Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for February 2024

MRD negative

After 2 years on Venetoclax, I am now MRD negative. Such fantastic news. The Royal Marsden in London have been absolutely brilliant and can’t thank them enough...

After 2 years on Venetoclax, I am now MRD negative. Such fantastic news. The Roy...

•3 months ago

dizziness

had a weird reaction a month ago tho knit was result of a bourbon drink. Very dizzy. Could not walk right for two days. Vomiting. But now a month later I still...

had a weird reaction a month ago tho knit was result of a bourbon drink. Very di...

•3 months ago

How do I defeat extreme tiredness?

Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But...

Waking up tired and most days feeling exhausted. My brilliant haematologist chec...

•3 months ago

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Volodymyr

CLL watch and wait from Jan 2021

CLL watch and wait from Jan 2021

•3 months ago

Venetoclax and low Neutrophils

Ok, so now been on highest dose of Venetoclax with Ibrutinib and Neutrophils count down to 0.61. Only started going down since taking higher dose. Had one...

Ok, so now been on highest dose of Venetoclax with Ibrutinib and Neutrophils cou...

•3 months ago

Hematocrit and CLL

Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval...

Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a fa...

•3 months ago

Cold sores

Hi looking for ABIT advice, my partner was diagnosed with CLL in 2016 he finished O&V treatment 2022 and all has been well with now 6 monthly review with his...

Hi looking for ABIT advice, my partner was diagnosed with CLL in 2016 he finishe...

•3 months ago

Poor sleep while being treated with V&O.

Since undergoing treatment for CLL with V&O my sleep has been very disturbed. I don’t seem to sleep deeply for more then a couple of hours. Does any one else...

Since undergoing treatment for CLL with V&O my sleep has been very disturbed. I ...

•3 months ago

Fake scientific papers push research credibility to crisis point

According to...

According to...

•3 months ago

Any relation between CLL and Atherosclerosis

Hi All, I am in CLL remission for three years and had a stroke in June, 2023. The diagnosis is Atherosclerosis and since June the arteries in my brain have...

Hi All, I am in CLL remission for three years and had a stroke in June, 2023. Th...

•3 months ago

Update.

Latest blood counts. Hb 136, WBC 9.8, Platelets168, neutrophils 7.93. Feeling reasonably well, I have just got over a chest infection which lasted around 2...

Latest blood counts. Hb 136, WBC 9.8, Platelets168, neutrophils 7.93. Feeling re...

•3 months ago

short term memory

hello everyone!!! Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and venetoclax treatments Unfortunately my mother...

hello everyone!!! Hope everyone is well Has anyone here experienced some memo...

•3 months ago

Stopping Ibrutinib

I am 81 year old male living in London I have been on Ibrutinib for almost 6 years since 2018 after two sessions of chemo, stopped due to goldbadder removal....

I am 81 year old male living in London I have been on Ibrutinib for almost 6 ye...

•3 months ago

Groundhog Day and February blahs

Just a reminder for those living in the Northern Hemisphere of this planet that tomorrow is Groundhog Day and the official start to the February blahs.Some...

Just a reminder for those living in the Northern Hemisphere of this planet that ...

•3 months ago

Oncology appointment - due diligence

Recently had my long awaited oncology appointment with an internist who also works in oncology. My CLL was discovered early, during routine bloodwork. Just...

Recently had my long awaited oncology appointment with an internist who also wor...

•3 months ago

Artrial fibrillation after nearly 2 years of Calquence?

Hello everyone! New here and just would like to wish everyone healing in their CLL. I joined to get different perspectives as my Mother has been diagnosed with...

Hello everyone! New here and just would like to wish everyone healing in their C...

•3 months ago

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