Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,949 posts

All posts for April 2020

Could CLL be related to a longer incubation period for Covid-19?

https://www.mdedge.com/hematology-oncology/article/220184/coronavirus-updates/case-study-shows-cll-may-mask-covid-19

https://www.mdedge.com/hematology-oncology/article/220184/coronavirus-updates/ca...

hsouter

•5 years ago

11 Replies

UK volunteers scheme

In case you didn't see news. There is at last a help line if people shielding need any help....

In case you didn't see news. There is at last a help line if people shielding ne...

aloneifly

•5 years ago

Be the first to reply

Any one else have issues with night sweats?

I'm having a lot of issues with night sweats. I have CLL/SLL and have had night sweats for about a year and a half. They are getting worse and worse. I have to...

I'm having a lot of issues with night sweats. I have CLL/SLL and have had night ...

Packers46

•5 years ago

11 Replies

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What is the way out of this !

Hi I am 51 and just started on Venetoclax after a resistance to Ibrutinib. I have already had a couple of near misses this year with 10 weeks in Hospital...

Hi I am 51 and just started on Venetoclax after a resistance to Ibrutinib. I h...

Dell49

•5 years ago

28 Replies

For those of you on Ibrutinib- what foods have you been avoiding?

When I started on IB I was advised to omit grapefruit and Seville oranges from my diet ( as all of you also have). Are there any other foods we should be...

When I started on IB I was advised to omit grapefruit and Seville oranges from ...

steve_canada

•5 years ago

19 Replies

Understanding the CLL micro-environment may ultimately lead us to better control of the disease.

In This Week’s Alert: CLL Society's 2019 ASH interview with Dr. Brian Koffman in which Dr. Neil Kay reinforces the idea that the course of CLL is influenced...

In This Week’s Alert: CLL Society's 2019 ASH interview with Dr. Brian Koffman in...

bkoffman

CLL CURE Hero•5 years ago

13 Replies

Imbruvica cost increase CORRECTION

I now discover that Abbvie did NOT increase their price. For some reason my copay under Medicare Part D has gone up without any increase in the price of the...

I now discover that Abbvie did NOT increase their price. For some reason my copa...

DelrayDave

•5 years ago

2 Replies

A great video for understanding how the COVID-19 virus invades cells and why zinc in the cells stops it from replicating

https://www.youtube.com/watch?v=Eeh054-Hx1U

HowardR

•5 years ago

3 Replies

Stay healthy everyone

Below is a free site with amazing live cam imagines. It’s quite relaxing 😌 especially with all that’s happening... It’s even better to download the app...

Below is a free site with amazing live cam imagines. It’s quite relaxing 😌 esp...

WinJ3

•5 years ago

1 Reply

Richter's transformation.

Hello everyone. Been a little out of the way this month. The news of Dave's death left me very emotionally ill. I got to know him and currently I still don't...

Hello everyone. Been a little out of the way this month. The news of Dave's deat...

Priss69

•5 years ago

17 Replies

UK CLL Forum *Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.

The UK CLL Forum is the special interest group for medical doctors in UK with an interest and working in the clinical field of CLL management. They have...

The UK CLL Forum is the special interest group for medical doctors in UK with an...

Jm954

Administrator•5 years ago

12 Replies

CLLSA statement

Could you tell me where to find the Cllsa statement regarding Coronavirus please . One of the contributors referred to it when replying to someone from...

Could you tell me where to find the Cllsa statement regarding Coronavirus please...

Hilo13

•5 years ago

2 Replies

Covid-19 symptoms in seniors/different?

https://www.cnn.com/2020/04/23/health/seniors-elderly-coronavirus-symptoms-wellness-partner/index.html ~ Yuck

https://www.cnn.com/2020/04/23/health/seniors-elderly-coronavirus-symptoms-welln...

Yuck

•5 years ago

4 Replies

CLL & Fasting in Ramadan

Dear Readers, I just wanted to ask if it was ok to fast in Ramadan. It’s the first time I’m fasting since being diagnosed with CLL and on W & W. I don’t want...

Dear Readers, I just wanted to ask if it was ok to fast in Ramadan. It’s the fir...

Pav545

•5 years ago

7 Replies

Imruvica copay up.

I was told that my monthly copay (Medicare Part D) is up again. This is the first time has happened twice in one year. Last raise was January. I originally...

I was told that my monthly copay (Medicare Part D) is up again. This is the firs...

DelrayDave

•5 years ago

10 Replies

New Frightening Discovery About COVID-19

I just read an article in the Washington Post about doctors around the USA being frightened by a new discovery about the Corona Virus. I wanted to pass this...

I just read an article in the Washington Post about doctors around the USA being...

wizzard166

•5 years ago

36 Replies

FDA approval

I just read an article that stated that the FDA approves Ibrutinib plus rituximab for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912...

I just read an article that stated that the FDA approves Ibrutinib plus rituxima...

kathymac52

•5 years ago

1 Reply

Silent hypoxia; measure your Oxygen

New York Times article on the virus: https://www.nytimes.com/2020/04/20/opinion/coronavirus-testing-pneumonia.html Worth a read! Best everyone! ~ Yuck

New York Times article on the virus: https://www.nytimes.com/2020/04/20/opinion/...

Yuck

•5 years ago

8 Replies

FDA approves ibrutinib plus rituximab for chronic lymphocytic leukemia

https://www.fda.gov/drugs/drug-approvals-and-databases/fda-approves-ibrutinib-plus-rituximab-chronic-lymphocytic-leukemia?fbclid=IwAR02tCtziW0mkgktq3Pg_o5drjFaH

https://www.fda.gov/drugs/drug-approvals-and-databases/fda-approves-ibrutinib-pl...

chickenandwaffles

•5 years ago

1 Reply

How to Tell the Difference Between COVID-19 and Seasonal Allergies

How to Tell the Difference Between COVID-19 and Seasonal Allergies...

lankisterguy

Volunteer•5 years ago

2 Replies

Problems with pharmacy UK

Hello all, Whilst searching online for problems with the postal service in my area I found this link on the PostOffice website....

Hello all, Whilst searching online for problems with the postal service in my ar...

mrsjsmith

•5 years ago

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CLL diagnosed 10 Years ago!

Does anyone have a WBC over 200,000 and is still on w & w with no other symptoms...oh i did need 1 pt. Of blood 6 weeks ago.

Does anyone have a WBC over 200,000 and is still on w & w with no other symptoms...

Candy1015

•5 years ago

12 Replies

Drive Through Blood Test

For those in the UK, is your hospital providing drive through blood tests? I have a consultants telephone appointment in the next 3 weeks, so a blood draw is...

For those in the UK, is your hospital providing drive through blood tests? I ha...

RobertCLL

•5 years ago

10 Replies

worth looking at viagra?

Has any male CLL patient taken viagra? Are there any issues for us CLL males? I am in the UK where you can get viagra over the counter. Thanks

Has any male CLL patient taken viagra? Are there any issues for us CLL males? I ...

Clovelly

•5 years ago

10 Replies

Shingles and lymphocyte count

I was diagnosed with shingles three months ago. I had a blood test a couple of days ago and my lymphocyte count had risen from 2 to 6.7 over three months. I...

I was diagnosed with shingles three months ago. I had a blood test a couple of d...

MrMidnight

•5 years ago

2 Replies

Imbruvica fails?? Whats next?

My brother started in july 2018 his monoteraphy treatment for a relaspsed cll with ibutrinib, and works well this time. His levels in analytics are normal...

My brother started in july 2018 his monoteraphy treatment for a relaspsed cll wi...

Cgr2018

•5 years ago

19 Replies

What is Sepsis?

The linked two-page Patient Education Information Series about sepsis is a succinct, yet thorough rundown for patients. How does Sepsis develop? ...

The linked two-page Patient Education Information Series about sepsis is a succi...

cllady01

Former Volunteer•5 years ago

4 Replies

Eat fish to help protect yourself from COVID-19?

Many of the older religions include ritual practices that just happen to help their adherents survive plagues. Jews, for example, adopted ritual hand-washing...

Many of the older religions include ritual practices that just happen to help th...

HowardR

•5 years ago

11 Replies

Naked Scientist Podcast: COVID- 19 mutations - 25 min -

https://podcasts.apple.com/us/podcast/naked-genetics-from-the-naked-scientists/id527187069?i=1000471544600 From Naked Scientist series - the Naked Geneticist...

https://podcasts.apple.com/us/podcast/naked-genetics-from-the-naked-scientists/i...

db601

•5 years ago

2 Replies

Food Parcels

Got my first food parcel today. I was having a lie in and got rudely woken up LOL. No idea what`s in it as I`ve not opened it yet. Wiped it down and then left...

Got my first food parcel today. I was having a lie in and got rudely woken up LO...

nanasu

•5 years ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2020

Could CLL be related to a longer incubation period for Covid-19?

UK volunteers scheme

Any one else have issues with night sweats?

What is the way out of this !

For those of you on Ibrutinib- what foods have you been avoiding?

Understanding the CLL micro-environment may ultimately lead us to better control of the disease.

Imbruvica cost increase CORRECTION

A great video for understanding how the COVID-19 virus invades cells and why zinc in the cells stops it from replicating

Stay healthy everyone

Richter's transformation.

UK CLL Forum *Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.

CLLSA statement

Covid-19 symptoms in seniors/different?

CLL & Fasting in Ramadan

Imruvica copay up.

New Frightening Discovery About COVID-19

FDA approval

Silent hypoxia; measure your Oxygen

FDA approves ibrutinib plus rituximab for chronic lymphocytic leukemia

How to Tell the Difference Between COVID-19 and Seasonal Allergies

Problems with pharmacy UK

CLL diagnosed 10 Years ago!

Drive Through Blood Test

worth looking at viagra?

Shingles and lymphocyte count

Imbruvica fails?? Whats next?

What is Sepsis?

Eat fish to help protect yourself from COVID-19?

Naked Scientist Podcast: COVID- 19 mutations - 25 min -

Food Parcels

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