The worst possible news: As I indicated last... - CLL Support

CLL Support

23,143 members39,750 posts

The worst possible news

10 Replies

As I indicated last week, I'd been phoned 'by the unit' and asked to attend a meeting with my consultant.

Probably the two longest days ensued and I guess you lot deserve to know how bad it was before I drift off into cyberspace forever.

In embarrassment.

Turns out, my middle ear infection had probably caused a white cell acceleration and now the ear infection has sorted itself out and I'm no longer wandering around like a drunk 12 year old version of myself, my cell count has again receded.

I think the last time a Doctor gave me good news was when I was diagnosed with thrush at 17 years old. Until then, I'd convinced myself I'd caught something terminal (from a toilet seat as nothing else was possible) and my willy was about to fall off. I had delayed making an appointment probably about a month too late! I was really in "pass the wire brush" agony.

Got home from the hospital, all the worry left me, and I slept for a solid 20 hours. The white cell count had not, after all, returned to sane levels.

Read more about...
10 Replies

Great post. thanks. be well

cllady01 profile image
cllady01Former Volunteer

Good news. Thanks for the followup. Go, and forever be wise regarding doing the followup for your health issues.

UK-Sparky profile image
UK-Sparky

Imagination and fear can be terrible partners Gwen, glad it was good news, relax and enjoy life!

UK Marc

Bethan49 profile image
Bethan49

Ha! Just love this! I was scared to read your post but then ended up laughing! I think us cllers have a special kind of humour! Oooh the wire brush ... pain and relief! !!!!

Keep well !

Psmithuk profile image
Psmithuk

So pleased! Worry does strange things, as do ear infections. Please don't be embarrassed - life's really too short!

Newdawn profile image
NewdawnAdministrator

Great outcome Gwendog but your title and name fooled me! Couldn't see your picture clearly but it's obvious from your descriptions that you're not a female Gwen!

Fear and anxiety can take us to some very scary places so pleased to hear your fears were allayed and all is well.

Newdawn

Elliot43 profile image
Elliot43

Thank goodness for that Gwendo

Alls well that ends....

Sheila in oz

Beattiem-UK profile image
Beattiem-UK

Such a relief to hear your good news after that title! And a good reminder to not tell myself stories of what might lie ahead - because it might not. Just stick to the here and now and stop worrying. Thank you.

Thanks for all the replies. Sometimes, it's just not time for the worst - bloody relieved as really not looking forward to another 6(ish) series of FCR

Cindy1462 profile image
Cindy1462

Ooh. That frightened me. Glad the news was good news.

Not what you're looking for?

You may also like...

Im new!

Hi to everyone I'm new. What a relief to find this online support at last as I have felt so...

Why, with Chronic Lymphocytic Leukaemia, CLL, White Cell percentages can be dangerously misleading. You may not be neutropenic!

Frightened by falling neutrophils? Worried about being at a greater risk of infection? This is a...

Travel insurance

I've just been refused travel insurance from World First. The questions that throws me out is: Do...

Acalabrutinib

Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up...

Cll and hives all of a sudden.

I was diagnosed with CLL about 2yrs ago. I was already doing a healthy diet so tweaked that even...