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CLL Support

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All posts for December 2021

I tried to donate

I filled out the form to make a monthly donation, however in Costa Rica we don't have countys, and the website would not accept a donation without one. I'd...

I filled out the form to make a monthly donation, however in Costa Rica we don't...

CCgroup

•2 years ago

11 Replies

FDA Authorizes New Long-Acting Monoclonal Antibodies (AZD7442 or EVUSHELD) for Pre-exposure Prevention of COVID-19 in Certain Individuals

CLL Society is excited to share the news that the monoclonal antibody treatment AZD7442 has just been approved for pre-exposure prevention of COVID19! It is...

CLL Society is excited to share the news that the monoclonal antibody treatment ...

nkclimbs

•2 years ago

7 Replies

Is anyone on zanbrutnib

Anyone on zanbrutnib

Mackiec1108

•2 years ago

10 Replies

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Omicron V antibody treatments

Its still early but some speculation regarding the effects of MABs and antivirrals on Omicron:...

Its still early but some speculation regarding the effects of MABs and antivirra...

Belfastbees

•2 years ago

7 Replies

Stem cell treatment and CLL

Hello, Does anyone with CLL have experience with stem cell treatment?

Green202

•2 years ago

3 Replies

Low protein levels in blood

I had my annual physical with my PCP recently and got lab results back yesterday. My proteins and Alkaline phosphatase were slightly low which has never been...

I had my annual physical with my PCP recently and got lab results back yesterday...

J1015

•2 years ago

4 Replies

Alkaline and cutting out on meat

Hi , a friend of mine has been telling me to check my PH on a daily basis and as far as I keep my body in alkaline mode and cut out on any acidic food cancer...

Hi , a friend of mine has been telling me to check my PH on a daily basis and as...

1234098

•2 years ago

22 Replies

Recently diagnosed with CLL and was wondering if I can still have massage and manicure/ pedicure.

Hi I have no symptoms as yet but spleen is enlarged and have few lymph nodes in my neck . Thank you for your time

Hi I have no symptoms as yet but spleen is enlarged and have few lymph nodes in ...

1234098

•2 years ago

20 Replies

FYI: Counterfeit Respirators / Misrepresentation of NIOSH-Approval - CDC Update Dec 1, 2021

Hello All, There has been chatter around fake masks lately. Here is the CDC link for an update....

Hello All, There has been chatter around fake masks lately. Here is the CDC lin...

Lavinia-Blue

•2 years ago

4 Replies

Fasting Mimicking Diet Improves Immune Function in Cancer Patients a new Study Shows

Hi Everyone. Since Professor Valter Longo showed improvements in mice with human CLL using his fasting mimicking diet during other standard therapies, I have...

Hi Everyone. Since Professor Valter Longo showed improvements in mice with huma...

dj02

•2 years ago

11 Replies

Xmas lunch with family

Hi all . I am concerned about having fully vaccinated family members for Xmas lunch. Is the risk worth taking? Otherwise it will be a second Xmas without...

Hi all . I am concerned about having fully vaccinated family members for Xmas lu...

Cazma

•2 years ago

28 Replies

Skin biopsy bleeding

Hi all, I started treatment in April (Ibrutinib) and it’s doing what it should do. I had a skin biopsy on my leg on Tuesday with 4 stitches. The wound is...

Hi all, I started treatment in April (Ibrutinib) and it’s doing what it should ...

Suzanne1970

•2 years ago

26 Replies

The combinations are here...

The future is getting very bright for CLL patients. Johnson & Johnson today announced the submission of a Type II variation application to the European...

The future is getting very bright for CLL patients. Johnson & Johnson today ann...

MovingForward4423

•2 years ago

7 Replies

Second-Generation BTK Inhibitors for CLL

A short video (or transcript) from PATIENT POWER "The approval of the first BTK inhibitor was a game changer for the treatment of CLL. In this video,...

A short video (or transcript) from PATIENT POWER "The approval of the first BTK ...

Jm954

Administrator•2 years ago

1 Reply

Length of remission after Ibrutinib discontinuation

From your experience, how long a CLL remission might last after the treatment with Ibrutinib has been stopped due to side effects ?

From your experience, how long a CLL remission might last after the treatment wi...

MikeOr

•2 years ago

7 Replies

Latest CBC is in, all good.

I'm happy about my neutrophils and platelets (both went higher) and I feel like I can safely go to have the third vaccine at the end of December (6 mo. after...

I'm happy about my neutrophils and platelets (both went higher) and I feel like ...

LeoPa

•2 years ago

2 Replies

Immune Issues

I was diagnosed about 2 and a half years ago and my Lab Results looking good, in fact today's lab results are better than they were when I first got diagnosed....

I was diagnosed about 2 and a half years ago and my Lab Results looking good, in...

Michael199

•2 years ago

5 Replies

Can't sleep

Hi, my partner has been in hospital for a few days, 3 pints of blood transfusion and starting his venetoclax retuximab journey today, my worry is, I'm still...

Hi, my partner has been in hospital for a few days, 3 pints of blood transfusion...

Alfiebhoy

•2 years ago

8 Replies

Latest JCVI advice - 3 month rule

The Latest JCVI advice says. Booster vaccination should now be offered in order of descending age groups, with priority given to the vaccination of older...

The Latest JCVI advice says. Booster vaccination should now be offered in order ...

RobertCLL

•2 years ago

4 Replies

Second monoclonal antibody cocktail (sotrovimab) approved in the UK

"Another COVID-19 treatment, Xevudy (sotrovimab), has today been approved by the Medicines and Healthcare products Regulatory Agency (MHRA) after it was found...

"Another COVID-19 treatment, Xevudy (sotrovimab), has today been approved by the...

bennevisplace

•2 years ago

3 Replies

Treating autoimmune hemolytic anemia (AIHA)

Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients....

Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymp...

SantaZia

•2 years ago

14 Replies

Mantle Cell Lymphoma...need best treatment options

Can anyone help with Mantle Cell Lymphoma and what treatments are available? I know this forum is for CLL/SLL but does anyone have any information on this? A...

Can anyone help with Mantle Cell Lymphoma and what treatments are available? I ...

DawnRedwood

•2 years ago

11 Replies

Immunisation course to maintain protection against SARS-CoV-2 (severe acute respiratory syndrome coronavirus 2)

This is the message on my GP's records for me. This was my 3rd dose, given on 4th October. According to the new announcements I should be getting the booster,...

This is the message on my GP's records for me. This was my 3rd dose, given on 4t...

Harvist

•2 years ago

7 Replies

JCVI advice on booster 4th jab

The UK Government has accepted the JCVI's advice, which is here:...

flyhigher

•2 years ago

1 Reply

Two things. White blood count creeping up. And waiting for results from spike protein test.

I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having...

I just went for my regular hematologist appointment. My white blood count hover...

elm1

•2 years ago

11 Replies

If I Knew what I know now

69 year old male with CLL--began treatment 3 years ago-Imbruvica {3x140 mg}-Learning as I go-- I believe I did the W&W longer than I needed --I should of been...

69 year old male with CLL--began treatment 3 years ago-Imbruvica {3x140 mg}-Lear...

wilhoitaz

•2 years ago

11 Replies

Asking friends for pre-gathering precautions

A group of friends (14 in total) want to host a Covid-safe outdoor gathering for my birthday. My husband, currently on Acalabrutinib, would join us. We’ve...

A group of friends (14 in total) want to host a Covid-safe outdoor gathering for...

OaktownA

•2 years ago

23 Replies

UK Webinar - 3.30pm GMT 17th December - Making the best of your CLL medical appointments

Hi friends you may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments,...

Hi friends you may find this Leukaemia Care webinar of interest. The webinar wil...

HAIRBEAR_UK

Founder Admin•2 years ago

2 Replies

IVIG seems to have shared some antibodies from previous COVID patient

This has been discussed before here, but want to add my bit. I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting IVIG for ITP (immune...

This has been discussed before here, but want to add my bit. I have had three Mo...

E-Lynn

•2 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2021

I tried to donate

FDA Authorizes New Long-Acting Monoclonal Antibodies (AZD7442 or EVUSHELD) for Pre-exposure Prevention of COVID-19 in Certain Individuals

Is anyone on zanbrutnib

Omicron V antibody treatments

Stem cell treatment and CLL

Low protein levels in blood

Alkaline and cutting out on meat

Recently diagnosed with CLL and was wondering if I can still have massage and manicure/ pedicure.

FYI: Counterfeit Respirators / Misrepresentation of NIOSH-Approval - CDC Update Dec 1, 2021

Fasting Mimicking Diet Improves Immune Function in Cancer Patients a new Study Shows

Xmas lunch with family

Skin biopsy bleeding

The combinations are here...

Second-Generation BTK Inhibitors for CLL

Length of remission after Ibrutinib discontinuation

Latest CBC is in, all good.

Immune Issues

Can't sleep

Latest JCVI advice - 3 month rule

Second monoclonal antibody cocktail (sotrovimab) approved in the UK

Treating autoimmune hemolytic anemia (AIHA)

Mantle Cell Lymphoma...need best treatment options

Immunisation course to maintain protection against SARS-CoV-2 (severe acute respiratory syndrome coronavirus 2)

JCVI advice on booster 4th jab

Two things. White blood count creeping up. And waiting for results from spike protein test.

If I Knew what I know now

Asking friends for pre-gathering precautions

UK Webinar - 3.30pm GMT 17th December - Making the best of your CLL medical appointments

IVIG seems to have shared some antibodies from previous COVID patient

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