Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for February 2024

Hereditary CLL

Hi Everyone, I was diagnosed in January 2022 and have been on watch & wait since then. One of the questions I asked the Haematologist at the time was, is CLL...

Hi Everyone, I was diagnosed in January 2022 and have been on watch & wait since...

Mar2stor

•3 months ago

38 Replies

Platelets are too low

My husband will be 86 in March and was diagnosed with CLL about 15 years ago. He was on IMBRUVICA daily about 4 years ago but the dose was gradually lowered...

My husband will be 86 in March and was diagnosed with CLL about 15 years ago. H...

Seaperson

•3 months ago

7 Replies

neutrophils

Hi everybody, I have been reading these posts for a while and wonder if anyone has had the same problem. My husband is 76 and been in watch and wait for 11...

Hi everybody, I have been reading these posts for a while and wonder if anyone...

Brigadoo

•3 months ago

10 Replies

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CAN RITUBIMAB +VENETOCLAX treatment causes yellowish loose poop

I started the RV treatment and I rarely have normal lookin stools. They are often loose and of a yellowish or greenish color. Sorry for speaking about this...

I started the RV treatment and I rarely have normal lookin stools. They are ofte...

unairdefamille

•3 months ago

13 Replies

Recently diagnosed, WBC numbers stable but RBC/HGB trending down

Hi Everyone, I was diagnosed this October. My current WBC is around 15,000. I am Del 13q and mutated, so good markers. My 3 month blood draw actually...

Hi Everyone, I was diagnosed this October. My current WBC is around 15,000. I ...

Nikitos1979

•3 months ago

18 Replies

Tinnitus & CLL

Hi I was diagnosed with CLL a year ago and not currently on any treatment . However, since January I have suffered from continuous Tinnitus , day and night ....

Hi I was diagnosed with CLL a year ago and not currently on any treatment . Ho...

Ternheim1967

•3 months ago

12 Replies

saw hematologist today

my absolute lymphocytes are 146,571. Doctor says come back in 3 months. 🙂 Sandra

my absolute lymphocytes are 146,571. Doctor says come back in 3 months. 🙂 Sandr...

Phil4-13

•3 months ago

8 Replies

Food poisoning.

I am in the middle of Venetoclax treatment for my cll, I contactedfood poisoning Sunday. I am still quite ill. I assume my cll is affecting my recovery?...

I am in the middle of Venetoclax treatment for my cll, I contactedfood poisoning...

Lisbon2022

•3 months ago

5 Replies

return of immune system

I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I...

I achieved remission in May 2022 after a year of O & V. My immune system has sti...

Cllinmaryland

•3 months ago

7 Replies

6 years on Ibrutinib Should I join STATIC trial

Should I join STATIC trial after being on Ibrutinib for almost 6 years. I did talk to my consultant. She tells me that in UK you can go off Ibrutinib no more...

Should I join STATIC trial after being on Ibrutinib for almost 6 years. I did t...

jkl700

•3 months ago

12 Replies

BTK Degraders

will BTK degraders help people with CLL and MDS?

DaveCll

•3 months ago

4 Replies

(Full break) spiral humorous fracture; surgery or let bone heal?

After a morning of being at the hospital helping my mom who has several medical Issues I was rushing to my own pulmonary rehab for persistent respiratory...

After a morning of being at the hospital helping my mom who has several medical ...

MotherofDragonsUSA

•3 months ago

28 Replies

Tiredness & Fatigue

Hi All I'm 64 and three years since diagnosis and being monitored , no symptoms with all bloods etc being are fine and nothing else to worry about but I...

Hi All I'm 64 and three years since diagnosis and being monitored , no sympto...

gr4nt4

•3 months ago

3 Replies

weight loss

I am in watch & wait and three years post diagnosis. I feel good and have always exercised daily sometimes strenuously and my earring habits remain the...

I am in watch & wait and three years post diagnosis. I feel good and have always...

Kuucat2021

•3 months ago

17 Replies

Colon cancer after CLL diagnosis

Things were going so well. At 63 and while living in France for a work contract, my husband, who already has HF low EF (which I managed to improve recently to...

Things were going so well. At 63 and while living in France for a work contract...

Minou1

•3 months ago

17 Replies

Re: Mild Pain and Inflammation

Directly below the left earlobe (about an inch down), I have been experiencing some mild pain. It's only painful when I touch it and it feels inflamed....

Directly below the left earlobe (about an inch down), I have been experiencing s...

bagelstreet225

•3 months ago

32 Replies

R I P

It is with great sadness to tell you that Mick passed away peacefully on the 14th of February.Myself and my family are devastated,we had be married for nearly...

It is with great sadness to tell you that Mick passed away peacefully on the 14t...

very

•3 months ago

112 Replies

Pulsed Electro Magnetic Fields Math.

Hi,I am a 74 year old Italian woman. I was diagnosed with CLL 5 years ago, by chance. No symptoms whatsoever at the time, nor now! (WBC 189.000) I feel good,...

Hi,I am a 74 year old Italian woman. I was diagnosed with CLL 5 years ago, by c...

nutella7

•3 months ago

61 Replies

watch and wait.

Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for...

Hi all, I haven’t posted in a while. I am after some thoughts on results really....

T7374

•3 months ago

9 Replies

Beta 2 Microglobulin

Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?

Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL ...

ColSte

•3 months ago

14 Replies

Facial sweating with eating on Venetoclax

I have been on Venetoclax since Feb 2023. Over the past few weeks I have developed a strange symptom... every time I eat I start sweating from my upper jaw to...

I have been on Venetoclax since Feb 2023. Over the past few weeks I have develop...

Shangonmom

•3 months ago

7 Replies

Fuchs Dystrophy

I’ve recently been diagnosed with Fuchs Dystrophy and wondered if anyone else in our community has had a similar diagnosis ? Pronounced Fox Dystrophy, it is...

I’ve recently been diagnosed with Fuchs Dystrophy and wondered if anyone else in...

Notmuchenergy

•3 months ago

4 Replies

A COLD AND VENETOCLAX

Hi all….has anyone had a cold and paused Venetoclax? Still waiting to hear back from my Oncologist. Thanks…Diana

Hi all….has anyone had a cold and paused Venetoclax? Still waiting to hear back ...

difor29

•3 months ago

10 Replies

Acalabrutinib not working any more

Hello everyone, I pray you all are doing great. I have been taking Acalabrutinib for 2 years suddenly felt a lump in my neck, had a scan and they found lumps...

Hello everyone, I pray you all are doing great. I have been taking Acalabrutinib...

19930B

•3 months ago

16 Replies

Can't log in

Get email every day, but today it logged me out, but I can't remember my password and it won't let create new password, any help? Thanks

Get email every day, but today it logged me out, but I can't remember my passwor...

sue6741

•3 months ago

6 Replies

sleeve gastrectomy while on Imbruvica for CLL

Dear all, has anyone experienced doing bariatric surgery while on Imbruvica for CLL? many thanks,

Dear all, has anyone experienced doing bariatric surgery while on Imbruvica for...

ObiYan

•3 months ago

6 Replies

ASEA Redox

Hi all, I was recently told by an RN about ASEA Redox. I was complaining about my aches and pains and she says she and her husband take it daily and it has...

Hi all, I was recently told by an RN about ASEA Redox. I was complaining abou...

RedheadedDeb

•3 months ago

1 Reply

NGS test

My doctor at my visit today mentioned that she might have me have an NGS test. Has anyone here had one and what does this test reveal. Jack

My doctor at my visit today mentioned that she might have me have an NGS test. H...

rcusher

•3 months ago

3 Replies

Petechiae

Anyone getting Petechiae red spots on their body? Apparently it’s the capillaries collapsing. I reported this to my CNS on Monday and am seeing my Haemotology...

Anyone getting Petechiae red spots on their body? Apparently it’s the capillarie...

clifflee

•3 months ago

18 Replies

Monoclonal components

Dears, I have a question. I am in treatment for my CLL (13q, not mutated, with monoclonal component in gamma zone) with 2 cps of Ibrutinib. Since the...

Dears, I have a question. I am in treatment for my CLL (13q, not mutated, with...

grazia50

•3 months ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2024

Hereditary CLL

Platelets are too low

neutrophils

CAN RITUBIMAB +VENETOCLAX treatment causes yellowish loose poop

Recently diagnosed, WBC numbers stable but RBC/HGB trending down

Tinnitus & CLL

saw hematologist today

Food poisoning.

return of immune system

6 years on Ibrutinib Should I join STATIC trial

BTK Degraders

(Full break) spiral humorous fracture; surgery or let bone heal?

Tiredness & Fatigue

weight loss

Colon cancer after CLL diagnosis

Re: Mild Pain and Inflammation

R I P

Pulsed Electro Magnetic Fields Math.

watch and wait.

Beta 2 Microglobulin

Facial sweating with eating on Venetoclax

Fuchs Dystrophy

A COLD AND VENETOCLAX

Acalabrutinib not working any more

Can't log in

sleeve gastrectomy while on Imbruvica for CLL

ASEA Redox

NGS test

Petechiae

Monoclonal components

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