Posts - CLL Support | HealthUnlocked

Administrator•10 years ago

Having had a CT scan and bone marrow biopsy after my 4th cycle of chemo i went to hospital yesterday for my 5th session & my test results. Imagine how stunned...

CLL w/newly diagnosed lung cancer with mets to bone. Anybody familiar?

LissaTR

•10 years ago

5 Replies

More good news

Having had a CT scan and bone marrow biopsy after my 4th cycle of chemo i went t...

grizzlebear

•10 years ago

17 Replies

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ASH 2013: Dr. John Byrd Discusses ONO-4059 and IPI-145 for the Treatment of CLL

Hi friends, New drugs in the pipeline. Some will make it to clinical use and some won't. We need as many options as possible. No single drug is a home run...

Hi friends, New drugs in the pipeline. Some will make it to clinical use and so...

bkoffman

CLL CURE Hero•10 years ago

Given listeria causes approximately 1,600 illnesses and 260 deaths in the USA annually, news that "researchers at the University of Southampton are trialling a...

Hi with a recent Lymphocyte count of 6 million is that within the normal range or just slightly elevated. Thanks David

DSMITCH

•10 years ago

9 Replies

New University of Southampton developed sensor to detect food-borne bacteria on site

Given listeria causes approximately 1,600 illnesses and 260 deaths in the USA an...

Administrator•10 years ago

One of the prescribed dosages of Imbruvica for one patient with CLL is 140mg, 3 capsules, once per day. Has anyone with CLL experienced taking less than that...

Less than the prescribed dosage of Ibrutinib ( Imbruvica) ?

One of the prescribed dosages of Imbruvica for one patient with CLL is 140mg, 3 ...

Soflajoe

•10 years ago

I'm up to the full dosage with no ill effects . I am told my numbers are looking good. Any body else in the study here? Brian

ABT199 , I'm in the clinical trial, any others here?

I'm up to the full dosage with no ill effects . I am told my numbers are looki...

Brian_nwIL

•10 years ago

Some of you will be at there CLLSA event in Cambridge, UK this coming weekend. Please say hello to me in person. I am excited about coming and partnering with...

Excited to see some of you in Cambridge

Some of you will be at there CLLSA event in Cambridge, UK this coming weekend. P...

andrewschorr

•10 years ago

11 Replies

Use of antibiotics in agriculture creating fertile ground for antibiotic resistance

Here's a rather disconcerting interview from Australia's ABC Radio program 'The Science Show' that examines the risks we are taking world wide by continuing to...

Here's a rather disconcerting interview from Australia's ABC Radio program 'The ...

Here's another EHA abstract on the under-recognized issue of late-onset neutropenia as a result of FCR. I thought that this might be interesting to those of us...

Administrator•10 years ago

4 Replies

LATE ONSET NEUTROPENIA MAY BE A COMPLICATION OF FCR (or rituximab, obinutuzumab or other anti-CD20 monoclonal antibody infusions - Admin)

Here's another EHA abstract on the under-recognized issue of late-onset neutrope...

zevkalman

•10 years ago

A number of abstracts are now available from the EHA meeting last week. One of the papers that caught my eye was an article on Richter's Transformation. The...

RICHTER'S TRANSFORMATION IN PATIENTS WITH CLL: ANALYSIS OF BIOLOGICAL AND CLINICAL RISK FACTORS AND OUTCOMES

A number of abstracts are now available from the EHA meeting last week. One of ...

zevkalman

•10 years ago

10 Replies

I have just started on a six month programme of immunoglobulin infusions as my IgL is 1. My target is 5. I had a severe reaction to the

first infusion but, thanks to preparatory drugs, the second attempt a few days later was 100% successful. The infusion took over seven hours. I am already...

first infusion but, thanks to preparatory drugs, the second attempt a few days l...

mitzi2

•10 years ago

During my visit to the Hospital yesterday I discovered an A4 poster for CLLSA. It was black and white and almost invisible on the cluttered board. I intend to...

Promoting CLLSA on a Noticeboard at my local hospital

During my visit to the Hospital yesterday I discovered an A4 poster for CLLSA. I...

Bribin

•10 years ago

19 Replies

Here's my experience of Day 1 of my 4th FCR Treatment. Think W&W is challenging? Let me tell you the time I spent Waiting.....

Thursday - June 12, 2014. FCR No.4 -Treatment Day 1. NHS - Belfast City Hospital 10:20 Arrive on time, Greeted, Registered and issued with my personal...

Thursday - June 12, 2014. FCR No.4 -Treatment Day 1. NHS - Belfast City Hospital...

Bribin

•10 years ago

9 Replies

My husband is on Arzerra (Ofatumumab) for CLL and he has had 2 treatments. Any suggestions on lethargy and weakness as side effects?

judithpetersen

•10 years ago

In my latest blog post at http://bkoffman.blogspot.com, Dr. Byrd discusses a promising drug that could help some of the toughest CLL patients that will...

Three day fasting - kickstarts the immune system?

DMF_online

•10 years ago

15 Replies

ASH 2013: Dr. Byrd Discusses Dinaciclib and the Need for More New Drugs to Treat CLL

In my latest blog post at http://bkoffman.blogspot.com, Dr. Byrd discusses a pr...

bkoffman

CLL CURE Hero•10 years ago

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Ibrutinin

My husband has just been told he is being proposed for treatment with this new wonder drug. He fits the criteria, over 65 , very low immune system, frequent...

My husband has just been told he is being proposed for treatment with this new w...

lartington

•10 years ago

16 Replies

Bone Marrow: What does 'moderate small, mature lymphoid infiltrate' mean...?

Dx 2 weeks ago: B Cell Type CLL/SLL. I've had a bone marrow biopsy and CT scan. Widespread swollen lymph nodes but no 'suspect' ones, NO ZAP70 nor CD38 in...

Dx 2 weeks ago: B Cell Type CLL/SLL. I've had a bone marrow biopsy and CT scan....

peas50

•10 years ago

5 Replies

New to the group and would greatly appreciated advise. Husband recently diagnosed with SLL and cold agglutinin.

Need advise, doctors want to start treatment with chemo (BR) for six months the cold anggulition seems to more of he issue. Red blood count changes from 10.3...

Need advise, doctors want to start treatment with chemo (BR) for six months the ...

Saratoga

•10 years ago

6 Replies

Low platelet count. How long before this recovers ?

I started my first course of FC(without R for the first course) six weeks ago. WBC down from 139.3 to 14.4 which seems a good start. However, my platelet...

I started my first course of FC(without R for the first course) six weeks ago. ...

Haileybury

•10 years ago

GAZYVA, a new anti-CD20 monoclonal antibody in combination with Chlorambucil, is now Therapeutic Goods Administration (TGA) approved for the treatment of...

Australians - here's your opportunity to support the listing of GAZYVA (Obinutuzimab) on the PBS - Deadline is Wed 11th June!

GAZYVA, a new anti-CD20 monoclonal antibody in combination with Chlorambucil, is...

Mechanics of Ibrutinib induced CLL cell death...

Administrator•10 years ago

3 Replies

A couple of recent Ibrutinib related articles for the technically inclined

Hidden

•10 years ago

Dr Sharman has just shared some of his slides from his presentation to the American Society of Clinical Oncology on Management of CLL in Elderly/Frail patients...

Dr Sharman on Management of CLL in Elderly

Dr Sharman has just shared some of his slides from his presentation to the Ameri...

Under what circumstances might a cll patient be given ibrutinib?? indeed is it licensed in the U.K. yet??

Administrator•10 years ago

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Ibrutinib

Under what circumstances might a cll patient be given ibrutinib?? indeed is it ...

lartington

•10 years ago

5 Replies

Imbruvica (Ibrutinib) - Day 1

Took my 3 capsules at 8 PM yesterday. Maybe I should have waited to start in the morning as I had trouble getting to sleep. Not from any particular symptom,...

Took my 3 capsules at 8 PM yesterday. Maybe I should have waited to start in th...

Ragsgolf

•10 years ago

The situation in which carers find themselves in Australia will be in common with other countries with ageing populations. Australia's new federal government...

Do governments give enough priority to caring for carers?

The situation in which carers find themselves in Australia will be in common wit...

Administrator•10 years ago

Notch1 mutations were recently shown to predict increased risk of chronic lymphocytic leukemia transformation to Richter syndrome:...

Attacking the Notch1 receptor with OMP-52M51--a first-in-class targeting antibody

Notch1 mutations were recently shown to predict increased risk of chronic lympho...

zevkalman

•10 years ago

There is no doubt that well known people that let the public know that they have a rare condition can do much to educate the wider public about these little...

Should public figures with CLL declare that they have it? Clive James has no problem doing so

There is no doubt that well known people that let the public know that they have...

Administrator•10 years ago