About 2 years before my cLL diagnosis I started to get bad reactions to insect bites. First noticed it in Miami where I got bitten by a bed bug. Following on from that I would get bitten on every trip, and all most every time I would react badly and end up on IV antibiotics because they got infected. Since starting Ibrutinib I noticed that I wasn’t reacting quite as much to bites received in the UK…..hallelujah I thought. Well I just returned from the Med, where I got 10 mosquito bites, had a bad reaction and one got infected. Luckily I had some Flucloxacillin left over, and was able to take it quickly before the infection took hold.
When I mention insect bites to all the consultants they don’t really have any explanation. Before cLL I never reacted, and in fact never ever noticed bites when I travelled across east Asia and India. Im getting to the point when travelling anywhere is difficult. Insurance is probably going to stop covering me soon because of the claims. IV antibiotics is not cheap.
I’m thinking of seeing an allergist to try and get some advice or at least a view of what I can do to prevent the reactions. Maybe this is just part and parcel of CLL and my broken immune system?
If anyone has any advise (apart from preventing bites, I do everything to avoid them) I would like to hear it. Is there any research or documentation?