Starting Bendamustine tomorrow : Hi there! I’m a... - CLL Support

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Starting Bendamustine tomorrow

Finschick profile image
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Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼

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Finschick
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wmay13241

I wish you the best Finschick. Here is my wife's experience. In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 3 years she progressed after R-CHOP (6 cycles), bendamustine/rituximab (6 cycles), and Ibrutinib (12 months). Then she took Idelalisib/rituximab as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again. She is now in an NIH CAR-T trial NCT02659943 was infused on March 2, 2016. As of January 8, 2019, she has been in complete remission for 34 months. Clinical trial studies show that CAR-T cells may result in long-lasting remissions for some people who have follicular lymphoma. There is more information on CAR-T for fNHL patients and people considering CAR-T at fnhlben.wordpress.com/

Other non-Hodgkin lymphoma sites I visit often are:

lymphobob.blogspot.com/

lymphomation.org/#what-is-new

lymphoma.org/ (look for free "Ask the Doctor" meetings near where you live)

lls.org/

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