There is no doubt that well known people that let the public know that they have a rare condition can do much to educate the wider public about these little known conditions. Doing so can of course have an adverse impact on their career, so we should respect those that wish to keep their condition private while supporting those that are brave enough to share their diagnosis in order to improve support for others that share that condition.
Many will be aware that Clive James, the well known expatriate Australian who made the UK his home, has been open about his CLL and COPD diagnosis.
It is interesting to compare this article from two years ago:
with this recent one: