Hematocrit and CLL

[Jessielab]

Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis.

I see oncologist each 4 months. It's the longest interval she permits.

My last appointment I had:

WBC 15.0

HCT 51%

My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea. However, that discussion has not resurfaced.

I have had to have blood withdrawn about 5 times to lower the hematocrit. Since 2020.

My next appointment is this Wednesday, 7 February.

I feel great. I exercise, I travel very often by plane, I have learned to speak a new language and I have no idea what I should be feeling like with CLL. But I am told that altitude raises hematocrit which can make the problem worse. Also, those with CLL in Mexico City, DF, are living at @8500'. Higher than the altitude in a pressurized plane.

Does anyone have experience with this?

[Poodle2]

I would think that high hematocrit is linked to water intake, are you well hydrated? Also alcohol consumption - do you like to have e.g. a glass of wine every day? How is your diet? Have you discussed this with your doctor? What did they say?

[CLLCalifornia-USA]

Possibly Polycythemia Vera? Ask your doctor on Wednesday if this is what it could be. Good luck. Sally

[lankisterguy Volunteer]

Hi Jessielab,

We had a similar discussion just 2 weeks ago, and two of our most knowledgeable members gave responses, so please read: healthunlocked.com/cllsuppo...

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Len