doctors no idea what’s going on no energy constantly getting sick one sickness after another feeling very uncomfortable in my belly bloated extreme bck ache bladder that when only a little full I’m busting enlarged spleen but all my blood test for glandular fever arthritis virus’s etc have come bck normal do I let this lie or carry on pushing to why I feel so god awful.. any advice would be appreciated
Xxx
Lou
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Loulabell1980
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I cannot see anywhere in your profile where you’ve been diagnosed with CLL or where it’s been suspected. It would be inappropriate for members on here to speculate or offer advice on your symptoms or to give you any impression that your issues are in any way related to blood cancer. Please pursue this further medically as I see you’re only 44.
I’m afraid that a site dedicated solely to Chronic Lymphocytic Leukaemia isn’t the right place for you to be exploring your health issues unless you’ve been diagnosed and not mentioned it.
Would like to add that, don't know where you are but my son went through hell gastrointestinally for nearly a year before a nurse (not doctor) tested him for alpha gal, which is gotten from ticks in the US and causes allergy to ALL mammal products (so no milk, gelatin, but fine with chicken and seafood). He is doing much better now.
Lou is in the UK where AGS is exceptionally rare. I think it wise if we refrain from offering possible medical reasons for her symptoms generally however.
I had no idea I was on a forum about blood cancer I’m so sorry can not apologise enough I stumbled on someone talking about an enlarged spleen do signed up and it took me straight bck to here
That’s fine Lou. I wanted to jump in quickly because some answers could have unnecessarily spooked you if you didn’t know the remit of the site. Hope you find some answers soon and only glad you don’t have reason to join us!
Newdawn
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