Same post in Macmillans CLL forum, apologies to those who use both
When I was diagnosed in Feb this year, I found these groups and read up lots of information on the condition but as I feel fit and well, I took some of the symptoms with a pinch of salt, in particular the fatigue and the susceptibility to illness due to immune deficiency. My view has changed today.
I took the opportunity to catch up on some DIY this bank holiday Monday so today I started by putting some 6ft fence panels into their pre-set concrete posts. now my garden is 200 ft so we had to carry the 8 fence panels from the one end to the other then install them (my wife was the willing helper here).
I was shocked at how much it took out of me, yes the weather is nice and it was warm but a year ago I would have handled this no problem, today I was slowing down and felt absolutely shattered when we finished, an hours work at the most! I had to rest for a couple of hours before I tackled the task of putting up 3 curtain poles and 2 shelves and now I am feeling dead on my feet.
This set me thinking about those symptoms and the need to take this information seriously even at such an early stage in my diagnosis (my WBC was only 41 at my last consultation). I realise now that I caught a cold just before Christmas, it came on really quickly and took ages to shake off, I don't normally suffer with colds but this time I had a real bout of man flu!
Time to take these leaflets and their advice more seriously now. I am considering joining a gym to get my fitness up and help lose some weight but I am now concerned that it will lead to even more fatigue and burn me out. I am due to see my consultant on the 17th so I will ask him about the exercise thing.
Take care all