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All posts for December 2021

UK NHS Green Book Chapter on covid

The full UK Green Book Chapter 14a on COVID-19 - SARS-CoV-2 dated 14 December 2021. 41 pages in total Hopefully, the most up to date information for the UK...

The full UK Green Book Chapter 14a on COVID-19 - SARS-CoV-2 dated 14 December ...

Jm954

Administrator•3 years ago

6 Replies

Was Exposed Two Days Ago

My wife was taking care of another person's baby two days ago and again today. Two days ago she brought the baby to our house and i didnt hold her but came...

My wife was taking care of another person's baby two days ago and again today. ...

wizzard166

•3 years ago

29 Replies

Booking a booster

I had my third dose on 9 October but as a priority person I’m being made to wait until 9 January for the booster which might save me and I can’t even book it....

I had my third dose on 9 October but as a priority person I’m being made to wait...

anapurna

•3 years ago

6 Replies

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Covid 19 Vaccine antibody results

Following previous mention of Monitor My Health, thought I would get an antibody test ( previously shown as negative on NHS antibody test). Slightly...

Following previous mention of Monitor My Health, thought I would get an antibody...

richardp

•3 years ago

5 Replies

UK Webinar this Friday - 3.30pm GMT 17th December - Making the best of your CLL medical appointments

Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their...

Hi friends a reminder - You may find this Leukaemia Care webinar of interest....

HAIRBEAR_UK

Founder Admin•3 years ago

1 Reply

CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates

ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase...

ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates o...

bkoffman

CLL CURE Hero•3 years ago

4 Replies

CLL/SLL Ongoing

Hi all, I was diagnosed December 17th 2020, been told I have had CLL SLL for a while. My only symptoms and still are that I have large swollen lymph nodes in...

Hi all, I was diagnosed December 17th 2020, been told I have had CLL SLL for a w...

uide3095

•3 years ago

7 Replies

Info for AussieNeil

Hi Neil, You have asked repeatedly about ivermectin reports, so here are two links that should provide information....

Hi Neil, You have asked repeatedly about ivermectin reports, so here are two li...

danimal7777

•3 years ago

20 Replies

NO Spike protein Antibodies after 2 Moderna shots and Booster.

I expected this result but I was still hoping I had made antibodies to the covid vaccine. These are the results. <13.0 IgG .. no detectable antibodies against...

I expected this result but I was still hoping I had made antibodies to the covid...

Ginajetta

•3 years ago

7 Replies

Please Help with the Global Leukaemia Patient Experience Survey 2021

The CLL Advocates Network (CLLAN) in partnership with Acute Leukemia Advocates Network (ALAN) and the CML Advocates Network (CMLAN) are running a Global...

The CLL Advocates Network (CLLAN) in partnership with Acute Leukemia Advocates N...

Jm954

Administrator•3 years ago

16 Replies

Acalabrutinib

Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up from 106 so normal now and no anaemia. White cell count 24.5...

Hi all, had my appointment with my consultant this afternoon. All good news. He...

kitchengardener2

•3 years ago

35 Replies

Confused?

Hi All, sorry for the confusion in my last post, I got my RBC mixed up with my Platlets. Ron

Hi All, sorry for the confusion in my last post, I got my RBC mixed up with my P...

Vindicatrix

•3 years ago

3 Replies

Any idea's

Hi All, my bloods were done three weeks ago, prior to seeing my Haemo Man, for the first face to face, in 20 months or so. It went well and I was told that...

Hi All, my bloods were done three weeks ago, prior to seeing my Haemo Man, for ...

Vindicatrix

•3 years ago

2 Replies

Are fungal infections, particularly toe nail fungus, worse for those with CLL?

My husband is still on watch and wait so no immunosuppressant drugs yet but his toe nails are the worst they have ever been .

My husband is still on watch and wait so no immunosuppressant drugs yet but his ...

Leo71

•3 years ago

7 Replies

Dr. Brian Koffman reports on the 6 CLL-focused oral presentations from Day 1.

Highlights from the First Day of ASH 2021! Dr. Brian Koffman reports on the 6 CLL-focused oral presentations from Day 1. Learn more about the increasing...

Highlights from the First Day of ASH 2021! Dr. Brian Koffman reports on the 6 CL...

bkoffman

CLL CURE Hero•3 years ago

14 Replies

Anyone had hot sweats on O&V? Is it normal?

Hi I am about to start 100mg of Venetoclax on Tuesday but since I've been on the 50mg dosage I have had really hot spells where it feels like I have sunburn on...

Hi I am about to start 100mg of Venetoclax on Tuesday but since I've been on the...

ChuckyB

•3 years ago

3 Replies

tv ads for Leukemia drugs

this is why you are seeing ads for Leukemia drugs on tv .. this is from wikipedia ----"According to Reuters 2016 Drugs to Watch, the 2020 forecast sales for...

this is why you are seeing ads for Leukemia drugs on tv .. this is from wikipedi...

craterlake

•3 years ago

Be the first to reply

antibody testing

I'm scheduled for regular blood tests and hematologist meeting next week. I emailed asking for an antibody test along with my regular workup. Surprisingly to...

I'm scheduled for regular blood tests and hematologist meeting next week. I emai...

fishnman

•3 years ago

62 Replies

MABs - Encouraging, but not really

Couple things…. 1. Has anyone taking Calquence received a MAB infusion? Waiting to hear from my Dr to confirm it’s safe and doesn’t cause any drug...

Couple things…. 1. Has anyone taking Calquence received a MAB infusion? Waiting ...

OaktownN

•3 years ago

12 Replies

CLL with AIHA

I have been on W&W for just over 2 years then became unwell a few weeks ago and was admitted to hospital with Auto Immune Haemolytic Anaemia (AIHA). It is...

I have been on W&W for just over 2 years then became unwell a few weeks ago and ...

Wen_dy

•3 years ago

9 Replies

GL64

My wife has CLL and has been diagnosed with RSV. Looking if any othe CLL patients have had and what treatment was used for combating RSV I know it can be...

My wife has CLL and has been diagnosed with RSV. Looking if any othe CLL patien...

GL64

•3 years ago

7 Replies

Evusheld Has anybody heard when and where we can get it.

I'd like to be able to get it before Christmas. And once you have the shot how long before you have protection? john

I'd like to be able to get it before Christmas. And once you have the shot how l...

johnliston

•3 years ago

18 Replies

Zanubrutinib

Hi, I am currently going to be starting treatment and have been ask to take part in a clinical trial with a drug called Zanubrutinib and wondered if anyone...

Hi, I am currently going to be starting treatment and have been ask to take par...

Hidden

•3 years ago

2 Replies

AstraZenaca Covid Antibody Injection

I wonder what the LLS statement, and other CLL experts recommendation will be on the newly FDA approved 2 Covid Antibody Injections will be.

I wonder what the LLS statement, and other CLL experts recommendation will be on...

Davidcara

•3 years ago

3 Replies

Evushield Approval for IC

Great development for those of us IC as I am since I take ibrutinib daily. Selfishly, I admit, I might be able to take an ocean cruise in the spring that we...

Great development for those of us IC as I am since I take ibrutinib daily. Self...

Jvanfire

•3 years ago

Be the first to reply

What is coming next ?

I was diagnosed 2 years ago, aged 49. I have been on a watch & Waitlist. My symptoms are developing. My white blood cells are increasingly rapidly. My...

I was diagnosed 2 years ago, aged 49. I have been on a watch & Waitlist. My sym...

Hidden

•3 years ago

6 Replies

Real World Data on the Outcomes of Richter’s Transformation of CLL and SLL in the Australian population

Interesting ASH Poster (1445) on the characteristics and outcomes of a relatively large number of Richter's patients in Australia. The charts are easier to...

Interesting ASH Poster (1445) on the characteristics and outcomes of a relative...

Jm954

Administrator•3 years ago

2 Replies

Omicron variant, antibodies, T-cells

Highlights from a short item in the BBC Radio 4 programme "Inside Science" today https://www.bbc.co.uk/sounds/play/m001283q - Evidence is trickling in that...

Highlights from a short item in the BBC Radio 4 programme "Inside Science" today...

bennevisplace

•3 years ago

7 Replies

blood counts and booze

It's been a long time since I've posted. Thankfully, my husband has been living a good life since surviving 6 months of FCR back in 2013. His blood counts...

It's been a long time since I've posted. Thankfully, my husband has been living...

dwolden

•3 years ago

12 Replies

At last! Booster vaccine after 3rd dose. Process is working

Today I received a phone call from my local GP vaccine group. They asked me to book a booster in January. First question was "Did I want one!" Very helpful...

Today I received a phone call from my local GP vaccine group. They asked me to b...

Harvist

•3 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2021

UK NHS Green Book Chapter on covid

Was Exposed Two Days Ago

Booking a booster

Covid 19 Vaccine antibody results

UK Webinar this Friday - 3.30pm GMT 17th December - Making the best of your CLL medical appointments

CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates

CLL/SLL Ongoing

Info for AussieNeil

NO Spike protein Antibodies after 2 Moderna shots and Booster.

Please Help with the Global Leukaemia Patient Experience Survey 2021

Acalabrutinib

Confused?

Any idea's

Are fungal infections, particularly toe nail fungus, worse for those with CLL?

Dr. Brian Koffman reports on the 6 CLL-focused oral presentations from Day 1.

Anyone had hot sweats on O&V? Is it normal?

tv ads for Leukemia drugs

antibody testing

MABs - Encouraging, but not really

CLL with AIHA

GL64

Evusheld Has anybody heard when and where we can get it.

Zanubrutinib

AstraZenaca Covid Antibody Injection

Evushield Approval for IC

What is coming next ?

Real World Data on the Outcomes of Richter’s Transformation of CLL and SLL in the Australian population

Omicron variant, antibodies, T-cells

blood counts and booze

At last! Booster vaccine after 3rd dose. Process is working

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