Just been to meet the treatment nurse, and collect the paperwork to apply for the FLAIR (CLL10) trial, which I’m told is now open.
Hard to get my head around that 4 years of Watch and Wait may be coming to a close.
My ALC was about 227 at the start of this month and yet I feel as fit as any time in the last few years (night time leg cramps etc. aside).
People that know me are probably confused by how well I look at the end of a great summer, and I guess many that don’t ask, wrongly assume that I’m now already on treatment.
Starting treatment in my case is driven by splenomegaly. There I’m probably lucky to have a very long back and short arms and legs, making plenty of room for the spleen.
Now I’m really writing to say thank you for all your posts, and apologies for not writing much in the last few months.
I keep looking around and seeing jobs that need doing, and thinking I might not be able to do that in a few weeks/months’ time, so best get on with it now.
It does say “get fit for treatment” on the tin.