Is anyone on zanbrutnib: Anyone on zanbrutnib - CLL Support

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Is anyone on zanbrutnib

Mackiec1108 profile image
10 Replies

Anyone on zanbrutnib

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Mackiec1108 profile image
Mackiec1108
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10 Replies
GRMat158 profile image
GRMat158

Yes, been on a clinical trial for just over two years. It has certainly been effective for me and no significant side effects - was there anything specific you wanted to know?

Mackiec1108 profile image
Mackiec1108 in reply toGRMat158

Thank you! My concern is the side effects of diarrhea and constipation. I was on Acalabrutnib for a few months but the fatigue and muscle weakness were too bad to continue. Zanbrutnib will probably be my next line of treatment. Thank you!

GRMat158 profile image
GRMat158 in reply toMackiec1108

Haven't experienced either of those - although, of course, everyone is affected in different ways. The only recurrent side effect I have had is a tendency to bruise very easily - but it hasn't been a serious problem.

Mackiec1108 profile image
Mackiec1108 in reply toGRMat158

Thank you

MaxSmart profile image
MaxSmart

I am.

Mackiec1108 profile image
Mackiec1108

Thank you. Have you experienced any side effects?

MaxSmart profile image
MaxSmart

for me there’s much less side effects than Calquence or Ibrutinib

Zia2 profile image
Zia2

I’ve been on it if you want to read my recent posts.

Charredswiss profile image
Charredswiss in reply toZia2

How do I read your posts on Zanubrutinib

Zia2 profile image
Zia2 in reply toCharredswiss

Click on my name I believe.

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