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CLL Support

22,532 members • 38,709 posts

All posts for November 2014

Back pain

I was diagnosed with CLL in 2009 and that developed into Richter's Transformation at the end of 2012. After successful treatment (CHOP-R) last year I am back...

I was diagnosed with CLL in 2009 and that developed into Richter's Transformatio...

colmoore1

•9 years ago

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Is Search better? Feedback Please!

I've been asked by Simone Pereira, HU Community Manager, to provide examples of where the site search fails. I tried some searches for information on new...

I've been asked by Simone Pereira, HU Community Manager, to provide examples of ...

AussieNeil

Administrator•9 years ago

3 Replies

Home testing for Flu, Vitamin D and Inflammation on the way

Cue, a San Diego, USA based start-up, is developing an inexpensive diagnostic screening device for home use. Just a drop of human saliva, blood, or nasal...

Cue, a San Diego, USA based start-up, is developing an inexpensive diagnostic sc...

AussieNeil

Administrator•9 years ago

1 Reply

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WHAT NEXT

Hi EVERYONE This is my first post.I am however an avid reader and have been greatly impressed by the quality of the advice offered by contributers.I hope I...

Hi EVERYONE This is my first post.I am however an avid reader and have been grea...

DJANGO

•9 years ago

13 Replies

CLL and Fatty Acids

Hi. My husband has CLL. He has had FCR ending in February and is in (partial) remission. His white cell counts are low n = 1.4 l=0.4 and lymphocytes are stable...

Hi. My husband has CLL. He has had FCR ending in February and is in (partial) re...

Hidden

•9 years ago

5 Replies

H G low - looking for past post - iron, folic acid

H G very low a present. I need to find past post on using iron, folate, vitamin c, D3, b6, b12. Transfusions - yes. Auto Immune problem has been talked about.

H G very low a present. I need to find past post on using iron, folate, vitamin ...

aussiejo

•9 years ago

8 Replies

The side effects of chemotherapy on body

Chemotherapy drugs are powerful enough to kill rapidly growing cancer cells, but they also can harm perfectly healthy cells, causing side effects throughout...

Chemotherapy drugs are powerful enough to kill rapidly growing cancer cells, but...

shazie

•9 years ago

1 Reply

New Video Series: CLL patients and Carers share their own story

10/12/2014 The video series of Patient/carer personal stories continues with more insights from friends and members Jan, Chonette, Andy and Nick. This is a...

10/12/2014 The video series of Patient/carer personal stories continues with mor...

HAIRBEAR_UK

Founder Admin•9 years ago

2 Replies

FLAIR Trial (IR vs FCR) Sign Up

With great relief, I have just signed up to the FLAIR trial: http://www.ukctg.nihr.ac.uk/trialdetails/ISRCTN01844152?view=healthprofessional Baseline testing...

With great relief, I have just signed up to the FLAIR trial: http://www.ukctg.n...

Ernest2

•9 years ago

16 Replies

Fast Chemo (Bendamustine in 10 minutes)

Eagle Pharmaceuticals have just announced the success of a Phase 1 trial of 81 patients, which has shown that a 50ml admixture of Bendamustine HCl delivered...

Eagle Pharmaceuticals have just announced the success of a Phase 1 trial of 81 ...

AussieNeil

Administrator•9 years ago

2 Replies

Changing Treatment Landscape in CLL (Medpage Today)

Another summary of how quickly CLL treatments are changing, soon to be made obsolete by American Society of Hematology (ASH) 2014:...

Another summary of how quickly CLL treatments are changing, soon to be made obso...

AussieNeil

Administrator•9 years ago

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ASCO 2014: Dr. Byrd: What we could only Learn from a CLL Phase 3 Trial about Ibrutinib and Ofatumumab in Relapsed CLL

Friends, I just posted an audio only interview with Dr. Byrd on my blog: http://bkoffman.blogspot.com. It is full of important issues concerning trial design...

Friends, I just posted an audio only interview with Dr. Byrd on my blog: http:/...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

New classification improves risk prediction in chronic leukemia

If chronic lymphocytic leukemia patients with a good or poor prognosis could be identified already at the time of diagnosis, physicians would have better...

If chronic lymphocytic leukemia patients with a good or poor prognosis could be ...

shazie

•9 years ago

4 Replies

Safety and activity of ibrutinib plus rituximab for patients with high-risk chronic lymphocytic leukemia: a single-arm, phase 2 study

I am not sure if you need to pay to view the whole article. This article can be found in the following collections: Oncology (Haematological cancer) Published...

I am not sure if you need to pay to view the whole article. This article can be...

shazie

•9 years ago

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Splenomegaly in CLL patients: How far can you go ?

Wondering if anyone could provide a good description of the causes of Splenomegaly specifically in CLL patients i.e. what the spleen is doing and why it...

Wondering if anyone could provide a good description of the causes of Splenomeg...

Ernest2

•9 years ago

16 Replies

Treatment with immunoglobulin

I listened to Inside Health, a documentary series on BBC Radio 4, a couple of weeks ago. In it it described a patient who had had constant recurring infections...

I listened to Inside Health, a documentary series on BBC Radio 4, a couple of we...

jovialsteve

•9 years ago

11 Replies

Blood work

Two years for now -it shows- a) Albumin- 41.9 g/L b)Alpha -1 Globulin 2.7 g/L c)Alpha -2 Globulin 7.7 g/L d)Beta 1 Globulin 4.5 g/L e)Beta 2 Globulin 5.2 g/L...

Two years for now -it shows- a) Albumin- 41.9 g/L b)Alpha -1 Globulin 2.7 g/L c)...

KKA2014

•9 years ago

6 Replies

Chemotherapy and placebos to control nausea

"It’s unthinkable to give a placebo to someone to treat their cancer, but could we use one to treat chemotherapy’s well-known side effects? Unfortunately,...

"It’s unthinkable to give a placebo to someone to treat their cancer, but could ...

AussieNeil

Administrator•9 years ago

8 Replies

ASCO 2014: Dr. Farooqui on Trials at the NIH, ABT-199, and Issues of Long Term Oral Therapies in Chronic Lymphocytic Leukemia (CLL)

Friends, Forgive me for my lack of posting. I have been living out of a suitcase for more than a month now. Please take a look at my latest post, an interview...

Friends, Forgive me for my lack of posting. I have been living out of a suitcas...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

Fast-spreading killers: how Ebola compares with other diseases

How do Bird flu, Bubonic plague, Ebola, HIV/AIDS, Influenza and SARS compare? Mick Roberts, Professor in Mathematical Biology at Massey University, New...

How do Bird flu, Bubonic plague, Ebola, HIV/AIDS, Influenza and SARS compare? ...

AussieNeil

Administrator•9 years ago

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After a CLL cure, how do we restore our immune system?

As we are well aware, CLL is a cancer of the immune system. Current treatments don't provide a permanent cure and often worsen immune suppression, which is...

As we are well aware, CLL is a cancer of the immune system. Current treatments ...

AussieNeil

Administrator•9 years ago

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Explainer: evergreening and how big pharma keeps drug prices high

Companies which survive on their intellectual property, obviously should do what they legally can to maximise the return to their shareholders and generate...

Companies which survive on their intellectual property, obviously should do what...

AussieNeil

Administrator•9 years ago

2 Replies

FLAIR: Front Line Assessment of Ibrutinib + Rituximab ("CLL10" Trial of IR vs FCR)

Just been to meet the treatment nurse, and collect the paperwork to apply for the FLAIR (CLL10) trial, which I’m told is now open. Hard to get my head around...

Just been to meet the treatment nurse, and collect the paperwork to apply for th...

Ernest2

•9 years ago

6 Replies

New video - When clinical trials are discussed with patients as an option for CLL treatment

Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a...

Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospita...

HAIRBEAR_UK

Founder Admin•9 years ago

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How widespread is the flu where you live RIGHT NOW?

For those of us heading into winter, we are also heading into another flu season. With vaccinations and CLL, whether or not to vaccinate is based on whether...

For those of us heading into winter, we are also heading into another flu season...

AussieNeil

Administrator•9 years ago

4 Replies

Finding content on HealthUnlocked

There are now close to 2,400 posts and questions on our HU CLLSupport site. We now have almost 18,000 posts, questions and replies, plus we adding new content...

There are now close to 2,400 posts and questions on our HU CLLSupport site. We ...

AussieNeil

Administrator•9 years ago

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What You Should Know About Anxiety Disorders (Infographic)

Anxiety is a normal part of the human experience, but sometimes it spirals out of control, leading to devastating effects....

Anxiety is a normal part of the human experience, but sometimes it spirals out o...

shazie

•9 years ago

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ASCO Updates Template for Survivorship Care Plans

The American Society of Clinical Oncology (ASCO) has issued a new online template to assist oncologists with creating survivorship care plans (SCP) for their...

The American Society of Clinical Oncology (ASCO) has issued a new online templat...

shazie

•9 years ago

3 Replies

What a coincidence

I have just been diagnosed with CLL, I am at a loss to understand this as my husband has had the condition for about 9 years. Has anyone else had this...

I have just been diagnosed with CLL, I am at a loss to understand this as my hus...

june65

•9 years ago

11 Replies

IP6+inositol for cll trisomy 12

Hello everyone One md recomended me to use medical suplement IP6+inositol. I am trisomy 12 muted IGHV, also have infections and viruses often. Law on...

Hello everyone One md recomended me to use medical suplement IP6+inositol. I am...

vlada

•9 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2014

Back pain

Is Search better? Feedback Please!

Home testing for Flu, Vitamin D and Inflammation on the way

WHAT NEXT

CLL and Fatty Acids

H G low - looking for past post - iron, folic acid

The side effects of chemotherapy on body

New Video Series: CLL patients and Carers share their own story

FLAIR Trial (IR vs FCR) Sign Up

Fast Chemo (Bendamustine in 10 minutes)

Changing Treatment Landscape in CLL (Medpage Today)

ASCO 2014: Dr. Byrd: What we could only Learn from a CLL Phase 3 Trial about Ibrutinib and Ofatumumab in Relapsed CLL

New classification improves risk prediction in chronic leukemia

Safety and activity of ibrutinib plus rituximab for patients with high-risk chronic lymphocytic leukemia: a single-arm, phase 2 study

Splenomegaly in CLL patients: How far can you go ?

Treatment with immunoglobulin

Blood work

Chemotherapy and placebos to control nausea

ASCO 2014: Dr. Farooqui on Trials at the NIH, ABT-199, and Issues of Long Term Oral Therapies in Chronic Lymphocytic Leukemia (CLL)

Fast-spreading killers: how Ebola compares with other diseases

After a CLL cure, how do we restore our immune system?

Explainer: evergreening and how big pharma keeps drug prices high

FLAIR: Front Line Assessment of Ibrutinib + Rituximab ("CLL10" Trial of IR vs FCR)

New video - When clinical trials are discussed with patients as an option for CLL treatment

How widespread is the flu where you live RIGHT NOW?

Finding content on HealthUnlocked

What You Should Know About Anxiety Disorders (Infographic)

ASCO Updates Template for Survivorship Care Plans

What a coincidence

IP6+inositol for cll trisomy 12

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