With low grade CLL how does spread to the live... - CLL Support

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With low grade CLL how does spread to the liver manifest itself ?

wolflein profile image
9 Replies

CLL diagnosed 6 months ago after blood tests. Until recently, no symptoms. In recent weeks,

when eating an evening meal, a vibration in the stomach/liver region sets in. I fear the CLL has began to spread to the liver. The discomfort fades fairly quickly. My next review with the haematologist is not till March. They have been optimistic so far and I am reluctant to sound alarmist. A reaction to eating is mentioned in what I have read, but I have not seen a reference to my sort of 'complaint'.

Have you any views? I would be grateful to know. Someone has actually reported problems with vibration, but in his legs.

Thanks

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wolflein
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Cllcanada profile image
CllcanadaTop Poster CURE Hero

Infiltration in the liver is on the cellular level, basically it gets bigger... It might be enlarged lymphnodes, there are many in the body in that area. They could be restricting the stomach, intestine, etc Certainly, contact your doctor soon, to find out what is going on. ~chris

wolflein profile image
wolflein in reply to Cllcanada

Thanks. I expect you are right. I am merely anxious to hear something less positive after the initial optmism.

--howard

Cllcanada profile image
CllcanadaTop Poster CURE Hero

Could be totally unrelated to CLL, so get it checked out

wolflein profile image
wolflein in reply to Cllcanada

Thanks. Just trying to get an early appointment with the heamatologist to find out

what the cause may be.

labbench profile image
labbench

Keep fit. If the liver is healthy, it can keep the CLL cells away.

wolflein profile image
wolflein in reply to labbench

Thanks. Hopefully the condition of my liver will be examined and found to be healthy.

jangreen profile image
jangreen

Hi Can only agree with get an early appointment. They may send you for a scan (CT or ultrascan). Good Luck

wolflein profile image
wolflein in reply to jangreen

Thanks. Managed to get an appointment for Tuesday with the heamatologist. Their first reaction over the phone was that it was unlikely to be connected with the CLL, and I should see my GP, which would have taken longer, so I am glad the specialist will see me first. Fingers crosssed.

jangreen profile image
jangreen in reply to wolflein

Perhaps still make an appointment with the GP because if its not connected with CLL then the GP can examine you and if necessay send you for a scan

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