must medicate?

antibiotics unnecessarily... this is first head cold I've had in a year or more... I'm W&W.......

Another cold and then a sore throat so what to do?

I have read recent posts re sore throats and advice about seeing DR. But my sore throat has arrived...

Stomach feels bloated and sore

I was diagnosed with CLL back in September. I am in W&W. I had a few instances of unusual...