Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,948 posts

All posts for January 2019

Pharma Making $$ Hand Over Fist on Oncology Drugs

Read it and weep! (Or check your wallet at your cancer door.)...

cujoe

•6 years ago

8 Replies

Update from first hospital appointment today

Hi just to let everyone know my husband has had results after first 6 month checkup and it's good news absolutely no change in his bloods at all since May...

Hi just to let everyone know my husband has had results after first 6 month chec...

Paula1975

•6 years ago

7 Replies

A positive message for 2019 from Cancer 52

https://vimeopro.com/warnervision/cancer52-2019-and-beyond

Myrddin

•6 years ago

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Advances in Front-line Treatment of CLL

To Register follow this link https://register.gotowebinar.com/register/7737714520427393537?mc_cid=425c0d28d6&mc_eid=7b399e8498 Thanks to Len for this... hope...

To Register follow this link https://register.gotowebinar.com/register/77377145...

Cllcanada

NCBI Journal - Cannabis Extract Treatment for Terminal Acute Lymphoblastic Leukemia with a Philadelphia Chromosome Mutation

Hi, I am new here and I stumbled across this site whilst researching and thought this information may be of interest here. I found this paper a while back...

Hi, I am new here and I stumbled across this site whilst researching and thought...

Khenet

•6 years ago

14 Replies

Swollen paraaortic lymph nodes

I have been stage 0 for 8 years. This year I developed pneumonia and months later a severe rash in my face and stomach. I was tested by a dermatoligist with...

I have been stage 0 for 8 years. This year I developed pneumonia and months late...

Mamouchi

•6 years ago

6 Replies

Traveling

We are traveling to Europe from US n In April. With Imbruvica we are suppose to take the 3 pills at same time every day. I take my pills at 9pm every night. My...

We are traveling to Europe from US n In April. With Imbruvica we are suppose to ...

Audrey10

•6 years ago

4 Replies

Specialty Treatment Center vs local oncologist

Hello Community. I am pleased to find you. I am new to this support site and very new to CLL. I've been diagnosed in the last two weeks. I am waiting to...

Hello Community. I am pleased to find you. I am new to this support site and v...

sophia60

•6 years ago

11 Replies

New York City -- CLL Patient Support Group Sunday February 3, 2019 from 3pm – 5pm 1305 York Ave, New York, NY (Manhattan)

The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet on the first Sunday in...

The CLL Society invites you to our support group sponsored by the CLL Society Su...

lankisterguy

Volunteer•6 years ago

2 Replies

New York City -- CLL Patient Support Group Sunday January 13, 2019 from 3pm – 5pm 1305 York Ave, New York, NY (Manhattan)

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL...

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Gro...

lankisterguy

Volunteer•6 years ago

2 Replies

should I seek quicker help for my newly acquired Aortic stenosis

I am on w&w for CLL. However I have now developed acute Aortic Stenosis. I am 93 and reasonably fit for my age, 2 hours tennis, 3 hours gym, per week....

I am on w&w for CLL. However I have now developed acute Aortic Stenosis. I am ...

calebF

•6 years ago

6 Replies

Starting Bendamustine tomorrow

Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as...

Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular...

Finschick

•6 years ago

1 Reply

Lymphocytic colitis

Good morning, I am experiencing mucous colitis, and think it may be "Lymphocytic colitis" Has anyone experienced this? Thank you, Winsey

Good morning, I am experiencing mucous colitis, and think it may be "Lymphocytic...

Winsey

•6 years ago

3 Replies

Night Sweats

I posted this on the online community page but it didn't seem to go anywhere so then I found this area ... so here goes. I am fairly newly diagnosed with CLL...

I posted this on the online community page but it didn't seem to go anywhere so ...

kitchengardener

•6 years ago

10 Replies

Clarity is a trial of 50 CLL patients from across the UK who have had chemotherapy but whose disease has returned. Sponsored by the charity

https://www.bbc.com/news/stories-42920045?fbclid=IwAR0MiXxk6RODFKPX1RK0NsQuTFWwpcZFr6HpMJJwzvJ-M_FVVTPWiQO-tpo

https://www.bbc.com/news/stories-42920045?fbclid=IwAR0MiXxk6RODFKPX1RK0NsQuTFWwp...

laJaq

•6 years ago

1 Reply

First 6month checkup diagnosed July 2018 very nervous.

Any advise feeling very anxious my husband was diagnosed with cll last year..first 6month appointment Tuesday coming and I feel sick with worry again does this...

Any advise feeling very anxious my husband was diagnosed with cll last year..fir...

Paula1975

•6 years ago

24 Replies

Why exercise alone won’t save us

Sedentary lifestyles are killing us – we need to build activity into our everyday lives, not just leave it for the gym. By Vybarr Cregan-Reid The long read...

Sedentary lifestyles are killing us – we need to build activity into our everyd...

lankisterguy

Volunteer•6 years ago

11 Replies

Hospice / Pallative Care / Supportive Care for Blood Cancer patients is not suggested soon enough

Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN...

Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2...

lankisterguy

Volunteer•6 years ago

13 Replies

Newbie4

I have had CLL for 30yearsand I willbe starting Imbruvica tomorrow. I have previously been on Leukeran. I am very excited to be able to be on Imbruvica.

I have had CLL for 30yearsand I willbe starting Imbruvica tomorrow. I have prev...

Panz

•6 years ago

59 Replies

ibrutinib, opposite effect.

Hi there everyone, Hope everyone is doing well. Happy New Year! I am writing this post because my dad just started ibrutinib on December 19 2018 and has went...

Hi there everyone, Hope everyone is doing well. Happy New Year! I am writing thi...

aj33

•6 years ago

46 Replies

Imbrutinib and AFIB

I have been on Imbrutinib for 20 months with great success until I developed AFIB 5 months ago. My Cardiologist said it was a direct side effect of the...

I have been on Imbrutinib for 20 months with great success until I developed AFI...

Namor1al

•6 years ago

21 Replies

Cll, venclexta, and anemia

My husband was diagnosed in 2017 with cll, he began treatment with Ibrutinib but taken off with anemia, possible pneumonia, and hospitalized. Next treatment...

My husband was diagnosed in 2017 with cll, he began treatment with Ibrutinib but...

kulachick

•6 years ago

6 Replies

Antioxidants: good, bad or indifferent...

How well, I remember my Merlot cure of 2012... Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with fludarabine......

How well, I remember my Merlot cure of 2012... Resveratrol a stilbenoids, has be...

Cllcanada

CLL diagnoised in May 2018

Diagnosed in May 2018. New to the group and have been unable to find any support group. It is strange that people say you are lucky it is a mild form of...

Diagnosed in May 2018. New to the group and have been unable to find any support...

CharlesLove

•6 years ago

11 Replies

Anyone?

Been under W&W until last month! Became very anemic! Just has bone marrow biopsy yesterday. Had blood transfusion tiday. My blood count got down to 6.8....

Been under W&W until last month! Became very anemic! Just has bone marrow biop...

Mimi4times

•6 years ago

37 Replies

New Years Good News

Had the best appointment I've ever had with my CLL expert. Every single blood number is in the normal range, no enlarged lymph nodes, no enlarged or bad...

Had the best appointment I've ever had with my CLL expert. Every single blood n...

Eagle5327

•6 years ago

25 Replies

Shingrix Vaccine - Experience of Others...?

I am considering having the Shingrix vaccine (first in series of two), and I'm wondering if anyone has suggestions on what to do to help with the apparently...

I am considering having the Shingrix vaccine (first in series of two), and I'm w...

Hidden

•6 years ago

26 Replies

CLL and B12 injections

Hi Can anybody give me any advice on whether or not it is safe to have B12 injections. I have Been living with CLL for five years now. I get pretty lethargic...

Hi Can anybody give me any advice on whether or not it is safe to have B12 injec...

john133

•6 years ago

8 Replies

Naturopathic approach

Anyone here doing non-traditional treatment for their CLL? Looking for those who are taking a more naturopathic route.

Anyone here doing non-traditional treatment for their CLL? Looking for those wh...

KHuff

•6 years ago

5 Replies

3 On-Line Immunology Courses are Being Offered by Rice University, Houston

If you have some college biology under your belt, Rice University in Houston has recently moved their on-line immunology courses from the EdX.org platform to...

If you have some college biology under your belt, Rice University in Houston has...

SeymourB

•6 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2019

Pharma Making $$ Hand Over Fist on Oncology Drugs

Update from first hospital appointment today

A positive message for 2019 from Cancer 52

Advances in Front-line Treatment of CLL

NCBI Journal - Cannabis Extract Treatment for Terminal Acute Lymphoblastic Leukemia with a Philadelphia Chromosome Mutation

Swollen paraaortic lymph nodes

Traveling

Specialty Treatment Center vs local oncologist

New York City -- CLL Patient Support Group Sunday February 3, 2019 from 3pm – 5pm 1305 York Ave, New York, NY (Manhattan)

New York City -- CLL Patient Support Group Sunday January 13, 2019 from 3pm – 5pm 1305 York Ave, New York, NY (Manhattan)

should I seek quicker help for my newly acquired Aortic stenosis

Starting Bendamustine tomorrow

Lymphocytic colitis

Night Sweats

Clarity is a trial of 50 CLL patients from across the UK who have had chemotherapy but whose disease has returned. Sponsored by the charity

First 6month checkup diagnosed July 2018 very nervous.

Why exercise alone won’t save us

Hospice / Pallative Care / Supportive Care for Blood Cancer patients is not suggested soon enough

Newbie4

ibrutinib, opposite effect.

Imbrutinib and AFIB

Cll, venclexta, and anemia

Antioxidants: good, bad or indifferent...

CLL diagnoised in May 2018

Anyone?

New Years Good News

Shingrix Vaccine - Experience of Others...?

CLL and B12 injections

Naturopathic approach

3 On-Line Immunology Courses are Being Offered by Rice University, Houston

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