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CLL Support

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All posts for January 2023

Acalabrutinib and Venetoclax

Hi Everyone,...

dave20

•2 years ago

6 Replies

EXTREME bone pain with Neupogen injections, advise welcome!

Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist...

Has anyone experienced extreme pain with Neupogen GCSF injections? My husband ha...

lisakc1

•2 years ago

23 Replies

High b-12

Just came back from my 6 month blood work. At 72 ALC after 5 yr watch and wait. Other than high monocytes, and glucose of 105, all other measures in normal...

Just came back from my 6 month blood work. At 72 ALC after 5 yr watch and wait. ...

Claybuster

•2 years ago

6 Replies

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ALC is still going up

Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition...

Well, today I had another CBC. My ALC continues to go up consistently at each 2...

Moonmyst

•2 years ago

6 Replies

first weeks of taking acalabrutinib

Do you lose weight in the first weeks

Rrriver

•2 years ago

3 Replies

Abnormally high liver enzymes

Abnormally high liver enzymes, can anyone tell me what this has meant for you if you have CLL and his problem with your liver? Thank you, you are a wonderful...

Abnormally high liver enzymes, can anyone tell me what this has meant for you if...

May1270

•2 years ago

5 Replies

Knowledge is meaningless if it is not successfully shared

A thought-provoking piece, from a scientist-educator's point of view, about how to counter the LandoLakes * ("easy to spread") culture, intent on disseminating...

A thought-provoking piece, from a scientist-educator's point of view, about how ...

bennevisplace

•2 years ago

20 Replies

UK (England and Wales?) Ambulance and 999 callers Strike today and 23rd January

I'm making no political comment here and don't want any in response to this post. This is an information only post of the details of where strike action is...

I'm making no political comment here and don't want any in response to this post...

Jm954

Administrator•2 years ago

4 Replies

Exercise is the fountain of youth

I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up...

I always loved the natural high that exercise brings but I never really knew how...

CoachVera55

•2 years ago

3 Replies

Improvement in Heraing

This is an update on my earlier post regarding hearing loss. First of all I am able to report marked improvement in my hearing. My visit to audiologist...

This is an update on my earlier post regarding hearing loss. First of all I am ...

Hihohiho

•2 years ago

3 Replies

Having to start treatment

CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are...

CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm...

Mog811

•2 years ago

12 Replies

Fresh article on Berberine's positive effect on CLL

"Anti-tumor effect of berberine on chronic lymphocytic leukemia cells." Couldn't read the whole article without paying for it (should be a law), but the...

"Anti-tumor effect of berberine on chronic lymphocytic leukemia cells." Couldn'...

Vlaminck

•2 years ago

28 Replies

Please help me understand

After completing a year of full dose Venetoclast, I continue to be neutropenic with low numbers including platelets (60+) and hemoglobin, absolute lymphs and...

After completing a year of full dose Venetoclast, I continue to be neutropenic w...

bayside64

•2 years ago

5 Replies

Lower back pain

I have lower back pain on the right side up to my thigh in front with cramps in the right thigh muscle and front only pain is 7 from 10

I have lower back pain on the right side up to my thigh in front with cramps in ...

Karate

•2 years ago

10 Replies

cologuard vs colonoscopy

I’m on watch and wait for about five years now. So far, a most indolent diagnosis. My question is about colon cancer screening. Is the non-invasive cologuard...

I’m on watch and wait for about five years now. So far, a most indolent diagnosi...

battanim

•2 years ago

13 Replies

Intermittent fasting

I am on the O&V program although am now only taking venetoclax (400 mg daily). I am also a type 2 diabetic and am considering doing intermittent fasting. Is...

I am on the O&V program although am now only taking venetoclax (400 mg daily). I...

Nanaimo1

•2 years ago

24 Replies

Is Distilled water better to consume during treatment ?

I am shortly coming off watch and wait and will start treatment with obinutuzumab and Venetoclax. I understand I will have to increase drinking water to...

I am shortly coming off watch and wait and will start treatment with obinutuzuma...

Abbey222

•2 years ago

37 Replies

Diet to GAIN weight

Hello all CLL friends, Healthy Happy Safe New Year to all and your respective families. I was diagnosed with CLL 5 years ago. I also have a small chance of...

Hello all CLL friends, Healthy Happy Safe New Year to all and your respective f...

CouldBworse

•2 years ago

14 Replies

Shingles vaccine is now recommended in Australia for people aged ≥18 years who are immunocompromised

The Australian Government recently updated its advice about vaccination against shingles. The bad news is that the only vaccine funded through the National...

The Australian Government recently updated its advice about vaccination against ...

CLLerinOz

Administrator•2 years ago

6 Replies

Faster growing CLL

Hi everyone, I was just reading the Leukaemia & Lymphoma Society section about CLL and it stated the following- People with the faster-growing...

Hi everyone, I was just reading the Leukaemia & Lymphoma Society section abou...

Plentyuk80

•2 years ago

22 Replies

Stay strong 💪

The gym is the motivation! Take lots of aminos and power blended drinks with lots of protein and greens! Gotta keep your muscles strong for this wait and see...

The gym is the motivation! Take lots of aminos and power blended drinks with lot...

Mauisusan

•2 years ago

3 Replies

Symptons from being on Calquence for two and half months.

Hello....I have developed a horrible rash on my face, it loos like I was laying out in the sun for days. Went to the dermatologist and they said I had...

Hello....I have developed a horrible rash on my face, it loos like I was laying ...

helenolton

•2 years ago

22 Replies

safe decongestant

does anyone out there know of a decongestant that can safely be taken while on Calquence?? My head is incredibly full of congestion from what seems to be the...

does anyone out there know of a decongestant that can safely be taken while on C...

Faith-5

•2 years ago

6 Replies

DID A FAMOUS DOCTOR’S COVID SHOT MAKE HIS CANCER WORSE?

Curious if you all seen this article? Since January 2022, I stated to all of my husband Dr's that I truly believed that my husband's 3rd COVID activated his...

Curious if you all seen this article? Since January 2022, I stated to all of my ...

spi3

•2 years ago

28 Replies

Venetoclax and irregular heartbeat?

I am experiencing a very irregular heartbeat and palpitations lately. I have been on 400 mg dose of Venetoclax since September 2022. Has anyone else...

I am experiencing a very irregular heartbeat and palpitations lately. I have bee...

Tangolover

•2 years ago

11 Replies

what tests needed for treatment after relapse

My husband, age 78, was diagnosed with CLL in late 2020. In early 2021 he had tests that revealed that he has a 17p del. In Oct. 2021 he showed symptoms, SLL,...

My husband, age 78, was diagnosed with CLL in late 2020. In early 2021 he had t...

GardenGrandma

•2 years ago

9 Replies

hypertension and stroke on acalabrutinib

I had high blood pressure on acalabrutinib and a stroke two weeks ago. anybody in community experienced this terrible side effects?

I had high blood pressure on acalabrutinib and a stroke two weeks ago. anybody ...

Belkin123

•2 years ago

17 Replies

Lion's Mane micronized Mushrooms

Lion's Mane has been recommended to me by a couple of friends as something that counteracts some memory loss. I'm 81, on ibrutinib for CLL almost 3 years....

Lion's Mane has been recommended to me by a couple of friends as something that ...

CCgroup

•2 years ago

7 Replies

Paxlovid and Xeralto

My husband just tested positive for the first time. We were able to get Paxlovid for him. My pharmacist told me that if I test positive, this would not be...

My husband just tested positive for the first time. We were able to get Paxlovi...

beanlake14

•2 years ago

13 Replies

Progress

I've been on watch and wait for three and a half years now and it really pleases me the progress that keeps on coming. Here's another...

I've been on watch and wait for three and a half years now and it really pleases...

Research123

•2 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2023

Acalabrutinib and Venetoclax

EXTREME bone pain with Neupogen injections, advise welcome!

High b-12

ALC is still going up

first weeks of taking acalabrutinib

Abnormally high liver enzymes

Knowledge is meaningless if it is not successfully shared

UK (England and Wales?) Ambulance and 999 callers Strike today and 23rd January

Exercise is the fountain of youth

Improvement in Heraing

Having to start treatment

Fresh article on Berberine's positive effect on CLL

Please help me understand

Lower back pain

cologuard vs colonoscopy

Intermittent fasting

Is Distilled water better to consume during treatment ?

Diet to GAIN weight

Shingles vaccine is now recommended in Australia for people aged ≥18 years who are immunocompromised

Faster growing CLL

Stay strong 💪

Symptons from being on Calquence for two and half months.

safe decongestant

DID A FAMOUS DOCTOR’S COVID SHOT MAKE HIS CANCER WORSE?

Venetoclax and irregular heartbeat?

what tests needed for treatment after relapse

hypertension and stroke on acalabrutinib

Lion's Mane micronized Mushrooms

Paxlovid and Xeralto

Progress

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