Posts - CLL Support | HealthUnlocked

can anybody comment on how long they suffered from fatigue whilst on Ibrutinib?? my husband started this on September 15th developed shingles and it was...

•10 years ago

8 Replies

Ibrutinib and fatigue

can anybody comment on how long they suffered from fatigue whilst on Ibrutinib?...

My medical team are checking this, however I wondered if anyone here has already been through this? I had a discussion with the nurse at my local GP yesteday...

•10 years ago

23 Replies

CLL and Hepatitis B vaccine

My medical team are checking this, however I wondered if anyone here has already...

Oleboyredw-uk

•10 years ago

7 Replies

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Does exercise reduce depression or depression reduce exercise?

This site has regular reminders that exercise can help alleviate CLL related fatigue symptoms. Exercise is also thought to help alleviate mild depression, but...

This site has regular reminders that exercise can help alleviate CLL related fat...

Announcing a new Care Partner Center! Patients need care, support, service, and advocacy....and so do the Care Partners who care for them. This is for you!...

Administrator•10 years ago

5 Replies

Care Partners need care, too

Announcing a new Care Partner Center! Patients need care, support, service, and ...

mcints2

•10 years ago

hi I am new and a little in shock, diagnosed 2 weeks ago, after having a routine blood test back in May the gp called me back to repeat it as my white blood...

New

hi I am new and a little in shock, diagnosed 2 weeks ago, after having a routine...

9876

•10 years ago

16 Replies

Expert discussions about Lymphoma that relate to CLL/SLL

Dear friends: My group, PatientPower, just published about 10 new videos with experts on lymphoma. The doctors also discuss the crossover betweenCLL and...

Dear friends: My group, PatientPower, just published about 10 new videos with ex...

•10 years ago

Here's an update from HU's Community Manager Simone Pereira, on HU's progress towards fixing a few outstanding bugs: "1. On the “hidden replies” issue,...

HU Update on log in, hidden reply and missing message bugs

Here's an update from HU's Community Manager Simone Pereira, on HU's progress to...

Administrator•10 years ago

My son's friend showed me this web site over weekend - all from UK's Daily Mail (unfortunately a v popular tabloid) over the years - have a laugh on:...

Light-hearted look at Cancer Risks

My son's friend showed me this web site over weekend - all from UK's Daily Mail ...

Quarry

•10 years ago

2 Replies

Did anyone see this

http://www.dailymail.co.uk/wires/pa/article-2778952/Cancer-drug-ruling-disappointing.html Hi all I might be a little behind the times on this. In 2013 Andy...

http://www.dailymail.co.uk/wires/pa/article-2778952/Cancer-drug-ruling-disappoin...

Hidden

•10 years ago

9 Replies

Results from the quality of life survey among CLLSA members and on-line community.

Last year many of you participated in a survey that was conducted by CLLSA to explore and understand quality of life issues with a negative impact on daily...

Last year many of you participated in a survey that was conducted by CLLSA to e...

HAIRBEAR_UK

Founder Admin•10 years ago

My new blog from the US perspective. http://www.patientpower.info/blog/patient-power/2014/10/10/my-perspective-on-the-high-cost-of-cancer-drugs/ Let me know...

The High Cost of Cancer Drugs

My new blog from the US perspective. http://www.patientpower.info/blog/patient-p...

•10 years ago

Brett Montgomery, Associate Professor in General Practice at University of Western Australia explains why:...

Why one doctor doesn’t see drug reps – a GP’s take on Big Pharma spruiking

Brett Montgomery, Associate Professor in General Practice at University of Weste...

Administrator•10 years ago

Hey, O Fonts Of All Wisdom: I wonder if anyone can help. My consultant has advised me to keep a Health Diary, tracking my tiredness, nausea and spleen pain...

Is there a "Health Diary" app?

Hey, O Fonts Of All Wisdom: I wonder if anyone can help. My consultant has advis...

DMF_online

•10 years ago

5 Replies

I don't mean to needle you...but

When was the last time today you washed your hands with soap and hot water? Once an hour... might be a good idea with CLL... ~chris

When was the last time today you washed your hands with soap and hot water? Onc...

Cllcanada

Why hospitals need more generalist doctors and specialist nurses

For many of us, CLL is not the only chronic health problem we are living with. This is a recognised issue in CLL treatment, with papers covering the...

For many of us, CLL is not the only chronic health problem we are living with. ...

How can we trust that drugs recommended by our doctors are what's indeed best for us? While being put onto a Watch and Wait 'treatment plan' can be stressful...

Administrator•10 years ago

6 Replies

What kind of research can we trust?

How can we trust that drugs recommended by our doctors are what's indeed best fo...

Administrator•10 years ago

One of my favorite people in the world is Susan Leclair PhD, who has, for years, demystified lab results for us patients. Now we are producing an ongoing video...

Lab Results Explained

One of my favorite people in the world is Susan Leclair PhD, who has, for years,...

•10 years ago

Margaret Brown, Social Scientist and Adjunct Research Fellow at the Hawke Research Institute at University of South Australia explains what's involved in...

It’s your choice: how to plan for a better death

Margaret Brown, Social Scientist and Adjunct Research Fellow at the Hawke Resear...

As some of you will know, because you have kindly supported and responded to me and my queries........ more............. my husband has now overcome...

Administrator•10 years ago

3 Replies

wobbily moments??

As some of you will know, because you have kindly supported and responded to me ...

Dr Jeff Sharman has just posted a blog that will be of interest to anyone wishing to know more of the history of cancer treatment breakthroughs for low grade...

•10 years ago

5 Replies

Dr Sharman on Immunotherapy for Indolent (low grade) Lymphoma - includes SLL!

Dr Jeff Sharman has just posted a blog that will be of interest to anyone wishin...

Administrator•10 years ago

Here's a refreshingly honest and clearly written article about the common errors made interpreting research and which we as patients need to be on guard...

The 10 stuff-ups we all make when interpreting research

Here's a refreshingly honest and clearly written article about the common errors...

Administrator•10 years ago

[Unauthorized recruitment post promising money has been removed by ADMIN 15:27 BST] Admin: Please do not contact SammieL, who just joined today, until...

Edited post

[Unauthorized recruitment post promising money has been removed by ADMIN 15:27 ...

Hidden

•10 years ago

http://www.patientpower.info/blog/patient-power/2014/10/03/were-the-beatles-wrong-about-when-i-am-sixty-four/

New Blog about Growing Older and Still Ttrrying to Help

http://www.patientpower.info/blog/patient-power/2014/10/03/were-the-beatles-wron...

•10 years ago

Been on imbruvica 4 months....hemoglobin is low....not making it.....was put on epo's. ....anybody on epo's and results. ...Thanks

Epo's

Been on imbruvica 4 months....hemoglobin is low....not making it.....was put on ...

shvantz

•10 years ago

Has anyone had advice about the wisdom of having the UK annual flu jab for the fairly elderly with CLL? My research nurse did not know the answer; would be v....

Winter flu jab

Has anyone had advice about the wisdom of having the UK annual flu jab for the f...

johnpollard37

•10 years ago

10 Replies

Ibrutinib..........

Hi my husband has been on Ibrutinib for just 10 days, he developed shingles (just a coincidence) but his wbc shot up from 80 to 120 in ten days, he has been...

Hi my husband has been on Ibrutinib for just 10 days, he developed shingles (j...

Here's a link to the latest blog from my wife, Esther, who has supported me with CLL since 1996 and myelofibrosis since 2011:...

•10 years ago

12 Replies

More from the perspective of a caregiver

Here's a link to the latest blog from my wife, Esther, who has supported me with...

•10 years ago