Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for March 2014

I was diagnosed with CLL last year and have just finished 6 months chemo. Can anybody recommend a good specialist in my area: Canterbury UK

john133

•10 years ago

8 Replies

This is tell everyone that I have been reprieved. No treatment required for now. Prof Nathwani, my consultant at UCL supported the

conservative approach to treatment overwhelmingly favoured by members responding to my previous query. I feel as if I am restarting my life. Thanks to all for...

conservative approach to treatment overwhelmingly favoured by members responding...

romarin

•10 years ago

6 Replies

I have been on the cosmic trial for my CLL after 4 treatments I developed AIHA and have been told that the trial did not work for me.

The AIHA is still, not under control, but holding for longer. I wondered, anyone else with similar problems, would welcome some feedback.

The AIHA is still, not under control, but holding for longer. I wondered, anyone...

jimh

•10 years ago

3 Replies

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Too Many Pills

Friends, I share in my last post on my blog ( http://bkoffman.blogspot.com ) my sometimes serious and sometimes humorous struggle with adhering so many...

Friends, I share in my last post on my blog ( http://bkoffman.blogspot.com ) my...

bkoffman

CLL CURE Hero•10 years ago

2 Replies

Update on my status 3 month post chemo (FCR)- doing well - no malignant B cells in my MRD test

Had my 3 month post FCR visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last...

Had my 3 month post FCR visit with my oncologist. MY numbers are all normal, n...

Musicguy

•10 years ago

13 Replies

Looking for Informative CLL-related Videos?

Cllcanada’s post at...

gotCLL

•10 years ago

Be the first to reply

Skin carcinomas linked to increased risk of other cancers including blood cancers

Those with CLL have a significantly higher risk of developing skin cancers and we've just had a reminder of the importance of remaining vigilant for these:...

Those with CLL have a significantly higher risk of developing skin cancers and w...

AussieNeil

Administrator•10 years ago

7 Replies

Herbs versus Cancer: A fixed Fight

Hi friends, On my last blog post http://bkoffman.blogspot.com it is with a heavy heart that I share the sad story of a dear and brilliant friend who died of...

Hi friends, On my last blog post http://bkoffman.blogspot.com it is with a heav...

bkoffman

CLL CURE Hero•10 years ago

7 Replies

Positive patient stories on video to inspire you

Here are here patient stories we posted this week on patientpower.info I think they will inspire you. Take a look and tell others. Thanks!...

Here are here patient stories we posted this week on patientpower.info I think t...

andrewschorr

•10 years ago

2 Replies

I hear many in our cll community talk of neutrophils Could any body explain this to me please? Brad7

THE term neutrophils and one's concerns of them, being diagnosed just 4 weeks ago and not hearing of the term used before brings me to something I should know...

THE term neutrophils and one's concerns of them, being diagnosed just 4 weeks ag...

brad7

•10 years ago

4 Replies

I was diagnosed last May. My blood numbers are not too bad. My concern is neutrophils. Started last May @1.9 and this Jan. was .9.

Do they ever recover or or go back to normal on own? My Dr says I might need some intervention if they drop <.5. Thanks

Do they ever recover or or go back to normal on own? My Dr says I might need som...

Chicagogirl

•10 years ago

14 Replies

Hi there, This is probably a stupid question but has anyone heard of any connection with Glaucoma and CLL?

I suppose having CLL and it being a cancer of the immune system I wonder whether every little crack is connected!

I suppose having CLL and it being a cancer of the immune system I wonder whether...

Rileyesq

•10 years ago

7 Replies

I guess I should give up swimming in public pools...what about the sea?

romarin

•10 years ago

3 Replies

Why you should give a boost to new patients

Here's a story from Houston, Texas of a doctor who got advanced cancer, survived, and now is giving back as a one to one volunteer: http://bit.ly/1ctDAAK

Here's a story from Houston, Texas of a doctor who got advanced cancer, survived...

andrewschorr

•10 years ago

2 Replies

Can anyone explain hypermutated? That is supposedly my mutation testing result. All I have heard about is mutated or unmutated.

Wetumpka

•10 years ago

5 Replies

Aside from enlarged lymph glands, more so in the abdominal area, my symptoms have been minor. Dr is now suggesting treatment. Which one ?

My counts have been high, but not to the point that I would consider a red alert. Because of lymph node growth in size in my abdominal area and the concern...

My counts have been high, but not to the point that I would consider a red alert...

Soflajoe

•10 years ago

1 Reply

Has anyone used naproxen (Aleve) on a long term basis to relieve night sweats and/or day sweats? Did your doctor recommend it?

jwyllie

•10 years ago

5 Replies

Does anyone know the latest advice re taking Ranitidine tablets alongside pneumonia vaccinations, to increase their effectiveness?

I’m booked to have Prevnar 13 (conjugated pneumonia vac) next week, and Pneumovax 23 (non-conjugated vac) some time later. However, before then, I want to...

I’m booked to have Prevnar 13 (conjugated pneumonia vac) next week, and Pneumova...

PaulaS

Volunteer•10 years ago

7 Replies

Diagnosed Dec 2013 I have been told I need to start FCR treatment; based on blood results and mild night sweats. Otherwise I feel fine.

I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but...

I would like to know if I ask to postpone treatment whether I am taking a risk. ...

romarin

•10 years ago

20 Replies

CLL

Hi All, It has been over a month now since I finished a six month trial for CLL. I was on BENDAMUSTINE and OFATUMUMAB. Although I havn't been to my bed...

Hi All, It has been over a month now since I finished a six month trial f...

john133

•10 years ago

12 Replies

ASH 2013: Dr Jeff Sharman Discusses the Ideal Design of Phase 3 Trials with Novel Agent versus the Reality in the Community

Hi friends, I just posted on my blog http://bkoffman.blogspot.com an interesting interview with the very lucid Dr. Sharman on the trials of clinical trial...

Hi friends, I just posted on my blog http://bkoffman.blogspot.com an interestin...

bkoffman

CLL CURE Hero•10 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2014

I was diagnosed with CLL last year and have just finished 6 months chemo. Can anybody recommend a good specialist in my area: Canterbury UK

This is tell everyone that I have been reprieved. No treatment required for now. Prof Nathwani, my consultant at UCL supported the

I have been on the cosmic trial for my CLL after 4 treatments I developed AIHA and have been told that the trial did not work for me.

Too Many Pills

Update on my status 3 month post chemo (FCR)- doing well - no malignant B cells in my MRD test

Looking for Informative CLL-related Videos?

Skin carcinomas linked to increased risk of other cancers including blood cancers

Herbs versus Cancer: A fixed Fight

Positive patient stories on video to inspire you

I hear many in our cll community talk of neutrophils Could any body explain this to me please? Brad7

I was diagnosed last May. My blood numbers are not too bad. My concern is neutrophils. Started last May @1.9 and this Jan. was .9.

Hi there, This is probably a stupid question but has anyone heard of any connection with Glaucoma and CLL?

I guess I should give up swimming in public pools...what about the sea?

Why you should give a boost to new patients

Can anyone explain hypermutated? That is supposedly my mutation testing result. All I have heard about is mutated or unmutated.

Aside from enlarged lymph glands, more so in the abdominal area, my symptoms have been minor. Dr is now suggesting treatment. Which one ?

Has anyone used naproxen (Aleve) on a long term basis to relieve night sweats and/or day sweats? Did your doctor recommend it?

Does anyone know the latest advice re taking Ranitidine tablets alongside pneumonia vaccinations, to increase their effectiveness?

Diagnosed Dec 2013 I have been told I need to start FCR treatment; based on blood results and mild night sweats. Otherwise I feel fine.

CLL

ASH 2013: Dr Jeff Sharman Discusses the Ideal Design of Phase 3 Trials with Novel Agent versus the Reality in the Community

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