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CLL Support

22,532 members • 38,709 posts

All posts for August 2017

Mosquito and tick bites.

Because of a mild winter, the ticks and mosquitoes have been really bad where I live. I have gotten numerous bites, and the itching, redness, and irritation...

Because of a mild winter, the ticks and mosquitoes have been really bad where I ...

J-girl

•7 years ago

21 Replies

Continue Venetoclax-200mg-Ramp up to 400mg said effect

The updated for the hard journey of Venetocalx. First, I really appreciate organizer who provides a platform and let people share their valuable experience and...

The updated for the hard journey of Venetocalx. First, I really appreciate organ...

wwd-bill

•7 years ago

7 Replies

Starting FCR

Hi, I'm writing this for my dad he's had CLL 8 years and in the past year he's started developing symptoms (swollen nodes in the neck) his spleen and...

Hi, I'm writing this for my dad he's had CLL 8 years and in the past year he's ...

Chelseaxx

•7 years ago

14 Replies

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CORRECT CLL DIAGNOSIS

I came across below article which says that most of CLL dx are incorrect? I am sure, I am missing something, BUT I want help from experts/experienced in this...

I came across below article which says that most of CLL dx are incorrect? I am s...

vinnet

•7 years ago

7 Replies

A relief!

I was relieved to be told by my Consultant Dermatologist that the small lesion on my cheek was only a Acinitic Keratoses which can be put right with...

I was relieved to be told by my Consultant Dermatologist that the small lesion o...

Saska-Jul31

•7 years ago

1 Reply

Life or death... Or IVIG.

Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL...

Thanks to you lovely people and great support group advice, I have my first IVIG...

Kimsome

•7 years ago

18 Replies

How would you define the term COMPLEX KARYOTYPE in CLL?

The other day this was brought up in a CLL support group that I am involved with. What are the most complex of the Complex KaryoTypes was the question...

The other day this was brought up in a CLL support group that I am involved with...

jettyguy1

•7 years ago

3 Replies

Interview with a CLLSA member on W&W

Andy at Bloodwise will be interviewing Erica live on their Facebook page tomorrow the 23rd between 1 and 2pm BST. Erica has been on W&W for 13 years. Feel...

Andy at Bloodwise will be interviewing Erica live on their Facebook page tomorr...

Myrddin

•7 years ago

1 Reply

Just putting a tentative toe in the on line world!

Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the...

Although I am new to the on line community I was diagnosed as having CLL a bit o...

Patientgill

•7 years ago

10 Replies

New member

Hi, I am new

Patientgill

•7 years ago

6 Replies

Flu vaccine

Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was...

Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to dis...

Kenn123

•7 years ago

4 Replies

B CLPD,group,new entrant.

hi haider imam,jamshedpur,india,final BCLPD,fish shows17pdeletion,dr.sayTP53with17pdeletionBCLPD treatment option is limited,ibrutinib in india costly i canrt...

hi haider imam,jamshedpur,india,final BCLPD,fish shows17pdeletion,dr.sayTP53with...

haiderimam

•7 years ago

18 Replies

Australia's big flu season and some possible reasons. Will the Northern Hemisphere follow with a bad season?

Want to know how flu cases are tracked and the common types determined? Or how each year's flu vaccine is designed? Ian M. Mackay, Adjunct assistant...

Want to know how flu cases are tracked and the common types determined? Or how ...

AussieNeil

Administrator•7 years ago

6 Replies

CLL and SLL

Are CLL and SLL the same. My report lists both.

Wendy328

•7 years ago

5 Replies

nausea returned 4 months post FCR

Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last...

Hi everyone. I am new to this community and so glad to be able to connect with ...

Hidden

•7 years ago

3 Replies

Identical twin replies

Thanks for all of the replies to my question. Seems there are different opinions and small possible risks. My twin is having blood test in 2 weeks. Will keep...

Thanks for all of the replies to my question. Seems there are different opinions...

Fastbike14

•7 years ago

2 Replies

Ibrutinib pain in cll

My dad who is a 56 yrs old had suffered from ibrutinib pain. It was mainly in knee and legs. As we know normal analgesics such as acetaminophen or gabapentin...

My dad who is a 56 yrs old had suffered from ibrutinib pain. It was mainly in kn...

Aliyeh

•7 years ago

13 Replies

Some promising news from iwCLL On Richter's Transformation

Hi, One of the most urgent unmet needs in CLL is Richter's Transformation when CLL turns bad and transforms into usually an aggressive diffuse B cell lymphoma....

Hi, One of the most urgent unmet needs in CLL is Richter's Transformation when C...

bkoffman

CLL CURE Hero•7 years ago

Be the first to reply

Oxford update

Hi all Went to Oxford today Bloods are stable actually gone down from 110 to 90 Alc now 84 Platelets fine so is the Heamaglobin. We gave Bloods went the...

Hi all Went to Oxford today Bloods are stable actually gone down from 110 to 90 ...

TheFlyer

•7 years ago

3 Replies

The $37 billion supplement industry is barely regulated -- and could be dangerous to your health

Using data from 2004 to 2013, the authors of a 2016 study published in the New England Journal of Medicine estimated that 23,005 emergency-room visits a...

Using data from 2004 to 2013, the authors of a 2016 study published in the New E...

AussieNeil

Administrator•7 years ago

2 Replies

Neutrophils staying low

My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low...

My OH has just completed a 4th cycle of FCR - however each cycle has been reduce...

shoppingtrolley

•7 years ago

8 Replies

High level of uric acid

I had a telephone consultation with my GP yesterday following my haematology visit in July which has shown up high levels of uric acid. The figure I was given...

I had a telephone consultation with my GP yesterday following my haematology vis...

Elizabetha

•7 years ago

17 Replies

Poo transplants beyond the yuck factor: what works, what doesn’t and what we still don’t know

A just published study of collated and analysed results from earlier studies found poo transplants are better at treating Clostridium difficile (C-diff) caused...

A just published study of collated and analysed results from earlier studies fou...

AussieNeil

Administrator•7 years ago

1 Reply

The worst possible news

As I indicated last week, I'd been phoned 'by the unit' and asked to attend a meeting with my consultant. Probably the two longest days ensued and I guess you...

As I indicated last week, I'd been phoned 'by the unit' and asked to attend a me...

Hidden

•7 years ago

10 Replies

Prednisone

I've been prescribed prednisone for another chronic condition. I'm not too keen because of the potential side effects one of which appears to be its affect on...

I've been prescribed prednisone for another chronic condition. I'm not too keen ...

Pilch55

•7 years ago

4 Replies

Advice

Hi folks - I've just been diagnosed though I think it's been going awhile - I'm 70 living in the wilds of Brittany and am trying to work out a regime which...

Hi folks - I've just been diagnosed though I think it's been going awhile - I'm ...

John-Searle

•7 years ago

8 Replies

Food poisoning

Hi, I am on WW for 6 years. Yesterday purchased prawns from supermarket and within one hour of eating felt most peculiar. I felt totally fatigued, had a...

Hi, I am on WW for 6 years. Yesterday purchased prawns from supermarket and with...

Hazel33

•7 years ago

11 Replies

The killing power of a sneeze

Here are the numbers: a sneeze leaves your nose at up to 320 kilometres per hour; up to 40,000 virally-loaded droplets are expelled and travel for up to...

Here are the numbers: a sneeze leaves your nose at up to 320 kilometres per hour...

AussieNeil

Administrator•7 years ago

2 Replies

iwCLL 2017: Professor Hillmen on MRD negativity in CLL

One of the benefits of going to conferences, besides hearing about the latest data on CLL, is meeting up with good friends in the CLL world. At the iwCLL...

One of the benefits of going to conferences, besides hearing about the latest da...

bkoffman

CLL CURE Hero•7 years ago

Be the first to reply

How safe are heartburn medications and who should use them?

Many people suffer regularly from heartburn - a burning feeling in the chest caused by stomach acid travelling up the food pipe (oesophagus) after eating....

Many people suffer regularly from heartburn - a burning feeling in the chest cau...

AussieNeil

Administrator•7 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2017

Mosquito and tick bites.

Continue Venetoclax-200mg-Ramp up to 400mg said effect

Starting FCR

CORRECT CLL DIAGNOSIS

A relief!

Life or death... Or IVIG.

How would you define the term COMPLEX KARYOTYPE in CLL?

Interview with a CLLSA member on W&W

Just putting a tentative toe in the on line world!

New member

Flu vaccine

B CLPD,group,new entrant.

Australia's big flu season and some possible reasons. Will the Northern Hemisphere follow with a bad season?

CLL and SLL

nausea returned 4 months post FCR

Identical twin replies

Ibrutinib pain in cll

Some promising news from iwCLL On Richter's Transformation

Oxford update

The $37 billion supplement industry is barely regulated -- and could be dangerous to your health

Neutrophils staying low

High level of uric acid

Poo transplants beyond the yuck factor: what works, what doesn’t and what we still don’t know

The worst possible news

Prednisone

Advice

Food poisoning

The killing power of a sneeze

iwCLL 2017: Professor Hillmen on MRD negativity in CLL

How safe are heartburn medications and who should use them?

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