One Day at a Time: Hi CLL People, It's been a... - CLL Support

CLL Support

23,324 members40,029 posts

One Day at a Time

mister_Ian_NE profile image
6 Replies

Hi CLL People,

It's been a while since I posted (4 years while to be more precise) and in that time I've been doing exactly as above - taking it 1 day at a time.

I have little to report - my bloods have remained pretty constant and my hospital doctor (I have no Consultant) said at our last meeting that they were near normal which left me afterwards thinking "have I actually got CLL? Yes of course I have - all the typical symptoms are there - principally the fatigue and insomnia, but no swellings thank goodness. I continue to be on Watch and Wait with 6-monthly blood tests.

So, I shall continue as I am having passed the 70 mark, enjoying life the best I can with the occasional burst of excitement, the last of which was jumping out of a perfectly good airplane at 15,000 feet and performing a sponsored tandem Sky Dive in aid of Leukaemia Care.

Best wishes to All :)

Written by
mister_Ian_NE profile image
mister_Ian_NE
To view profiles and participate in discussions please or .
Read more about...
6 Replies
gardening-girl profile image
gardening-girl

mister_Ian_NE, a borderline believable feat, but I do actually believe you, and I thank you for your effort on behalf of Leukaemia Care!

I plan to join others in an LLS Light the Night fundraising event in October, but will definitely keep both feet on the ground. I could never do what you did!

gardening-girl

OmBewok profile image
OmBewok

Wow!! sounds like a great life! That's very encouraging news to hear. But I'll keep my travels to the inside of the plane if I may! Regards,

Om

haposwald profile image
haposwald

That’s awesome! What I did was make a deal with hematologist/oncologist at that time when I wondered if I even had the disease. Once a year visit but if I noticed anything at all I’d make the appt. it worked for a couple years which was a good rest from the CLL blues! Good luck

Smakwater profile image
Smakwater

High Altitude, Low opening.

Long Freefall - Take it All!!

JM

mister_Ian_NE profile image
mister_Ian_NE in reply toSmakwater

No Sir,

15,000feet ...... first 10,000 free-falling maxing at 120mph then a gentle glide down to earth for the last 5,000.

Happy Landing :) :)

Peggy4 profile image
Peggy4

I did that too and would go up again in a heartbeat. Great fun 🤣

Peggy

Not what you're looking for?

You may also like...

One day at a time

Just diagnosed with cll andsll. I have just returned from Mdanderson after having a bone marrow...

Treatment time, hard choice!

Like others have written, it is time for my treatment, and the decision on which to choose is...
NaturalWaze profile image

remembering Chris Dwyer

Many in our community including myself owe much to Chris Dwyer. His death came not so much as a...
ThreeWs profile image

a diagnosis at last

saw consultant yesterday I have almost completed diagnosis few more tests to come . it would seem...
Hilo13 profile image

Should "Remission" be accompanied by a Health Warning?

I have been trying to understand why, after being in remission for nine months, I am confused and...

Moderation team

See all
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator
AussieNeil profile image
AussieNeilAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.