Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2022

Availability of Evusheld in UK

Hi given that Evusheld has been approved by the MHRA but not yet by NICE is it possible to obtain the injections privately. Frankly after being imprisoned in...

Hi given that Evusheld has been approved by the MHRA but not yet by NICE is it p...

horsehay

•2 years ago

6 Replies

First Obinutuzumab infusion tomorrow

Thank you so much to everyone who responded to my earlier post...your reassurance and accounts of your own experiences have been a tremendous help. For the...

Thank you so much to everyone who responded to my earlier post...your reassuranc...

Miu48

•2 years ago

5 Replies

Exercise and well-being sound bites and photos

At CLL Support we are preparing a guidance document covering all aspects of Exercise and Well-being. To that end we would love to include short stories about...

At CLL Support we are preparing a guidance document covering all aspects of Exer...

Mild-Rover

•2 years ago

5 Replies

Want to take advantage of all our features? Just log in!

EVOLVE trial for high risk chronic lymphocytic leukemia - CLL patients will test an early treatment intervention Vs watch and wait

'The goal of the S1925 [EVOLVE] trial is to find out if early treatment can help people with chronic lymphocytic leukemia (CLL) or small lymphocytic...

'The goal of the S1925 [EVOLVE] trial is to find out if early treatment can help...

CLLerinOz

Administrator•2 years ago

World Vaccine Congress meeting in Washington this week

This is a link to the World Vaccine Congress in Washington. I'm certainly interested in new vaccines especially the one that city of hope has been working on...

This is a link to the World Vaccine Congress in Washington. I'm certainly inter...

akajeanie1

•2 years ago

Be the first to reply

CLL husband just tested positive - now what?

Husband just tested positive for COVID this eve, but his oncologist not responding...sotrovimab? Bebtelovimab? Paxlovid? Not sure what we should be seeking...

Husband just tested positive for COVID this eve, but his oncologist not respondi...

OaktownA

•2 years ago

13 Replies

Ibrutinib patent.

Interesting article on India trying to produce a generic version of Ibrutinib for 500USD per month. Imagine the difference for those not insured or living in...

Interesting article on India trying to produce a generic version of Ibrutinib fo...

MovingForward4423

•2 years ago

24 Replies

Cancer free

That is marvellous what a wonderful feeling. Trafford

studi

•2 years ago

4 Replies

Covid positive

Tested positive for Covid Friday due to flu symptoms. On watch and wait two years bloodwork stable. Doctor wants to send me for mono clonal antibodies...

Tested positive for Covid Friday due to flu symptoms. On watch and wait two year...

celticfan

•2 years ago

26 Replies

Two years of caution and now new opportunities. Opinions sought

Three weeks ago I got covid after two years of precautions. Still not sure how I caught it, but the NHS did work well for me and I received a sotrovimab...

Three weeks ago I got covid after two years of precautions. Still not sure how I...

Harvist

•2 years ago

19 Replies

Obinutuzumab life threatening reactions

Hi. I've asked on cll fb page too but hoping others here may have similar experience and advice. So my dad started obinutuzumab in Jan and within 15min his BP...

Hi. I've asked on cll fb page too but hoping others here may have similar experi...

Laurad_84

•2 years ago

16 Replies

The promise of Mix and Match COVID-19 vaccinations

A couple of papers published in Nature provide some encouraging indications of why a 'mix and match' strategy with vaccination boosters may broaden the...

A couple of papers published in Nature provide some encouraging indications of w...

AussieNeil

Administrator•2 years ago

8 Replies

Evusheld Antibody Result

Was not going to get tested post Evusheld. Thought what’s the point, I know I was given antibodies and not really going to change my behavior because of it....

Was not going to get tested post Evusheld. Thought what’s the point, I know I wa...

Davidcara

•2 years ago

8 Replies

Calquence and headaches

Hi All - I just started Calquence - day 5 - and I am waking up with solid headaches - I read that this should ease after 14 days - what have others experienced...

Hi All - I just started Calquence - day 5 - and I am waking up with solid headac...

Brucex100

•2 years ago

13 Replies

Sores on face and body

Hi dear friends Did anyone get sores that spread and do not heal, look very infected, maybe staphylococus, starts small and grows Is it connected with taking...

Hi dear friends Did anyone get sores that spread and do not heal, look very infe...

veranaish

•2 years ago

4 Replies

Positive after being negative

Hi I was diagnosed with CLL in March 2022 and am on W&W. On April 3rd I tested positive for Covid and was prescribed Paxlovid for 5days. After starting...

Hi I was diagnosed with CLL in March 2022 and am on W&W. On April 3rd I tested p...

Hilaryb93

•2 years ago

10 Replies

Leukaemia and stomach discomfort

Lived healthy life for 70 yrs. Was diagnosed for Leukaemia in March 2021, WBCs suddenly increasing to 229 thousand in November. Taking Calquence 100mg. with...

Lived healthy life for 70 yrs. Was diagnosed for Leukaemia in March 2021, WBCs ...

GargR

•2 years ago

12 Replies

Evusheld Authorized for Use in Canada

Health Canada approved use of Evusheld for the immune compromised this morning. The Canadian government had already ordered 100,000 doses prior to approval....

Health Canada approved use of Evusheld for the immune compromised this morning. ...

Vizilo

•2 years ago

5 Replies

Map of Human Blood Stem Cell Development Created

ARTICLE https://www.insideprecisionmedicine.com/topics/precision-medicine-topic/stem-cells/map-of-human-blood-stem-cell-development-created/ : EXTRACTS...

ARTICLE https://www.insideprecisionmedicine.com/topics/precision-medicine-topic/...

bennevisplace

•2 years ago

3 Replies

Diagnosed with CLL

Hi everyone. I was diagnosed a year ago with stage 0 CLL with 13 q deletion. I am worried because of a five-year survival rate that I read about.

Hi everyone. I was diagnosed a year ago with stage 0 CLL with 13 q deletion. I ...

Rosebud16

•2 years ago

46 Replies

Medical Question

Wondering, if you are on BTK treatment and labs are normal, will you WBCs respond to an infection. Meaning, if you get an infection will your WBC increase ?

Wondering, if you are on BTK treatment and labs are normal, will you WBCs respon...

Davidcara

•2 years ago

4 Replies

Spike Protein Antibody Test (UK)

Can anyone recommend a UK company that performs the Spike Protein Antibody (testing for vaccination antibodies)?

Can anyone recommend a UK company that performs the Spike Protein Antibody (test...

RobertCLL

•2 years ago

11 Replies

CLL and Skin Cancer

My mum was diagnosed in 2008. Fast forward to now, she is currently on Ibrutinib which has been a journey in itself. She has been on it now for nearly 2......

My mum was diagnosed in 2008. Fast forward to now, she is currently on Ibrutinib...

mouseygirl

•2 years ago

5 Replies

Neutrophils and evosheld

I had evosheld 2 weeks ago and my neutrophils dropped. Dr. thinks it can be related. Anyone else have this complication ? Geri

I had evosheld 2 weeks ago and my neutrophils dropped. Dr. thinks it can be rela...

GeriGi

•2 years ago

26 Replies

Outstanding Information | Dr.Chris Fegan | Places mind at ease | valuable information to improve the patient and Dr. relationship

Serendipity!! I just fired my CLL group. It had been a small (10 MD) private practice that was sold to a large medical center. Without prior knowledge or...

Serendipity!! I just fired my CLL group. It had been a small (10 MD) private pra...

KLW4025

•2 years ago

4 Replies

Forward momentum in Richters/DLBCL?

A small bit of encouragement. VJHEMONC video - Graham Collins, MA, MBBS, MRCP, FRCPath, DPhil, Oxford University Hospitals NHS Foundation Trust, Oxford, UK,...

A small bit of encouragement. VJHEMONC video - Graham Collins, MA, MBBS, MRCP, F...

Smakwater

•2 years ago

9 Replies

Paxlovid access expanding in Ontario amidst the 6th wave

https://www.cbc.ca/news/canada/toronto/ontario-covid19-april-11-2022-kieran-moore-briefing-1.6415524 It appears that, even if you are in Watch & Wait, you may...

https://www.cbc.ca/news/canada/toronto/ontario-covid19-april-11-2022-kieran-moor...

New-bee-cell

•2 years ago

1 Reply

effects of discontinguing taking calquence

effects of discontinguing taking Calquence after 1 year? expensive to say the least! as you know

effects of discontinguing taking Calquence after 1 year? expensive to say the ...

marvindrossman

•2 years ago

5 Replies

Effects of Calquence on sperm

My husband 69 years old is on Calquence for CLL, he's had Chemo at least three times over about 15 years, Bad reactions to Rituxan, weird skin issues, looked...

My husband 69 years old is on Calquence for CLL, he's had Chemo at least three t...

linnylee

•2 years ago

3 Replies

New neck lump came on quickly

Hi All, I have a quick query re the above, I had a neck lunp come up withing 24 hours, it is sore to touchm have had slight earache, and long term phlegm, and...

Hi All, I have a quick query re the above, I had a neck lunp come up withing 24...

Vindicatrix

•2 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2022

Availability of Evusheld in UK

First Obinutuzumab infusion tomorrow

Exercise and well-being sound bites and photos

EVOLVE trial for high risk chronic lymphocytic leukemia - CLL patients will test an early treatment intervention Vs watch and wait

World Vaccine Congress meeting in Washington this week

CLL husband just tested positive - now what?

Ibrutinib patent.

Cancer free

Covid positive

Two years of caution and now new opportunities. Opinions sought

Obinutuzumab life threatening reactions

The promise of Mix and Match COVID-19 vaccinations

Evusheld Antibody Result

Calquence and headaches

Sores on face and body

Positive after being negative

Leukaemia and stomach discomfort

Evusheld Authorized for Use in Canada

Map of Human Blood Stem Cell Development Created

Diagnosed with CLL

Medical Question

Spike Protein Antibody Test (UK)

CLL and Skin Cancer

Neutrophils and evosheld

Outstanding Information | Dr.Chris Fegan | Places mind at ease | valuable information to improve the patient and Dr. relationship

Forward momentum in Richters/DLBCL?

Paxlovid access expanding in Ontario amidst the 6th wave

effects of discontinguing taking calquence

Effects of Calquence on sperm

New neck lump came on quickly

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive