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CLL Support

23,253 members•39,949 posts

All posts for December 2018

BRUISING FROM IMBRUVICA

Has anyone on the drug imbruvica experienced many bruises....I have mostly on my thighs and legs..it does not hurt...but comes and goes and is unattractive.I...

Has anyone on the drug imbruvica experienced many bruises....I have mostly on my...

tlcladygiraffe

•6 years ago

6 Replies

Update on no amitryptiline when taking Imbruvica or Calquence

This is is an update to my post no yesterday. I just saw the cardiologist. He said amitryptiline is a definite no when on Imbruvica or Calquence. It lengthens...

This is is an update to my post no yesterday. I just saw the cardiologist. He s...

profrich

•6 years ago

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Montreal CLL support group meeting January 9, 2019

The next meeting of the Montreal CLL support group will be held Wednesday evening January 9 at the CHUM. For more information and to register write to Pascal...

The next meeting of the Montreal CLL support group will be held Wednesday evenin...

rvles

•6 years ago

2 Replies

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My last laboratory tests

Hi everyone, Please, comments regarding the attached photo: I wish to continu My doc.suggests starting treatment with FC. Thanks a lot for your reply,...

Hi everyone, Please, comments regarding the attached photo: I wish to continu M...

lilica955

•6 years ago

11 Replies

Ibrutinib Side Effects

Hi Everyone, Nice to meet you! My mother was diagnosed with Non-Hodgins Lymphoma. She was previously treated with a full cycle (6 rounds) of chemo on 2012 but...

Hi Everyone, Nice to meet you! My mother was diagnosed with Non-Hodgins Lymphoma...

Mingz

•6 years ago

3 Replies

CLL

Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range...

Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always o...

Shellcanada71

•6 years ago

4 Replies

Imbruvica plus alcohol or amitryptiline yields Afib?

After a few weeks on imbruvica, I had very bad arrhythmia attacks a few nights in a row, and had to quit. I am now switching to calquence. I have two drinks...

After a few weeks on imbruvica, I had very bad arrhythmia attacks a few nights i...

profrich

•6 years ago

23 Replies

pressure in head

2-3 times a week between 10-11 a.m., I fell like having hit a brick wall with pressure in my head and feel like I cannot function. It subsides after about 30...

2-3 times a week between 10-11 a.m., I fell like having hit a brick wall with pr...

pjcj0508

•6 years ago

5 Replies

CLL Society Alert -USA Patient Support Groups & Educational Meetings - Free 2nd Opinions by Video conference & Financial Assistance

See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear...

See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2...

lankisterguy

Volunteer•6 years ago

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Imbruvic to Calquence due to heart rhythm probems

I had heart rhythm problems in imbruvica and am switching to calquence. Is there anyone who has done this? If, so did the rhythm problems (PVC, Afib) not come...

I had heart rhythm problems in imbruvica and am switching to calquence. Is there...

profrich

•6 years ago

1 Reply

My Dana-Farber Trial Update

Started Acalabrutinib in August and had a couple of headaches over the first week. Called my care team. Tylenol basically stopped the headaches. They never...

Started Acalabrutinib in August and had a couple of headaches over the first wee...

Lily_Pad_Master

•6 years ago

14 Replies

Immunoglobulin

Hi everyone. Hope you are all doing ok. I have been started back on prednisone and methotrexate injections for my rheumatoid arthritis which has been in...

Hi everyone. Hope you are all doing ok. I have been started back on prednisone a...

Indie1234

•6 years ago

4 Replies

IS IMBRUICA KEMO ?

As far as I am concerned the answer is no, but my doctor and my CLL specialist just confuse the issue by saying it is, WHY do they do this ?.

As far as I am concerned the answer is no, but my doctor and my CLL specialist j...

fossicker

•6 years ago

14 Replies

Health and Social Care Secretary bans fax machines in the UK's NHS

"Matt Hancock has banned the NHS from buying fax machines and has ordered a complete phase-out by April 2020. NHS trusts will instead be required to...

"Matt Hancock has banned the NHS from buying fax machines and has ordered a comp...

AussieNeil

Administrator•6 years ago

12 Replies

Constant Headaches-

Constant Headaches- what is the best remedy?

Drich

•6 years ago

7 Replies

Tick vaccination

Hello After Venetoclax and Obinutuzumab I am mrd- both in PB and marrow. I would like to get vaccination against ticks (TBE). Has anybody experience if it...

Hello After Venetoclax and Obinutuzumab I am mrd- both in PB and marrow. I woul...

Reinhard

•6 years ago

4 Replies

Imbruvica the miracle pill 💊

https://www.seattletimes.com/business/technology/pharmacyclics-miracle-cure-a-cancer-drug-saves-a-biotech-company/

https://www.seattletimes.com/business/technology/pharmacyclics-miracle-cure-a-ca...

Lola69

•6 years ago

6 Replies

Got Shingrex vaccination

Went for my checkup with my oncologist last month and he stated that he wanted me to go ahead and get the Shingrex (shingles) vaccine before my immune system...

Went for my checkup with my oncologist last month and he stated that he wanted m...

Psalm4610

•6 years ago

5 Replies

Taking Imbruvica out of capsule

I have a swollen throat and difficulty swolloving. Did anybody took Imbruvica powder out of the capsule for a short time. I know instruction say to take the...

I have a swollen throat and difficulty swolloving. Did anybody took Imbruvica po...

pragnar

•6 years ago

14 Replies

Flair Trial 7 months in...

I’ve been on Ibrutinib and Venetoclax since May and all in all have been feeling great. Last weekend I had something new, in that my resting heart rate was...

I’ve been on Ibrutinib and Venetoclax since May and all in all have been feeling...

Kods

•6 years ago

5 Replies

Low plattles

My plattles count has always been under 60 they will not go any higher than that if I cut myself have to go straight to a hospital my white cell count is also...

My plattles count has always been under 60 they will not go any higher than that...

Silverwater

•6 years ago

1 Reply

Spam from the uk.

I am getting 15 to 25 spam postings daily to my email address from the uk. I suspect this is a result of my membership in the HealthUnlocked forum. Is there...

I am getting 15 to 25 spam postings daily to my email address from the uk. I su...

umpireman

•6 years ago

9 Replies

What do you think?

I am still awaiting final diagnosis of CLL. My grandmother had CLL. I have been very fatigued, weak, shaky at times, chills, night sweats, lesions, confusion,...

I am still awaiting final diagnosis of CLL. My grandmother had CLL. I have been ...

Carissaleigh

•6 years ago

7 Replies

Lukiemia and High white blood count

Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count...

Extremely fatigued, tired and sleeping all the time. Weak and hard to walk witho...

ConcernedSpouse2012

•6 years ago

2 Replies

Looking for CLL specialist in Pakistan.

My father has been diagnosed with CLL. He is in early stage of the disease. I am looking for a CLL Specialist in the area. Any help will be greatly...

My father has been diagnosed with CLL. He is in early stage of the disease. I am...

Shahzad11375

•6 years ago

10 Replies

GOOD NEWS

MY LUMPS WERE BENIGN....RESULTS FROM YESTERDAY...NOW I CAN ENJOY CHRISTMAS...THANKS FOR YOUR PRAYERS AND POSITIVE THOUGHTS..I AM SO THANKFUL...WISHING YOU ALL...

MY LUMPS WERE BENIGN....RESULTS FROM YESTERDAY...NOW I CAN ENJOY CHRISTMAS...THA...

tlcladygiraffe

•6 years ago

10 Replies

Low plattles

With my low plattles i went into early lobular with my son and he did not make it he was 40 day old can i have a normal pregnancy and my plattles count is 51

With my low plattles i went into early lobular with my son and he did not make i...

Silverwater

•6 years ago

2 Replies

I would like to know more about the thronbocytooenia

If any one that has the same as me please help

Silverwater

•6 years ago

1 Reply

Thrombocytopenia

I would like to know more about thrombocytopenia and my platlet count is 51 what can be done because I would like to have a baby my last child passed away at...

I would like to know more about thrombocytopenia and my platlet count is 51 what...

Silverwater

•6 years ago

1 Reply

Angioedema and CLL

I think I figure out my difficulty breathing. After having several tests and nothing showed I woke up last few days with swollen lips. That made me remember...

I think I figure out my difficulty breathing. After having several tests and not...

pragnar

•6 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2018

BRUISING FROM IMBRUVICA

Update on no amitryptiline when taking Imbruvica or Calquence

Montreal CLL support group meeting January 9, 2019

My last laboratory tests

Ibrutinib Side Effects

CLL

Imbruvica plus alcohol or amitryptiline yields Afib?

pressure in head

CLL Society Alert -USA Patient Support Groups & Educational Meetings - Free 2nd Opinions by Video conference & Financial Assistance

Imbruvic to Calquence due to heart rhythm probems

My Dana-Farber Trial Update

Immunoglobulin

IS IMBRUICA KEMO ?

Health and Social Care Secretary bans fax machines in the UK's NHS

Constant Headaches-

Tick vaccination

Imbruvica the miracle pill 💊

Got Shingrex vaccination

Taking Imbruvica out of capsule

Flair Trial 7 months in...

Low plattles

Spam from the uk.

What do you think?

Lukiemia and High white blood count

Looking for CLL specialist in Pakistan.

GOOD NEWS

Low plattles

I would like to know more about the thronbocytooenia

Thrombocytopenia

Angioedema and CLL

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