Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for March 2023

Vaccination, Paxlovid decrease risk of long Covid, studies show

Vaccination, Paxlovid decrease risk of long Covid, studies show By Janelle Chavez, CNN Published 11:00 AM EDT, Thu March 23, 2023...

Vaccination, Paxlovid decrease risk of long Covid, studies show By Janelle Chav...

lankisterguy

Volunteer•1 year ago

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todays blood tests

I see the oncologist on Monday and I had blood tests today for him to review and discuss at my appointment. 6 months ago he told me I had the precursor to CLL...

I see the oncologist on Monday and I had blood tests today for him to review and...

DianeSH

•1 year ago

2 Replies

Spike in neutrophil count - w&w CLL

Hello, My mum is currently on w&w with CLL, and has been having regular blood tests since her diagnosis in Jan 2022. We have seen her lymphocytes climb, as...

Hello, My mum is currently on w&w with CLL, and has been having regular blood t...

currerbell

•1 year ago

4 Replies

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CLL Symptoms

I was diagnosed with CLL 20 years ago and been on a watch and wait program, last August I had a CT Scan and it showed the Spleen was enlarged by 17cms and...

I was diagnosed with CLL 20 years ago and been on a watch and wait program, last...

Anzac49

•1 year ago

19 Replies

Possibly Failing Calquence - what’s next?

Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008...

Turning to this very informative group for answers while waiting for my follow u...

ReneeSusan

•1 year ago

28 Replies

Importation of Ibrutinib from India to NZ

I am in the process of importing Natco Ibrunat ( ibrutinib generic) from India for personal use. I have a consulting hospital heamtolgist prescription to...

I am in the process of importing Natco Ibrunat ( ibrutinib generic) from India f...

tonysa

•1 year ago

25 Replies

New Jama Article to do with CLL. Audio

Not sure if you all can open this or not. But it's of interest:...

Horsechestnut

•1 year ago

6 Replies

Short course of Prednisone

I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also...

I have developed some ringing in my ears and exploring all kinds of reasons for ...

CBME

•1 year ago

19 Replies

Cellularity 10-20% after treatment completed

Hi, any thoughts on low cellularity? The formula appears to be take 100 minus your age = normal cellularity for your age. Mine based on bone marrow biopsy...

Hi, any thoughts on low cellularity? The formula appears to be take 100 minus y...

81ue

•1 year ago

2 Replies

Fungal infections cause 3 x the number of deaths caused by malaria... really!? This 9min podcast explains.

"More or Less" Do fungi kill three times as many people as malaria? https://www.bbc.co.uk/sounds/play/w3ct3k63?partner=uk.co.bbc&origin=share-mobile...

"More or Less" Do fungi kill three times as many people as malaria? https://www...

JigFettler

Volunteer•1 year ago

4 Replies

Stomach feels bloated and sore

I was diagnosed with CLL back in September. I am in W&W. I had a few instances of unusual shortness of breath that had me go in for a check up but I was also...

I was diagnosed with CLL back in September. I am in W&W. I had a few instances...

CRC4747

•1 year ago

11 Replies

CAR T PROGRESS

Many of us have interest in and hopes for a new treatment that can be a breakthrough with our illness. As such there has been a good bit written on our site...

Many of us have interest in and hopes for a new treatment that can be a breakthr...

wizzard166

•1 year ago

9 Replies

Phlegmy covid cough and recovery times

Update: His doctor said that his phlegmy cough was “normal” and wasn’t too concerned. After 18 days he’s finally tested negative for covid and his cough has...

Update: His doctor said that his phlegmy cough was “normal” and wasn’t too conce...

Bebopcoober

•1 year ago

5 Replies

Posts from here on google.

Hey, folks, to my surprise yesterday, as I was doing some googling on supplements and Covid, MY OWN POST headline appeared as a result, followed by the post...

Hey, folks, to my surprise yesterday, as I was doing some googling on supplement...

Vlaminck

•1 year ago

11 Replies

Skin Feels itchy all over

Hello, I was diagnosed with CLL back in November and am currently on the V&O treatment plan. I have 2 infusions left, one in April and one in May and have...

Hello, I was diagnosed with CLL back in November and am currently on the V&O tr...

tenniselbowz

•1 year ago

11 Replies

Little purple patches

I have little purple patches on my hand. Are these related to my CLL?

anapurna

•1 year ago

6 Replies

Safe to attend outdoor music festival?

I am currently on Venetoclax and mask when indoors. I am really wanting to go to an outdoor music festival. There will be many people but the space is large....

I am currently on Venetoclax and mask when indoors. I am really wanting to go to...

Tangolover

•1 year ago

36 Replies

Shingles on face and head with CLL

Hi everyone, I am on the Flair trial but have been off treatment for 18 months +. I have Shingles on my face and head and have been prescribed acyclovir over...

Hi everyone, I am on the Flair trial but have been off treatment for 18 months +...

chillsome

•1 year ago

20 Replies

One and Done?? Next up!

I haven't posted in quite some time : however treatment day is getting closer. Quickly, I was started prematurely on acalabrutinib in Oct 2022 by a Dr in...

I haven't posted in quite some time : however treatment day is getting closer. Q...

Rico49

•1 year ago

23 Replies

Masking question

I am just curious,before COVID did you wear a mask for CLL? This isn't a mask debate question. I am just curious.

I am just curious,before COVID did you wear a mask for CLL? This isn't a mask de...

Gradyboy

•1 year ago

59 Replies

Covid

I tested positive for Covid on Thu. 16th March and I have had an email telling me I am "vunerable". I have asthma as well as CLL, on W&W for CLL. I am 80...

I tested positive for Covid on Thu. 16th March and I have had an email telling ...

Motorman

•1 year ago

12 Replies

High LDL cholesterol associated with lower COVID mortality

This article was pretty interesting. Data from China indicate that high LDL cholesterol levels are associated with lower COVID mortality. LDL cholesterol plays...

This article was pretty interesting. Data from China indicate that high LDL chol...

Hidden

•1 year ago

16 Replies

Chest xray

Since November I have been suffering outbreaks of body rash the hospital has put it down as vasculitis caused from my 6th covid vaccine and I'm on steroids 6...

Since November I have been suffering outbreaks of body rash the hospital has p...

cartwheels

•1 year ago

14 Replies

Final blood counts before final infusion of Gazyva. O &V treatment

Platelets 287 hemoglobin 14.7 WBC 4.9 will these improve when infusions end or does Venclexta usually lower them more? I know some of you know what to look...

Platelets 287 hemoglobin 14.7 WBC 4.9 will these improve when infusions end or d...

Gradyboy

•1 year ago

5 Replies

cll patient

i have been taking imbruvica for five years so i had my appointment with my oncologist yesterday and my platelet count is 78 and my lymphocyte percent is 54%....

i have been taking imbruvica for five years so i had my appointment with my onco...

Buddy666

•1 year ago

1 Reply

Low IgE...

I just got this result today... Even thouhh no lower limit shown, should I get worried for such a low IgE? Background: I am having monthly IVIG ingusion after...

I just got this result today... Even thouhh no lower limit shown, should I get w...

eekibin

•1 year ago

15 Replies

Detection of a bacterial infection: Procalcitonin test

How to figure out if antibiotics should be considered ? There is a blood test measuring levels of Procalcitonin: if it is below 0.1 ng/mL, a bacterial...

How to figure out if antibiotics should be considered ? There is a blood test me...

MikeOr

•1 year ago

4 Replies

Increased fatigue levels / Breathlessness and Petechiae

Hello again... I have another appt today with the doc as I have been feeling really grotty lately. Since my last appt I have developed Petechiae on my...

Hello again... I have another appt today with the doc as I have been feeling re...

The_simple_life

•1 year ago

12 Replies

Lymphocytes, lymphocytes, lymphocytes

This poster from CellWiki show just how variable the morphology of lymphocytes can be. This poster includes both normal and malignant lymphoid cells. Of...

This poster from CellWiki show just how variable the morphology of lymphocytes c...

Jm954

Administrator•1 year ago

9 Replies

Why 2nd flow cytometry?

WAW 5 years. I changed Cll Specialists and he wants to do another flow cytometry next visit. I had two flow cytometries done, one a DX and one a year later...

WAW 5 years. I changed Cll Specialists and he wants to do another flow cytometr...

Claybuster

•1 year ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2023

Vaccination, Paxlovid decrease risk of long Covid, studies show

todays blood tests

Spike in neutrophil count - w&w CLL

CLL Symptoms

Possibly Failing Calquence - what’s next?

Importation of Ibrutinib from India to NZ

New Jama Article to do with CLL. Audio

Short course of Prednisone

Cellularity 10-20% after treatment completed

Fungal infections cause 3 x the number of deaths caused by malaria... really!? This 9min podcast explains.

Stomach feels bloated and sore

CAR T PROGRESS

Phlegmy covid cough and recovery times

Posts from here on google.

Skin Feels itchy all over

Little purple patches

Safe to attend outdoor music festival?

Shingles on face and head with CLL

One and Done?? Next up!

Masking question

Covid

High LDL cholesterol associated with lower COVID mortality

Chest xray

Final blood counts before final infusion of Gazyva. O &V treatment

cll patient

Low IgE...

Detection of a bacterial infection: Procalcitonin test

Increased fatigue levels / Breathlessness and Petechiae

Lymphocytes, lymphocytes, lymphocytes

Why 2nd flow cytometry?

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