Hello, I was diagnosed back in Jan 2016 and have been on WW since. I'm 11q del, unmutated and complex karyotype, that's called the triple whammy! although my blood counts have been fairly stable over the last year. WBC hovers around 18, ALC around 10, RBC 4.3, PLT around 200, and the others are rather normal.....lot's of swollen nodes everywhere. I had a small walnut sized lump in my hamstring area a year ago that all my doctors said not to worry about, however now it's grown to around 4.9 x 2 cm according to the ultrasound, MRI and x ray I had done. At first they thought it might be Sarcoma, but Dr called me today and said not likely based on the MRI. It did not meet the characteristics of Sarcoma and she was fairly certain it was not. She said it very well could be related to my CLL and wants to do a biopsy. She noted the location seems a little odd for a lymph node as it's located toward my upper thigh kind of between my knee and cheek, on the backside...hamstring area, although it is not imbedded into the muscle. I'm relieved it's most likely not Sarcoma but a little puzzled, could it be a swollen lymph node in my leg....? The Dr said they tend to follow the path which does lead them right to CLL and it's most likely related to my disease. I've never read about anyone with swollen nodes in the leg but perhaps it's out there. I did have a CT scan recently which also showed a 3.4cm node in my abdomen and others fairly swollen as well. I know that being 11q del means my particular flavor of CLL comes with Bulky nodes, so that's probably what it is. My question is.... has anyone out there experienced anything like this....? just curious...of course I will find out soon enough but it's more waiting, more tests and then wait some more for the results, it seems there's never any rush to get the results back to you...it's wait, wait, wait....Ahrg!!!!