Just over a year ago xmas 2016 I had bloods taken I was told my lymphocytes were raised test was repeated still raised. My GP mentioned to me I may need to see a haematologist and he spoke of CLL didn’t mean much to me until I went online and found out exactly what CLL was. Since then my blood has been checked every two months. Last year can’t quite remember when it was it went up again, I was referred to a haematologist. I saw this person on the 11th November last year. He told me he couldn’t say whether I had CLL or not but I was at risk. He took bloods that day FBC plus another test to do with proteins they told me. I never got the results of these tests. January 4th 2018 I called the haematology dept in question and was told my bloods hadn’t been tested they said it was too old by the time it got to the lab. I was never informed neither was my GP who I had been pestering for results. They told me if I could come to the hospital the following week one day before 12 midday they would repeat the test. This didn’t happen as it’s over 200 mile round trip to the hospital our car wasn’t up to it and neither was I. Then I got a letter from them for an appointment to see another haematologist and to have the bloods taken again. This appointment was today. First of I saw a nurse who took bloods from me she said the one test was a FBC which would be tested straight away once the results came back I would see the haematologist. The other test she said was the same as the previous haematologist had requested something to do with checking for proteins she said that test would take a bit longer. Once the FBC came back I was called to see the haematologist. This is when I became confused...he asked me some questions about how I was feeling he appeared to dismiss the facts that I told him about being very tired all of the time, bad sweating, back pain, loosing weight, loss of appetite, repeated infections UTIs Helicobacter feeling fluey and run down, bone and muscle pain, nerve pain. He said he wanted more blood from me I saw the bloods the nurse took sat on top of my records on his desk. He said this test he wanted would be sent away just the same as the nurse had told me. He then proceeded to speak about blood cancer and told me there was no cure and that they didn’t treat it. Yet in the same breath he said to make an appointment on my way out for 3mnths time and he would let me know the results of the blood tests. If it was normal he wouldn’t need to see me again if it was abnormal all that they will do is see me every 3/6mnths. My GP has lead me to believe there is cause for concern, I saw a psychiatrist on the 11th of this month he said there is something wrong with my blood and it needs to be seen to. In my mind I’m thinking why are they doing these tests if there’s no cause for concern, why are they saying there’s something wrong in one breath then the next they’re saying it’s nothing to worry about. One minute they worry me the next they’re wondering why I’m worried and stressed ...I just dont get it can anyone shed some light on this for me. I came home today to an email from CLLSA with regards to the thing in Parliament last week about educating GPS etc and getting more support and care for patients is it really this bad?