During my visit to the Hospital yesterday I discovered an A4 poster for CLLSA. It was black and white and almost invisible on the cluttered board. I intend to replace it on my next visit. I am very keen to have your comments. I have broad shoulders so please be as brutal as you feel necessary.
John
Hi John ,
Thanks for your initiative, this definitely stands out in the crowd!
We are producing new banners and artwork for the new community platform launch, new CLLSA website build underway and media These will be first used at the Cambridge CLL weekend.. With so much change under way we welcome discussing this with you and ideas for poster production?? can you PM me
I do like the idea of something that can also be downloaded and given to the administrator who handles literature and posters for their hematology clinic to pin up. Also for issue to GP practice managers for GP notice boards too.
are you joining us at Cambridge next Saturday?
Many thanks
Nick
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Hi Nick,
I was at the Cambridge Conference yesterday with my daughter. Just going on the name - are you the tall guy who managed the proceedings on stage etc? Would like to have met you. It was an excellent day and most encouraging. Dr. George Follows is a real star isn't he?
I haven't posted for a long time, I am still on watch and wait, two years now.
Kavidacat
Hi Kavidakat great to read your post and that you are still W&W
Thank you for joining us in Cambridge and letting us know you enjoyed the event. Yes wasn't Dr Follows great, We are reallly looking forward to sharing on=line speakers talks with everyone .
Yep the tall guy was me, sorry I did not realise until the end of the day that I wasn't wearing my lanyard. sorry we missed each other.
Thanks for your post
Nick
This is a great idea.
I used to subscribe to the British Tinnitus Association magazine, and it seemed only right to recycle it whenever I visited my local health center or dentist by asking at reception if I could leave a magazine or two in the waiting areas for others to read who may be affected by Tinnitus.
Any targeting of information on CLL to those who may be needing/looking for information on their CLL, would be inhanced, as we will be using and visiting the same health/haematology departments.
I like your (initial ?) blueprint John, If you were attending a medical center and this was on a notice board in/around a waiting room, your layout hits the mark of catching the eye and drawing it in to read the message. ( I would notice it ... even with my ' blind man's spec's on ... )
..... Medical staff may also see it as a useful tool.
Suggestion ... " This is where like minded sufferers ( And their Carers ) share their CLL journey ......
" We are producing new banners and artwork for the new community platform launch "
.... in the digital world maybe a Mobile phone bar code could be included in any new artwork ... all the relevant info could be obtained in an instant, and passed around electronically .....
A Bar Code makes obvious sense and are dead easy to produce .... ( Quote from son of ygtgo )
I just wish they'd been something, anything to signpost me to support and like minded people when I was diagnosed. I can recall reading a poster for a group supporting people with acute leukaemia on the day I was dx and I specifically asked the Consultant for support networks which he was unable to give me.
So I applaud any attempt to promote a support site and would go further by saying any person newly diagnosed with CLL should receive a pack with all relevant links and contacts contained within. I received one when I was dx with skin cancer and it was reassuring and very informative. In relation to CLL, I didn't receive a single thing!
Well done John for taking the initiative and I hope it can be developed and endorsed for use by the CLLSA.
Newdawn
I received a very helpful pack with lots of information from CLLSA when I joined them, and it was from their website I found this one.
I agree that the poster is very good, and a good idea. I also agree that it needs slimming down a bit, although I wouldn't lose any info about fatigue.
I have been on W&W for many years, and apart from enlarged lymph glands don't have a lot of problems. However, it is only since reading this site that I have realized that fatigue is actually part of the illness, and not just me being lazy or getting old.|I couldn't understand how I felt as though I was anaemic when my hb was fine. So thanks very much for that, and good luck with the 'new banners and artwork'
Chris in Wales uk
Great idea John,
I'd like to make two suggestions that might be useful (or might not be).
1: it appears to be landscape looking at it on my ipad. I think, in general noticeboards tend to be populated with portrait style notices. Going landscape risks part of it being buried, so a portrait version vould be a good option.
2: It feels (to me) a bit busy, that makes me think some might glance at it and pass it by. Perhaps you could take a little off it wihout losing the message? Often less is more.
I've looked at it for a while before responding to try to halp with some suggestions but currently stuck for ideas, best I've come up with is dropping the number of questions on the right from six to four or five and replacing "its more than likely" with "often" "frequently" or similar.
I like your use of colour three is plenty - I hate notices where people seem to use colours because they can.
Rob
Like this idea very much - eye-catching, very practical and potentially very helpful whether for newbies or old hands.
Agree that portrait is likely to work better or a crowded noticeboard.
Would suggest that the question best dropped is the one about fatigue. It doesn't affect everyone, like some on watch and wait, and there's information available when needed in the site content. Newly diagnosed especially already have enough of a mountain to face without expecting that too.
When it's ready is there a way we could all get the result to distribute where we are being treated or seeing medical professionals?
We can work collaboratively to get an agreed deisgn out for CLLSA endorsement to be made available for downloads, or in hard copy on request. There are some great suggestions in the thread of John's already and CLLSA also have designs and image ready for launch.
Hi this is about the only place that I can "talk" to people who just get it. So anything that can help others in the same boat has to be for the good.
An initiative empowering members to update their local clinic notice boards will have a great reach and bring more to the association support and on-line facilities. At Cambridge we are commencing an appeal that will reach out to all members to become involved in aiding us meet the increasing needs of a growing charity and help us reach those isolated by CLL,
This is a great example how people can do a little to help a lot
Hi liked the poster and colour. Maybe a bit busy but it's stating what is needed. Please don't drop the fatigue question as it's my major problem which is very severe at times
Marian Morgan
As soon as a final design is authorised for printing or downloading, I’m happy to pin them up at hospitals in my area..
Dick
I have been reflecting on this subject during a walk with Thor this afternon as we are working on media production at this moment. ,
The current CLLSA colour poster and trifold leaflets available for you to provide your local clinic, does not include details of the on-line community as it was produced just over a year ago when we were launching the on-line community here. However they do outline support provided and do direct people to the association and website and it's feeds to our on- community here...
CLLSA will forward these if available for you to circulate short term. We have been running down the stock as we are in the process of updating content. I know information leaflets are available, but not sure if the posters are in stock.
The current colour poster does a good job, but does now need updating, John your post is very timely..
it makes sense that an up- to - date version should be made available as a print quality download. As I am personally working on updating our images and media I look forward to working with members on this and this thread is already producing great information towards this.
We are focusing this week on delivering the Cambridge conference for next weekend and initiatives to extend resources including the educational video material the conference will provide for the new website. Media design and message are all part of this.
We should be able to publish these new images after Cambridge, we will make these available here in the community first as the community banner will be the first image in place with the upgrade coming in the next few weeks. I think then would be a good time to continue to work together on the CLL support association poster upgrade, if that is OK with all
Please keep the ideas coming
I hope this is helpful.
Nick
Hi John
We would like to work with members to extend resources and incorporate your ideas and thoughts with those of other members into our updated media.
The images you are using will soon require adjustment as CLLSA deliver new media in projects that are underway Much time and investment is involved in these projects. CLLSA does not endorse your use of our logos or images yet, but hope to work with you to produce a CLLSA endorsed poster soon..
I hope this discussion will continue and ideas keep coming in his thread. CLLSA have to focus on delivering a few other CLLSA projects with few available resources, these will influence other media design.
The two alternative posters you have just created have been deleted. this will keep this discussion flowing in one thread. Please can you forward us your ideas.
CLLSA are undergoing evaluation of the recent membership QoL survey replies. this will enable us to determine key challenges experienced by members and will aid with discussion about inclusion of challenges on a new poster.
many thanks
nick
Hi Nick,
I do get get carried away at times - sorry! I'm pleased the post produced some "food for thought". I will delay displaying my poster and await (eagerly) the Associations poster release.
It's only by promotion that the Association can reach out to the worried, the fearful and the desperately alone CLLers out there. Despite being told "It's a good cancer" the bit that sticks is Leukaemia. (doom and dread).
John
Hi John thanks for your message.
I agree with everything you are saying and it is unfair to be told you have a good cancer, there is no such thing as a good cancer. I think many of us can relate. That kind of talk and the feelings of confusion, fear and isolation I felt at diagnosis is what motivated me to get involved with CLL support. Because I didn't handle well being told without support you have a cancer but it can;t be treated and go away and watch and wait to see what happens.
CLLSA was my first contact and I and many of us have had to find the association on-line. I remember the first time i called the charity was because i didn't know what to tell my kids! I don't think i will ever forget that. It was the CLLSA that sent me my first information
A little over a year ago our on-line community here did not exist, Like you I wish to connect as many as possible especially those who are not computer savvy,.working within a charity I had to learn another definition of time, even watch and wait did not fully prepare me.for. But we are getting there and must work together to reach out to everyone that is isolated.
Sharing Skills will greatly extend our resources to satisfy growing demands on the charity.
I hope we will continue to develop this thread, I will share design themes coming from current CLLSA initiatives as they come available. Together we can then create a design that will be enduring .
Mobilising membership and empowering everyone to provide their clinics with signposting has to be the best way to connect those living with CLL with CLL specific support.. Ensuring a poster is readily available as a download will extend resources dramatically and could reach many very quickly. Thank you for focusing us on this.
Membership are the greatest resource available to develop our capabilities, we will be reaching out to you all next week at Cambridge and by email.,
I am sorry that i have written so much for you to read, but i am passionate about delivering. John it is those that just get up and do that get things done, so don't apologise for doing. You are an inspiration and I promise I will personally focus on making sure your vision is a reality.
keep the ideas coming
Many thanks
Nick
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Nice idea.
Consider putting the full name instead of just the mnemonic CLL.
It a little busy.
Postcard size more likely to remain on a hospital / GP noticeboard.
Great poster idea and what a lot of interest and support from us all. It was nearly six months after diagnosis that a new consultant and specialist haematology nurse were kind enough to give me the information I had been requesting about CLL and passed to me a CLLSA leaflet. Contacting CLLSA was my first real step to finding out more and a poster prominently displayed in hospitals/GP surgeries/Clinics etc will be so helpful to those newly diagnosed. Good work.
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