should I seek quicker help for my newly acquir... - CLL Support

CLL Support

24,045 members40,899 posts

should I seek quicker help for my newly acquired Aortic stenosis

calebF profile image
6 Replies

I am on w&w for CLL. However I have now developed acute Aortic Stenosis.

I am 93 and reasonably fit for my age, 2 hours tennis, 3 hours gym, per week.

Symptoms tiredness, fatigue, lack of stamina, congested lungs, cognitive problems.

The cardiologist says I will die within the next 2 years of the condition, but if I get a replacement heart valve I could be good for another 5 years.

8 month waiting list for a TAVI, is that Ok or should I seek to get it done sooner

CalebF

Written by
calebF profile image
calebF
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Spacee profile image
Spacee

Wait for the TAVI. Do NOT let them crack you open. Much better to have a catheter go to your heart. My brother is an CRNA (certified nurse anesthetist) who has put ppl to sleep for heart surgery and that is his

recommendation. Just kinda take it a bit easier until the 8 months is up.

Not cut out everything. But you know, a bit slower, cut the time down, that sort of thing.

I care,

Linda

calebF profile image
calebF in reply toSpacee

Thanks Spacee. That's my feeling, no surgery at my age , not afraid of dying, just want to enjoy life a little longer

Spacee profile image
Spacee in reply tocalebF

Absolutely!!

Raglan profile image
Raglan

I have a relative thats 94 he had a TAVI put in at 92 . He’s doing very well. He didn’t have to wait very long to have it done.

It there anything you could do to shorten the 8 months wait time? Perhaps you could be put on cancellation.

All the best ...

Name-1 profile image
Name-1 in reply toRaglan

Your risk is general anesthesia.

Best wishes!

Olga

texigal profile image
texigal

Hi calebF.... it would be best to get infomation from reliable medical sources based on your specific degree of stenosis and cardiac status. Generally, whether there is an adverse impact of time delay from diagnosis to treatment is dependent on severity of the stenosis and current effects on your heart. You describe some of those effects in your comments such as fatigue, congested lungs and cognitive problems.

You may wish to discuss your concerns about the risk of delay directly with your cardiologist.

For general reference information however, there is a good article on Aortic Valve Stenosis, Diagnosis and Treatment on medicinenet.com written by an interventional cardiologist and radiologist from 2017. Additionally, be assured Anesthesia is excellent these days.

Not what you're looking for?

You may also like...

New to the group. Should I worry concerning my latest blood results?

New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL...
povhgc profile image

Reaching Out for Help For My 93 year old Mom; thanks

My mom is 93 years old, and was diagnosed with CLL 2 years ago. She is a saint, although I am sure...

Can someone help me to understand my blood results. Seems I will need treatment soon

After 5 years of W&W the consultant at Marsden is now of the opinion that now would be a good time...

Your view on what questions I should ask at my teleclinic next week.

Having a teleclinic with one of our cancer nurse specialists on thur (29th Oct) and arranged for...
Random78 profile image

Question about RSV vaccine

I am W/W for 5 years. I do get IVIg every10 weeks for the last year. I am not sure when the best...
Boy58 profile image

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator
lankisterguy profile image
lankisterguyAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.