I might be a little behind the times on this.
In 2013 Andy and I cycled London to Paris raising funds for Luekaemia and Lymphoma research as we both have Cll.
We raIse money to fund research into luekaemia and Lymphoma. New drugs appears that can benefit people and NICE are not very nice and do not approve it.
So what do we do about it ?
Me and Andy have had a chat and figure we should make some kind of protest, We have posted on the LLR website looking for ideas but mine are along these lines I would appreciate input into this.
We are thinking along the lines of organising a protest Cycle ride meeting at a pre arranged point and Cycling through London around Trafalgar Square down Whitehall past our masters residence on to the offices at NICE handing in a petition
When we arrange this can we count on our brother's and sister's from this site.
All I know is if we do nothing, nothing will change.