Swollen paraaortic lymph nodes

[Mamouchi]

I have been stage 0 for 8 years. This year I developed pneumonia and months later a severe rash in my face and stomach. I was tested by a dermatoligist with prednisone and some cream and after three weeks it went away.

I have been experiencing stomach pain for one month. My GP referred me for an uktrasound . The report states I have multiple pariaritic lymph nodes, the largest measuring 3.9 x 2.6 x 3.0 . I am seeing my oncologist in three weeks.

I am scheduled to go overseas in early February for three month.

What will happen next?

[Cllcanada Top Poster CURE Hero]

This was very similar to my situation, you will likely be sent for a CTscan...

If your trip is a vacation, you might need to reconsider the timing, but discuss it with your CLL doctor...

You don't mention any other factors, like the rate of CLL progression, so its impossible to know, how far you are along...

~chris 🇨🇦

[Mamouchi in reply to Cllcanada]

I am otherwise ok. No other symptoms.

[Mamouchi in reply to Cllcanada]

I decided to go away. My first appointment is June 3. It’s just fir an assessment. I am wondering if you would like to share how you are going. The PAN have grown an extra 2 cm in 5 months.

This message is fir Chris

[DisneyMom in reply to Mamouchi]

Chris sadly passed away...

[Jemorgen]

Hi Mamouchi. I also have PAN and am stage 4 SLL (it’s all in my nodes). Last July they were about 9 cm and as of March they were almost 12 cm. My local hem/onc thought it was time to treat and I agree but I’m waiting for a second opinion with my specialist mid June. I was initially feeling a lot of angst but now I’m just trying to remember that there’s rarely anything acute about CLL/SLL. I’m often uncomfortable and tired but I still get through my days pretty well.

[Mamouchi in reply to Jemorgen]

I wish you well Jemorgen....