first weeks of taking acalabrutinib: Do you lose... - CLL Support

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first weeks of taking acalabrutinib

Rrriver profile image
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Do you lose weight in the first weeks

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Rrriver profile image
Rrriver
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lankisterguy profile image
lankisterguyVolunteer

Hi Rrriver,

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I suspect you will find others that either gained weight (treatment may have shrunk their spleen and reduced other symptoms) and those like me that lost weight (mild gastro issues).

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Here is a list of 266 past postings mentioning weight loss. You can see a number that mention starting or stopping treatment:

healthunlocked.com/cllsuppo...

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Len

Pageboy profile image
Pageboy

I did, yes. Around 7Ibs, then it stabilised and has stayed around there. Not sure if it’s the drug itself or if my big spleen and lymph nodes reducing played a part 🤔

Westie11- profile image
Westie11-

I lost weight before treatment and have now gained 6lbs. This to me shows treatment is working.

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