Posts - CLL Support | HealthUnlocked

Top Poster CURE Hero•11 years ago

The ASCO ( American Society of Clinical Oncology ) conference is soon upon us... There will be a great deal of exciting news, but please be...

Be prepared... ASCO 2013

The ASCO ( American Society of Clinical Oncology ) conference is soon upon us......

Lots of good news...it's ASCO time... The substantial clinical activity of idelalisib that we observed justifies its further clinical development in CLL,”...

Top Poster CURE Hero•11 years ago

1 Reply

New PI3K-delta Inhibitor Prolongs Survival in Chronic Lymphocytic Leukaemia

Lots of good news...it's ASCO time... The substantial clinical activity of i...

Top Poster CURE Hero•11 years ago

Chronic C.difficile can be a serious complication in CLL... and fectal transplants have saved lives......

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FDA wants Fectal transplant 'POOP' studied!

Chronic C.difficile can be a serious complication in CLL... and fectal transplan...

Top Poster CURE Hero•11 years ago

Ever wondered how our immune system creates unique antibodies by generating them out of a possible trillion different choices, yet about a third of CLL...

Dr Sharman on the prognostic promise of B Cell Receptor stereotyping

Ever wondered how our immune system creates unique antibodies by generating them...

Administrator•11 years ago

Due to extreme fatigue, for several years I've been having a sleep almost every afternoon (as well as sleeping well at night). And now I've noticed that when I...

Altered perception of time

Due to extreme fatigue, for several years I've been having a sleep almost every ...

PaulaS

Volunteer•11 years ago

8 Replies

AACR Results Of Single Agent Ibrutinib from Dr. Wiestner of the NIH

The press release of Dr. Wiestner of the NIH on the one year data on single agent ibrutinib with no other drugs to help in 17p del and > 65 patients, with my...

The press release of Dr. Wiestner of the NIH on the one year data on single agen...

bkoffman

CLL CURE Hero•11 years ago

Do you get a bitter taste and sore eyes during infusion, then at the end of the week bloating and affected vision? Two days after the treatment I feel as if I...

I.V Methylpred. Anyone else receiving this treatment?

Do you get a bitter taste and sore eyes during infusion, then at the end of the ...

jiajia

•11 years ago

The researchers found a very effective drug combination of gossypol plus navitoclax to kill CLL cells in the lab. From the article......

Gossypol plus navitoclax COMBO in CLL ...early study

The researchers found a very effective drug combination of gossypol plus navitoc...

Top Poster CURE Hero•11 years ago

Hi All I had my 6 monthly blood test today and in the last 6 months it has gone from 44 to 45 so I am quite pleased with that and it's all systems go for...

Blood test today

Hi All I had my 6 monthly blood test today and in the last 6 months it has ...

Hidden

•11 years ago

8 Replies

How are CLL and SLL staged in the U.K. ?

In North America, CLL is stage by the Rai system and SLL by Ann Arbor. In Europe, CLL is staged by Binet system, and I have no idea how SLL is staged. How...

In North America, CLL is stage by the Rai system and SLL by Ann Arbor. In Europe...

An insightful and strangely reassuring post on the confronting but inevitable end for us all along with some practical suggestions:...

Top Poster CURE Hero•11 years ago

3 Replies

Dr Sharman's latest post on preparing for and the experience of dying

An insightful and strangely reassuring post on the confronting but inevitable en...

I was diagnosed with sleep apnea due to obesity AND CLL nodes Note that CLLers with node involvement of the neck and throat may also be at higher risk for...

Administrator•11 years ago

10 Replies

Obesity May Be Fueling Jump in Sleep Apnea Cases

I was diagnosed with sleep apnea due to obesity AND CLL nodes Note that CLLer...

Top Poster CURE Hero•11 years ago

Treatment was put off for a week. Any comments and advice please ? Cheers, keepfit 123

I had a pre chemo blood check ahead of cycle 5 of FCR (F and C at half dose) All results o,k except WBC 1.1 , ALC 0.22, ANC 0.17

Treatment was put off for a week. Any comments and advice please ? Cheer...

keepfit123

•11 years ago

4 Replies

Bleeding Gums & CLL

I have recently experienced more frequent and profuse bleeding from my gums. Given that my white cell count is still relatively low (early thirties) and that...

I have recently experienced more frequent and profuse bleeding from my gums. G...

Hidden

•11 years ago

6 Replies

ASH 2012: Interview with Dr. Wiestner from the NIH

Friends, Please check out my blog ( http://bkoffman.blogspot.com ) for the very short but insightful conclusion of my video interview with Dr. Wiestner from...

Friends, Please check out my blog ( http://bkoffman.blogspot.com ) for the ve...

bkoffman

CLL CURE Hero•11 years ago

Interesting paper from Spain, a hot bed of CLL research, that looks at the new complexities of CLL. Clearly the days of the FISH 'buckets' are drawing to a...

The genomic landscape of chronic lymphocytic leukemia: clinical implications

Interesting paper from Spain, a hot bed of CLL research, that looks at the new c...

Infinity Pharmaceuticals are reporting phase I trial results on how their PI3K oral inhibitor performed on people with relapsed or refractory CLL or SLL at the...

Top Poster CURE Hero•11 years ago

1 Reply

Infinity Pharmaceuticals to report IPI-145 progress at ASCO 2013

Infinity Pharmaceuticals are reporting phase I trial results on how their PI3K o...

NOTCH1 mutations identify a genetic subgroup of chronic lymphocytic leukemia patients with high risk of transformation and poor outcome From the...

Administrator•11 years ago

1 Reply

NOTCH1 mutational status - high risk of transformation and poor outcome

NOTCH1 mutations identify a genetic subgroup of chronic lymphocytic leukemia pat...

I cam across this video recently and I am wondering if anyone has investigated the efficacy of this drug, Honokiol. http://youtu.be/2Q5Purf_Boc

Top Poster CURE Hero•11 years ago

9 Replies

Has anyone investigated the efficacy of Honokiol in treating CLL

I cam across this video recently and I am wondering if anyone has investigated ...

TundeS

•11 years ago

4 Replies

Antidepressants Linked to Doubling of C difficile Risk

C.diff has been report in a number of CLL patients... and can become a serious chronic condition, often considered to be a hospital acquired bacterial...

C.diff has been report in a number of CLL patients... and can become a serious c...

Hello everyone I don't often put messages on here-but-this week is the 17th (or if you believe my wife) my 18th year on watch and wait. Just thought I would...

Is it 17 or 18 years I've lived with CLL?

Hello everyone I don't often put messages on here-but-this week is the 17th (or ...

william1945

CLLSA•12 years ago

17 Replies

Fatigue and how to overcome it

Same post in Macmillans CLL forum, apologies to those who use both When I was diagnosed in Feb this year, I found these groups and read up lots of...

Same post in Macmillans CLL forum, apologies to those who use both When I was...

pitbull

•12 years ago

31 Replies

Lab Tests...what are they, how are they done, what do they mean?

Lab Tests Online is an excellent resource for all your lab test questions... UK website http://www.labtestsonline.org.uk/ Non commercial, peer...

Lab Tests Online is an excellent resource for all your lab test questions... ...

The tumour suppressor molecule p53 guards the genome against mutation and if it detects damage, tries to repair the DNA damage and if unsuccessful, tries to...

The role of protein p53 in cancer

The tumour suppressor molecule p53 guards the genome against mutation and if it ...

Administrator•12 years ago

Avoiding chemo is an important and timely topic, especially now with so many new targeted drugs in the pipeline. What can we do as "bridge therapy " until...

Non -Chemo Options

Avoiding chemo is an important and timely topic, especially now with so many new...

bkoffman

CLL CURE Hero•12 years ago

Hi All We had are fundraising stall today to support my fundraising efforts for a Luekaemia and Lymphoma research in Daventry Northants , I am so pleased to...

Today is a good day

Hi All We had are fundraising stall today to support my fundraising efforts f...

Hidden

•12 years ago

7 Replies

Avoiding Chemotherapy.

Dr Sharman Blog. This very kind and extremely knowledgeable doctor makes regular posts to his blog concerning all matters CLL. His generosity of spirit...

Dr Sharman Blog. This very kind and extremely knowledgeable doctor makes ...

Kwenda

•12 years ago