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CLL Support

22,532 members • 38,709 posts

All posts for August 2017

Need link to understand WBC morphology 😓

Latest results shown my Hemoglobin has dropped to 9.6 despite supplementing with iron & B12. ALC has peaked at 110 too. Having sore throat now. Breathlessness...

Latest results shown my Hemoglobin has dropped to 9.6 despite supplementing with...

Seok

•7 years ago

9 Replies

Hi all

Just like to say hello to everyone on here,diagnosed with CLL & type 2 diabetes xmas time,was wondering if any other members are in the same boat,just...

Just like to say hello to everyone on here,diagnosed with CLL & type 2 diabetes ...

d3dan

•7 years ago

6 Replies

the worries of W&W

Hi - I am a 66 year old female from Australia. First diagnosed when I had a blood test for something else. I have been on W&W for three years now. At first it...

Hi - I am a 66 year old female from Australia. First diagnosed when I had a bloo...

Coatsee

•7 years ago

8 Replies

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Ibrutinib/Venetoclax and travel insurance

Has anybody in UK tried to get travel insurance while in Ibrutinib and/or Venetoclax? Same question also for anyone who has in a trial? In my most recent...

Has anybody in UK tried to get travel insurance while in Ibrutinib and/or Veneto...

Oleboyredw-uk

•7 years ago

10 Replies

CLL Trials available in UK 2017

The main site has an updated list of CLL trials available in the UK. Thanks to Garry for the list and all his efforts behind the scenes....

The main site has an updated list of CLL trials available in the UK. Thanks to...

Myrddin

•7 years ago

1 Reply

9 month check up post FCR and it seems it was worth the ride!

I don't know about you all, but as I head towards an appointment with the hospital, I become quite nervous and anxious. So last week I was manic in my lead...

I don't know about you all, but as I head towards an appointment with the hospit...

Bethan49

•7 years ago

35 Replies

Compromised Immune System, but lymphocytes down. Do you need a port for Immunogloblin infusion?

Just had my annual visit with the NP at my Oncologists office. I was diagnosed 5 years ago next month at the age of 56 but have had it for about 10. I was...

Just had my annual visit with the NP at my Oncologists office. I was diagnosed 5...

pdmw

•7 years ago

15 Replies

Cll and hives all of a sudden.

I was diagnosed with CLL about 2yrs ago. I was already doing a healthy diet so tweaked that even more. Joined a gym as well which I generally manage twice a...

I was diagnosed with CLL about 2yrs ago. I was already doing a healthy diet so t...

222husky

•7 years ago

31 Replies

CLL - PLL and Ibrutinb

My cll was very difficult to diagnose. I had no idea until i got a change in Diagnosis at Columbia. 3 other hospitals got it wrong including sloan. They all...

My cll was very difficult to diagnose. I had no idea until i got a change in Dia...

Roydeane

•7 years ago

11 Replies

Unusual Blood Count?

I finished a course of R-Benzamustin last December which left me with a good blood count and much reduced nodes. I had a follow up appointment with the...

I finished a course of R-Benzamustin last December which left me with a good blo...

Grembold

•7 years ago

3 Replies

Continue Vetoclax from 20mg to 100mg, Day 5 stopped due to high Lactic Acid

I got lots of helpful information and encouragement here and really appreciate sharing. My lovely hubby, Bill, suffered side-effects from stopping ibruvica...

I got lots of helpful information and encouragement here and really appreciate...

wwd-bill

•7 years ago

21 Replies

ACP-196 (Acalabrutinib) TRIAL - 31st monthly cycle achieved with full remission

Not been here for a while as nothing really to report. Husband is still on the ACP-196 trial and has just come up to his 31st monthly cycle. He had a bone...

Not been here for a while as nothing really to report. Husband is still on the A...

babswade

•7 years ago

11 Replies

3rd cycle FCR done

Hi all! Had a very first and second cycles but just ended first week of third cycle FCR. The hospital part where I got the infusion of Rituxab went fine on...

Hi all! Had a very first and second cycles but just ended first week of third c...

bendintheroad1

•7 years ago

2 Replies

Effects after stopping ibruvica/ibutinib

My doctor stopped it as he felt it wasn't working. Day 6 and have had a headache for 3 day and woke and my white of my eye is blood red. Thoughts?

My doctor stopped it as he felt it wasn't working. Day 6 and have had a headache...

0989098909

•7 years ago

5 Replies

Bad rash after first CLL chemo.

Just started on a course of FCR 26 days ago I came out in a rash all over my body. It started a few days after my chemo. It is unbearable now and consultant...

Just started on a course of FCR 26 days ago I came out in a rash all over my bo...

Rugbyman13

•7 years ago

9 Replies

1 day into a CLL diagnosis of my husband

Hi I came across this organisation whilst researching my husbands diagnosis to enable me to support him and my family in the best way possible. Naturally I...

Hi I came across this organisation whilst researching my husbands diagnosis to e...

Maryandallan

•7 years ago

23 Replies

Diagnosed back in February

Hi all, I was diagnosed with Rai 0 back in February from a random blood test. I actually thought that I might have prostate cancer, so my primary care...

Hi all, I was diagnosed with Rai 0 back in February from a random blood test. ...

mtaffer

•7 years ago

8 Replies

Spot Leukaemia

Signs and Symptoms of Leukaemia http://www.leukaemiacare.org.uk/signs-and-symptoms-of-leukaemia Across leukaemia types as a group the numbers of patients...

Signs and Symptoms of Leukaemia http://www.leukaemiacare.org.uk/signs-and-sympto...

HAIRBEAR_UK

Founder Admin•7 years ago

1 Reply

regarding enlarge spleen and TLC count in CBC report.

today i went to uttar pradesh goverment hospital jhansi for my mother treatment becouse she is suffring from the pain of enlarge spleen. When the doctor made...

today i went to uttar pradesh goverment hospital jhansi for my mother treatment ...

vivek131990

•7 years ago

2 Replies

High Response Rate Seen With CD19 CAR T-Cell Therapy in CLL

Treatment with CD19 chimeric antigen receptor (CAR)-modified T-cell therapy induced a high response rate in patients with high-risk, ibrutinib-refractory...

Treatment with CD19 chimeric antigen receptor (CAR)-modified T-cell therapy indu...

wmay13241

•7 years ago

Be the first to reply

AlC Falls ?

Hi Everybody, My latest blood work shows a fall in my ALC number from 61 to 55 in the month. A slight fall but still happy. Other readings seem stable. My...

Hi Everybody, My latest blood work shows a fall in my ALC number from 61 to 55 ...

Hidden

•7 years ago

3 Replies

Deb Sims on her incredible CLL journey

Hi, After some heavy articles on complex medical topics, this week I have a more upbeat personal interview with my Ozzie friend, Deb Sims about her incredible...

Hi, After some heavy articles on complex medical topics, this week I have a more...

bkoffman

CLL CURE Hero•7 years ago

Be the first to reply

Donor identified

It's been a while since my last update but I'm pleased to say that I have a donor lined up for a stem cell transplant. A young man from Germany. I am to stay...

It's been a while since my last update but I'm pleased to say that I have a dono...

KAS8

•7 years ago

9 Replies

Acidez con Ibrutinub

Hola.! Sigo haciendo preguntas. Algunos sufren de acidez con ibrutinib? A pesar de usar omeprazol de 20mg. Sufro de acidez. No se si podre agregar un...

Hola.! Sigo haciendo preguntas. Algunos sufren de acidez con ibrutinib? A pesar ...

Bixilon

•7 years ago

3 Replies

Venetoclax -> Ibrutinib

I am new here and write on behalf of my father. He is 62 y/o and was diagnosed with CLL 1.5 year ago. He received BR treatment and experienced an early...

I am new here and write on behalf of my father. He is 62 y/o and was diagnosed w...

artkula

•7 years ago

3 Replies

Venetoclax Approved!

Received good news today. the Insurance company approved Venetoclax for the treatment of my unmutated IGHV SLL. This is amazing because I don't have the 17p...

Received good news today. the Insurance company approved Venetoclax for the tre...

ReneeSusan

•7 years ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2017

Need link to understand WBC morphology 😓

Hi all

the worries of W&W

Ibrutinib/Venetoclax and travel insurance

CLL Trials available in UK 2017

9 month check up post FCR and it seems it was worth the ride!

Compromised Immune System, but lymphocytes down. Do you need a port for Immunogloblin infusion?

Cll and hives all of a sudden.

CLL - PLL and Ibrutinb

Unusual Blood Count?

Continue Vetoclax from 20mg to 100mg, Day 5 stopped due to high Lactic Acid

ACP-196 (Acalabrutinib) TRIAL - 31st monthly cycle achieved with full remission

3rd cycle FCR done

Effects after stopping ibruvica/ibutinib

Bad rash after first CLL chemo.

1 day into a CLL diagnosis of my husband

Diagnosed back in February

Spot Leukaemia

regarding enlarge spleen and TLC count in CBC report.

High Response Rate Seen With CD19 CAR T-Cell Therapy in CLL

AlC Falls ?

Deb Sims on her incredible CLL journey

Donor identified

Acidez con Ibrutinub

Venetoclax -> Ibrutinib

Venetoclax Approved!

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