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CLL Support

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All posts for January 2018

Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP

Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on...

Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) ...

lankisterguy

Volunteer•6 years ago

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Sinusitis and bronchitis and cough that won't go away

Hi all...hope everybody is doing well. I have had sinusitis and bronchitis and cough since Oct 1st 2017...no fever, night sweats or weight loss. I just...

Hi all...hope everybody is doing well. I have had sinusitis and bronchitis and ...

Ladydi49

•6 years ago

10 Replies

New

I have 1 year relapsed cll/sll. Will need another 6 months of rituxan/chemo. I will also be prescribed ibrutinib. I was told I will need to take it for the...

I have 1 year relapsed cll/sll. Will need another 6 months of rituxan/chemo. I w...

joann504

•6 years ago

19 Replies

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is there a chart of blood result that I can get so I know how to compare my blood results

Just had letter from hospital re last visit with the following info... Haemaglobin 142 g/l White cell count 77 x 10(9) / L Platelets 270 x 10(9)/L Had a CT...

Just had letter from hospital re last visit with the following info... Haemaglob...

stunned

•6 years ago

3 Replies

Cll with thrush

Husband now going to start ibrutinib which was delayed as we had not received appointment for his has lung condition of plural effusion, Eventually received...

Husband now going to start ibrutinib which was delayed as we had not received ap...

Fannynorthy

•6 years ago

3 Replies

Would appreciate your input!

Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treatment. I have been W & W since 2011, I'm 57. He was concerned because the...

Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treat...

lorna222

•6 years ago

14 Replies

So confused

Just over a year ago xmas 2016 I had bloods taken I was told my lymphocytes were raised test was repeated still raised. My GP mentioned to me I may need to see...

Just over a year ago xmas 2016 I had bloods taken I was told my lymphocytes were...

Cathbrg

•6 years ago

6 Replies

New DX with CLL

I was DX September 5 2017 at th age of 57 with CLL. I have always been healthy and this set me back for a moment. I have a very strong spiritual foundation. I...

I was DX September 5 2017 at th age of 57 with CLL. I have always been healthy a...

Dawn-Marie

•6 years ago

27 Replies

need advice from those who have been there

My husband diagnosed june 2017 cll/sll,high risk mutations,started imbruvica ,july ,wbc was 95,000 ,started having muscle spasms painful but tolerable.December...

My husband diagnosed june 2017 cll/sll,high risk mutations,started imbruvica ,ju...

Elizy

•6 years ago

7 Replies

Venetoclax plus Rituximab

Greatly improves progression free survival....

Fant1924

•6 years ago

2 Replies

New study shows flu can be spread just by breathing

Little is known about the amount and infectiousness of influenza virus shed into exhaled breath. This contributes to uncertainty about the importance of...

Little is known about the amount and infectiousness of influenza virus shed into...

AussieNeil

Administrator•6 years ago

9 Replies

What is a fish test and what is 17p deletion, and why don't they do these tests in the uk

What is a fish test and what is 17p deletion. Thank you

Lisabean

•6 years ago

3 Replies

Reduction that worries me

When I started with Leukeran+ Gazyva my leucocytes were at 121000 and my lymphocytes at 111000. after the first cicle (1 month ) my leucocytes have dropped...

When I started with Leukeran+ Gazyva my leucocytes were at 121000 and my lymphoc...

CAGIULIANO

•6 years ago

9 Replies

When is the best time of day to take Venetoclax

Venetoclax. I will start Venetoclax in 3 weeks. When is the best time of day to take the pills. With a meal or after ? Which kind of food is better to take...

Venetoclax. I will start Venetoclax in 3 weeks. When is the best time of day to ...

GIDI

•6 years ago

25 Replies

Default avatars changing from next week

Hi everyone, HealthUnlocked have just advised that there will be a change in default avatars assigned to NEW members. This change will be implemented in the...

Hi everyone, HealthUnlocked have just advised that there will be a change in d...

AussieNeil

Administrator•6 years ago

Be the first to reply

•6 years ago

24 Replies

Vaccinations newly diagnosed cll stage A

I was diagnosed with atypical cll stage A (negative for cd23) last year and I have been trying to find out apart from pneumococcal vaccines should I get any...

I was diagnosed with atypical cll stage A (negative for cd23) last year and I ha...

CarpeDiem03

•6 years ago

7 Replies

Failed bone marrow biopsy

Just reading other posts re failed BMBs I had one yesterday and the Dr had a lot of trouble as he said my bones are so hard that he could not penetrate through...

Just reading other posts re failed BMBs I had one yesterday and the Dr had a lot...

Fantasia1

•6 years ago

10 Replies

Constant Flushing Symptoms right after eating a meal

Okay, for the last few weeks it seems that I get multiple sensations running through my body right after eating. It doesn't seem to matter as to what or how...

Okay, for the last few weeks it seems that I get multiple sensations running thr...

ozarkharper

•6 years ago

5 Replies

How do changes in diet affect CLL treatment? Are supplements safe to use? CLL experts Dr. Michael Keating and Dr. Jeff Sharman respond

Some wise words on the effects of diet on CLL from the well respected CLL specialists Drs Keating and Sharman. Dr Keating was behind the development of FCR...

Some wise words on the effects of diet on CLL from the well respected CLL specia...

AussieNeil

Administrator•6 years ago

37 Replies

Worried son.

Mum, 83 just diagnosed with CLL. Normal bloods last May 2017, now Hb 65, platelets 15, and WBC of 165. Enlarged painful spleen, just starting steroids. What...

Mum, 83 just diagnosed with CLL. Normal bloods last May 2017, now Hb 65, platele...

Willtoma

•6 years ago

3 Replies

11q, 17p deletion and Trisomy 12

Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12...

Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm no...

Ladydi49

•6 years ago

21 Replies

SERIOUSLY sore throat!

Started Ibrutinib 2 weeks ago and developed a sore throat with fever last Saturday. Seen by Triage as per the protocol - sent home with 4 days of antibiotics,...

Started Ibrutinib 2 weeks ago and developed a sore throat with fever last Saturd...

UKfulloflife

•6 years ago

9 Replies

All-Party Parliamentary Group on Blood Cancer report- An Important Day for people with CLL

The CLLSA are delighted to announce that the inaugural report of the All Party Parliamentary Group (APPG) on Blood Cancer is being launched at Westminster...

The CLLSA are delighted to announce that the inaugural report of the All Party P...

Myrddin

•6 years ago

3 Replies

Leukaemia Care - Patient advocate and GP training lead, Nick York, will be on Sky News from 9.15am

Patient advocate and GP training lead, Nick York, will be on Sky News from 9.15am today talking about why GPs are being urged to do more blood tests - find out...

Patient advocate and GP training lead, Nick York, will be on Sky News from 9.15a...

Myrddin

•6 years ago

14 Replies

Blood cancer care in the NHS

This House of Commons Library debate pack briefing has been prepared in advance of the debate entitled “Blood cancer care in the NHS”. This debate will be led...

This House of Commons Library debate pack briefing has been prepared in advance ...

Myrddin

•6 years ago

6 Replies

CLL Live 2018 - Don't Miss It

Registration for CLL Live 2018 Many Reasons for Hope is now open. CLL Live 2018 will run from April 19 (evening meet and greet) to April 21(half day program)....

Registration for CLL Live 2018 Many Reasons for Hope is now open. CLL Live 2018 ...

peterdorfman

•6 years ago

4 Replies

Can treatment cause death?

My mother was diagnosed with CLL 3 years ago. Her WB count was 19K. She goes every 6 months to get checked and 2 months ago it jumped to 98k. The Dr wants her...

My mother was diagnosed with CLL 3 years ago. Her WB count was 19K. She goes eve...

1Lostgirl

•6 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2018

Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP

Sinusitis and bronchitis and cough that won't go away

New

is there a chart of blood result that I can get so I know how to compare my blood results

Cll with thrush

Would appreciate your input!

So confused

New DX with CLL

need advice from those who have been there

Venetoclax plus Rituximab

New study shows flu can be spread just by breathing

What is a fish test and what is 17p deletion, and why don't they do these tests in the uk

Reduction that worries me

When is the best time of day to take Venetoclax

Default avatars changing from next week

Dr. Brander on Venetoclax and more...

Clinical Data and Third Line Treatment... Venetoclax, Managing High Risk CLL

Treatments

Vaccinations newly diagnosed cll stage A

Failed bone marrow biopsy

Constant Flushing Symptoms right after eating a meal

How do changes in diet affect CLL treatment? Are supplements safe to use? CLL experts Dr. Michael Keating and Dr. Jeff Sharman respond

Worried son.

11q, 17p deletion and Trisomy 12

SERIOUSLY sore throat!

All-Party Parliamentary Group on Blood Cancer report- An Important Day for people with CLL

Leukaemia Care - Patient advocate and GP training lead, Nick York, will be on Sky News from 9.15am

Blood cancer care in the NHS

CLL Live 2018 - Don't Miss It

Can treatment cause death?

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