Posts - CLL Support | HealthUnlocked

Thank you for your patience this week while we've migrated to this new website. We hope you find the new features help you get more out of this site and we're...

Administrator•11 years ago

1 Reply

Please provide feedback on our new website (good AND bad) [Now including an update from Team HU - the site developers]

Thank you for your patience this week while we've migrated to this new website. ...

Good morning from the UK and good evening from Australia. Welcome to your new on-line CLL Support community location. It is pleasing that today navigation...

Administrator•11 years ago

62 Replies

Good morning from the UK and good evening from Australia. Welcome to your new on-line community website

Good morning from the UK and good evening from Australia. Welcome to your new ...

Hey, I believe that I have been accepted for this Clinical Trial, starting in July '13 - I wonder if anyone else in the UK (or the world! ) would like to...

Founder Admin•11 years ago

2 Replies

Want to take advantage of all our features? Just log in!

UK Clinical Trial with B + R -- Idelalisib (GS-1101) OR CAL 101 Study (III)

Hey, I believe that I have been accepted for this Clinical Trial, starting in J...

MartyR

•11 years ago

17 Replies

Ready to help reach many more with CLL

I am jazzed after meeting with Chonette, Garry and now Tricia to help UK CLLers know they are not alone and get the latest information. I hope you welcome my...

I am jazzed after meeting with Chonette, Garry and now Tricia to help UK CLLers ...

andrewschorr

•11 years ago

5 Replies

Dr Koffman interviews Dr Sharman for an ASCO 2013 CLL update

Dr Jeff Sharman has just updated his blog to include his Patient Power interview by Dr Brian Koffman at the recent ASCO 2013 conference. In this 10 minute...

Dr Jeff Sharman has just updated his blog to include his Patient Power interview...

Administrator•11 years ago

Hi All, please accept our apologies for keeping you waiting. HU have provided us one last update this evening To explain why the switch-over did not...

One last upgrade update

Hi All, please accept our apologies for keeping you waiting. HU have prov...

Founder Admin•11 years ago

'Black Americans with blood cancer do not live as long as white patients with the disease, a new study finds, even when they receive equal levels of care....

Black Americans with CLL do not live as long as white patients

'Black Americans with blood cancer do not live as long as white patients with th...

Top Poster CURE Hero•11 years ago

Hi Friends In a new interview on my blog, Dr. BIll Wierda of MDACC discusses immunity and new and old immune therapies in CLL, including his research...

ASCO 2013: Interview with Dr. Bill Wierda on Immunity and Immune Therapies in CLL

Hi Friends In a new interview on my blog, Dr. BIll Wierda of MDACC discusse...

bkoffman

CLL CURE Hero•11 years ago

Janssen Research & Development, LLC announced the submission of a New Drug Application for ibrutinib to the U.S. Food and Drug Administration (FDA) for its use...

FDA application made for Ibrutinib in refractory/relapsed CLL/SLL ONLY

Janssen Research & Development, LLC announced the submission of a New Drug Appli...

Top Poster CURE Hero•11 years ago

Dr Neil Kay conducted research into the effectiveness of the Green Tea extract EGCG on CLL, after the Mayo Clinic won the contract to do a proper scientific...

Latest CLL Global Research Newsletter interviews Dr Neil Kay of Mayo Clinic

Dr Neil Kay conducted research into the effectiveness of the Green Tea extract ...

Administrator•11 years ago

A recent study published in the Journal of Clinical Oncology, which includes among its authors Drs Kanti Rai and John Byrd, found chlorambucil is an acceptable...

Chlorambucil may be a more reasonable choice for elderly CLL patients than fludarabine.

A recent study published in the Journal of Clinical Oncology, which includes amo...

Administrator•11 years ago

Many of us are aware of how germ infested our mobile phones can become, so I was interested to read that a solution may be on the way:...

Self-disinfecting mobile displays less than two years away?

Many of us are aware of how germ infested our mobile phones can become, so I was...

Administrator•11 years ago

Hi All i am afraid the Switch over to the new platform will now be tomorrow, we can carry on as normal until then.. This is explained in a...

Upgrade update - Switch over to the new platform will now be tomorrow.

Hi All i am afraid the Switch over to the new platform will now be tomorrow, w...

Founder Admin•11 years ago

There appears to be a delay in HU commencing the switch over, but are close to it's start.. We do not know exactly when we will be back, remember in the...

Birmingham scientists given £1.6 million to research blood cancer cure

There appears to be a delay in HU commencing the switch over, but are close to ...

In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo,...

Founder Admin•11 years ago

3 Replies

Starting treatment FCR on Monday, what should I expect for side effects?

In Canada saying no to chemo is only an option once you have received chemo and ...

Musicguy

•11 years ago

17 Replies

Dr Sharman on Monoclonal B Lymphocytosis (MBL), a sometimes precursor to CLL

In another informative and easy to understand blog, Dr Sharman discusses MBL, what it means to have it and how it is differentiated from CLL. This requires an...

In another informative and easy to understand blog, Dr Sharman discusses MBL, wh...

Next Tuesday, all Health Unlocked sites will be moving to new web locations as part of a major upgrade. What does this mean to you?...

Administrator•11 years ago

3 Replies

MUST READ! This CLLSA Health Unlocked site will be unavailable during next Tuesday's Upgrade/Move

Next Tuesday, all Health Unlocked sites will be moving to new web locations as p...

I don't have CLL myself, but am an experienced haematology nurse & currently coordinate a CLL phone forum for The Leukaemia Foundation Australia. I have...

Administrator•11 years ago

2 Replies

Hi.....does anybody have any objections to a health professional "without" CLL occasionally contributing to this forum?

I don't have CLL myself, but am an experienced haematology nurse & currently coo...

daisyruby1

•11 years ago

46 Replies

Toward Patient-Centered Drug Development in Oncology

Not CLL specific but interesting...from the NEJM Quote... 'As an oncologist, when I sit with patients to discuss starting a new chemotherapy regimen,...

Not CLL specific but interesting...from the NEJM Quote... 'As an oncol...

The FDA has granted Obinutuzumab GA101 in CLL both Breakthrough Therapy Designation and Priority Review. Marketing applications have also been...

Top Poster CURE Hero•11 years ago

1 Reply

Obinutuzumab likely first new kid on the block...

The FDA has granted Obinutuzumab GA101 in CLL both Breakthrough Therapy Designa...

Eventually, many of us will experience the joys (maybe not!) of a bone marrow biopsy, where an aspirate (sample) is removed from the top of the hip bone or...

Top Poster CURE Hero•11 years ago

7 Replies

Bone Marrow Biopsy Experiences

Eventually, many of us will experience the joys (maybe not!) of a bone marrow bi...

This winter, I've noticed some back-pedalling in the usual sun safe messages we get in the media. Coincidentally, an interesting piece (below) has just been...

Administrator•11 years ago

15 Replies

Sun phobia behind Vitamin D deficiency

This winter, I've noticed some back-pedalling in the usual sun safe messages we ...

Exercise is good for us. As all with CLL know, after a FISH test we can see some of the genetic changes that have occurred due to our CLL. With breast...

Administrator•11 years ago

5 Replies

Exercise, and good genetic changes.

Exercise is good for us. As all with CLL know, after a FISH test we can see s...

Kwenda

•11 years ago

5 Replies

What helpful information do YOU wish you'd been told at diagnosis?

There is much to take in at that pivotal meeting when we're first told we have an incurable blood cancer. Memory retention isn't helped either by the impact...

There is much to take in at that pivotal meeting when we're first told we have a...

From this study... 'CLL patients have leukemic cells expressing high levels of immune-suppressing factors, low levels of adhesion and co-stimulatory...

Administrator•11 years ago

17 Replies

CLL is only about lymphocytes? Perhaps not... monocyte/macrophage may play a role

From this study... 'CLL patients have leukemic cells expressing high levels o...