Had the best appointment I've ever had with my CLL expert. Every single blood number is in the normal range, no enlarged lymph nodes, no enlarged or bad anything else. Everything is stable and I feel great. Woohoo!
I'm one of many "every patient is different" cases. Mine involves first-line treatment in a clinical trial, spectacular failure on idelalisib, relapse, spread of CLL to the central nervous system (complete with seizures and permanent partial blindness), good response to brain chemo for the CLL, and subsequent intolerance of ibrutinib.
Now, wonderful success with acalabrutinib. No adverse side effects to speak of.
All is good! When I was first diagnosed, everyone told me that blood cancer research was moving fast and that new and amazing treatments were on the way. I didn't believe them at first. Now I do!
There's good hope for everyone. Happy New Year to all!