Richters Syndrome

[Deserthope]

Hi. My husband was just diagnosed with Richters Syndrome. Non-hodgkins. Anyone have any success stores? I’m looking for any information. Thank you.

[Mick519]

Try looking at and joining Richter's Transformation | Facebook page. You will find specific answers to this change in your Cll journey.

[Poodle2]

Sorry to hear this...Look for Priss69

[Deserthope in reply to Poodle2]

Thank you. I messaged her just a bit ago. I appreciate your reply.

[johnliston]

Link to Richters fadebook group facebook.com/groups/1002255...

[Deserthope]

Thanks for the info.

[CLLerinOz Administrator Volunteer]

Welcome to the forum. I wish it were better circumstances that brought you here.

I see you’ve found some related posts already. You’ll also find any posts that have been tagged with the ‘Richter’s’ topic here:

healthunlocked.com/cllsuppo...

If, when the shock of your husband’s diagnosis has settled, you have time to add to your profile to share what country you’re in and your husband’s brief CLL history, it will help others share information that’s relevant to your location and circumstances.

[Deserthope]

Will do. Thank you.

[PhilWillson]

Hi

Sorry to hear your news .I was diagnosed with RS in October .I had 6 sessions of RCHOP. Given all clear in May .

[Mystic75 in reply to PhilWillson]

Phil,Thank you for sharing your story - very happy for you!

D.

[Deserthope in reply to PhilWillson]

Wow!!! That’s great !!!! So happy for u and gives a lot of hope!!! Did u have 17p or p53 issue?

[Mystic75]

Hi DH,Welcome to the forum. I want to wish you and your husband all the best.

Nice to see the members providing you much needed information.

Big hug,

D.

[rosiewi]

I was diagnosed with Richter's in June 2017. Had R-CHOP which put me into remission. My CLL progressed slowly and I started on Acalabrutinib in March 2022.

[Deserthope in reply to rosiewi]

Did u have any 17p or p53? Did u do SCT or bone marrow transplant? Thx

[Deserthope]

That’s great news!!! Thank u for sharing !! It gives me hope!!!